Happy & Healthy

Back to reality, huh? Just like many of you, I decided to take some time “off” (of writing) during the holidays. I had such an amazing two weeks. Saw so many family and friends, gave and received some great presents (like my new iPhone I’m writing from), went on a perfect getaway with Mike up north where we ended the trip ziplining through the trees of the white mountains and just got relaxed and rejuvenated for 2015.

Every year, people always wish me a happy and healthy new year. I say it too. But until this year, I don’t think I truly felt the importance of this wish. This saying is so often used but so rarely embraced by the one saying it. We simply say the phrase and wish it upon those around us but don’t make it a priority to ensure that we, ourselves, are “happy and healthy.” After a year full of doctors appointments, hospital stays, chemotherapy and radiation, I’ve learned what a true blessing it is to have good health. A blessing that should not be taken for granted. But while I’ve been burdened with many health issues this past year, I’ve also been reminded of the importance of “making the right choices.” These are the things in life that we have control over, like eating healthy, working out regularly, staying hydrated each day, and exploring alternative medicines like acupuncture and massage therapy. All the little decisions add up so make each day count. Take every opportunity to better your body and therefore better yourself. Things like drinking natural teas that have added benefits such as lowering cholesterol or providing your body with antioxidants. Getting that massage you’ve been thinking of— it’s not just pampering yourself, it’s helping to lower stress and better circulate your blood. Avoiding food and products that have chemicals and toxins. Exercising multiple times a week. This doesn’t have to mean wasting away on the elliptical (unless that’s your thing!), it can be so many different things like going for a long walk, doing yoga, taking a zumba class, lifting weights, or climbing the stairs in your house a few times. Whatever it is you can find time for in your day, do it! It makes a huge difference. Just recently, I was cleared to begin going to my gym again. I was amazed at how much strength and endurance I had lost since the last time I had worked out there but I also know that the body is a powerful tool and one that, with training and dedication, can do pretty amazing things. So although we do not have control over some of the big things life can hand us, like accidents, diseases, or in my case, cancer, we do have control over the little things that can add up to a lot. Being healthy is a combination of good choices, so try to make the right ones.

Now comes the second part of this wish. Happiness. Even more than the gift of health, I’ve learned the blessing that it is to feel true happiness. I’m lucky in the sense that I’ve always been a genuinely happy person; little things get me excited like winning $5 on a scratch ticket or having a 1D song come on the radio (yes, One Direction. I may be 25 but I will always get obsessive over boy bands.) So when there were days upon days that I honestly had to try hard to crack a smile, it felt off… it felt, not normal. Feeling happy doesn’t come naturally to everyone and it certainly comes and goes depending on the time and difficulty of your life at that moment. But what I have realized is that, above anything else, the power of your mind is a force that’s hard to be reckoned with— that staying positive and keeping an optimistic outlook will make all the difference, even at the worst of times. As I said, there were many days that it was extremely difficult to stay positive and felt nearly impossible to feel a sense of happiness. However, I was always able to close my eyes and remind myself that I am a strong woman, one that has been given many gifts in life and one that has an incredible support system. These things, no matter how terrible my day was, gave me a glimmer of happiness. Remind yourself of these things when you are feeling down— say out loud what you feel blessed to be or have in this life; it’ll make you feel better, even if just for a little bit. Happiness is something that is often taken for granted, I surely took it for granted before this past year. But what I’ve learned and hope to pass on to the people who read this, is to really enjoy the “ups” in life so you can show yourself compassion during the “downs.” Smile when a snowflake falls on your nose, sing out loud when your favorite song comes on, be grateful when you’re laughing with friends, close your eyes and really feel the sun beating on your face, and dance HARD whenever you damn well please.

C-r-e-a-t-e happy. C-h-o-o-s-e healthy.

XOXO,
Jessy

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My Year in Review

As 2014 was quite the unexpected year for me, throughout the year, I decided to take videos and pictures of myself while home alone to document what my thoughts and feelings were on a day-to-day basis. I’ve made a compilation video of some of these images and clips of the videos to share with all of you who have so kindly followed my story all year.

Thanks to each and everyone of you for your support, kind words of encouragement and love throughout 2014. It has made all the difference in the world.

XOXO,
Jessy

Hard Times, Good Times

I started writing this blog post last week and never finished. I went back and read it this morning and realized in one short week how things have already changed. Here’s what I wrote…

“The past four months have probably been the worst four months of my life. Not the most uplifting way to start a blog post but it’s the truth. During these months, I’ve struggled to stay positive and truly feel happy. Partially because of the unexpectedness of the pancreatitis. It seems so unfair that I would get that on top of leukemia. Because other than that my chemo caused the pancreatitis, it has nothing to do with the cancer. It’s only delayed my treatment, caused me a lot of pain and laid me up in the hospital three too many times. …. even when I’m doing “fun” things, my mind races to that things aren’t normal. That I can’t have a drink. That I can’t have a french fry. That I have to be home early to hook up to a feeding tube. That I’ve simply been hooking up to a feeding tube for over two months now. That I’m not at work. The list goes on and on. 
 
I’m hoping that the end of this funk is coming near as sometime in January I’ll be FINALLY going back to work and I think that will help immensely. But I wanted to write this blog post so I remember how I felt at this moment. These days are long and tiring. Each day I feel different, whether it be emotional or physical. I have a hard time sleeping and my mind always seems to run back to “i have cancer.” I spend half the day sleeping and another portion watching TV. I can’t take that anymore. I want to do, I want to be productive. But sometimes it’s too hard, I’m too tired. Today I was tired. I got out of my pajamas at 4 o’clock to run to the grocery store to get things for Thanksgiving. I love being in pajamas but when that’s all you have everyday, getting dressed up becomes a privilege. Overall, things have just been really tough.”

Well it’s funny what a few days, family, friends and good food can do. I had the best four days I’ve had in a really long time. Thanksgiving was wonderful as I got to see my whole family and grandparents and snuggle with my love bug of a niece. Then Friday I got to see a bunch of my best friends from high school at a fabulous Friendsgiving party! Saturday, Mike and I got our Christmas tree and started decorating for Christmas (my ballerina reindeer are up which makes this girl VERY happy). Then we headed out to a housewarming/birthday party at one of our good friends house which was a blast. Sunday we just stayed around the house and decorated for Christmas, made some turkey chili and watched the Pats. It was a busy but perfect few days and it was just what I needed to help get me out of that funk. I felt so happy to see my friends and family and get to spend four days with Mike. Times like this weekend I’m reminded why I’m so blessed. It helped change my mindset and brought me a sense of happiness that I haven’t felt these past four months. There are still hard days ahead (most likely a lot of them) and I will have to keep working on feeling normal and feeling happy but I’m thankful for last weekend as it brought both those things back into my life.
XOXO,
Jessy
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Tomorrow, Tomorrow, I’m Excited for You Tomorrow

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Tomorrow I go to the Dana. I go every Wednesday and I never look forward to it but tomorrow, tomorrow I’m excited. Weird to say that I’m excited to head to the hospital but I’m hoping that tomorrow is the start of a long stretch of pain coming to a close. I meet with my pancreatologist and hopefully get the all-clear to begin eating again. Now I know it won’t be an “eat whatever you want” conversation but even being able to have a fruit smoothie or grilled chicken breast will be such a big deal. Like I’ve said over and over, I’m so hungry. Hungry and beyond crazy with cravings. All I can think about is food…sandwiches, pizza, angel hair pasta, sushi. I’m a ways away from all that but a girl can dream. I also start on steroids tomorrow for five days which make me absolutely insane when it comes to eating. They make me so hungry and able to eat like a growing football player. So tomorrow as I meet with my doctor, I will be putting on my persuasive pants and begging him to allow me to start my journey back to the real world of food. Wish me luck.

Tomorrow also marks the restart of my chemo regimen. I’ve been paused for two months because of the pancreatitis but tomorrow I start it up again. It will feel good to restart as I have been worried to be off my planned track for this long…for obvious reasons. Chemo’s no fun but progress is. The start of this next round of chemo means I’m one step closer to getting my life back, one step closer to being cured. And those things are something to be excited about, really excited about.
XOXO,
Jessy

Three Months Hungry

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My first pancreatitis attack happened on August 13th. It’s now November 14th. That’s three hospital stays in the books, about 100 pounds in fluctuated weight, an incredible amount of pain medication down, a stent placed into my pancreas, two months behind on my chemo regimen and three months in the past of simply not eating or not eating the foods I want to eat. In fact, right now, I’m unable to eat anything but “clears” for the next two weeks (clears = broth, apple juice, jello, water). It sounds unenjoyable but not the end of the world, right? I would have guessed that too but not being able to eat is more than that. I’m having such a hard time with it because it’s something that I enjoy doing so much. I enjoy cooking it, I enjoy snacking on it, I enjoy going out to restaurants with my boyfriend and friends, and I enjoy eating it! Food was one of the last things that not much had changed since my diagnosis. And I so revelled in that. So the fact that it got taken away from me just seems unfair. Now, instead of eating, I have a feeding tube that I attach to every night for 14 hours. Not exactly a pasta dinner.

In general, these past few months have left me really down. I’ve been in the hospital 45 days of the three months which is nothing short of miserable. Being in the hospital is a mind game. It’s draining and sad. You become like a hamster. For the majority of the time you’re kept in your little cage where people are constantly coming in and out to either visit, poke you with something or give you medication to take. The latter is my favorite as it hopefully will make me sleepy and I can dose off to kill an hour or two. If I’m being honest, sleeping has become one of my favorite things to do in these past few months because it takes me away from everything. I know that doesn’t sound very inspirational but it’s the truth. Trying to stay positive and keep my spirits up has proven to be harder recently than it had been in the past. I think it’s a combination of this big bump in the road I’ve had (aka pancreatitis) and also the sense that I’ve been at this for almost 9 months now and I still have so much further to go. Today, however, my mom and I are staying in our pajamas all day since it might snow and making Christmas crafts for the holidays. It should be fun and I’m grateful to be out of the hospital and doing something I enjoy… crafts! Now, if I can just get to eating by Thanksgiving, I’ll be making positivity strides all over the place.
Much love for listening to me vent… I had to get this one out.
XOXO,
Jessy

When Life Hands You Apples, Make Applesauce

Just before my first pancreatisis attack, I met with a few girls from work for coffee. It was so great to see them and feel a part of the team again. They had asked to get together so they could give me something a whole group of people had put together for me. As many of you know (and working with me every day, you can imagine how much they heard about it!), Mike and I had a trip planned to the Dominican in March. Unfortunately, I was diagnosed just a week and a half before and we weren’t able to go. Really, really disappointing. So my coworkers, being the amazing and thoughtful people that they are, all chipped in to be able to send Mike and I on a little get-away weekend to Peaks Island, Maine to make up for it! Peaks Island is right off of Portland and Mike and I had discovered it last summer. It’s about 3 miles wide and the cutest, most quaint little island I’ve ever been to. We had had such a relaxing and special day there; biking around the island, laying on the beach, watching people ride horses along the water, drinking summer beers on an ocean deck restaurant as we let one more ferry come and go, not wanting to head home. It was a day that for some reason really meant something to me and I have often thought of it when I’m feeling down. It’s become kind of like a happy place for me when I need to think of something good. (I digress!) So when so many of my co-workers (some that don’t even work at TJX anymore!) came together to surprise me with this, I was floored. It was so over-the-top generous and thoughtful, I truly was touched. So Mike and I picked a weekend, made the reservations and started making plans for our little fall getaway to Peaks Island, Maine.

It was scheduled for this weekend. We were in Somerville this weekend. Boo. We felt like we had to cancel because I’m still recovering from pancreatitis, I’m still on the feeding tube at night and it probably would have been too much to be gone for the whole weekend. I was so disappointed as I was really looking forward to a relaxing weekend, out of the house, out of the city, just with Mike, in a place that really meant something to me. It felt unfair that something else got “taken away” from me. But as Mike reminded me, we have next summer and maybe at that point I’ll be feeling 10x better (hopefully will even be able to have a beer on that deck) so I’ll be able to enjoy it even more than I would have this weekend!
So we turned apples into applesauce (I actually did that today! But I meant the expression! ) and had ourselves a pretty fun filled weekend for a “couple with cancer.” Friday we stayed in but cooked turkey burgers together (yes, I was able to eat a turkey burger— wahoo!). Then Saturday we went to the largest corn maze in the world with two of our best friends and 2 1/2 hours later completed that. Came home and went out to a fabulous Italian restaurant near our house that we haven’t been to in a while and had a great meal together (I’m able to eat pasta now too — even bigger wahoo!). Sunday we walked around the Boston Public Gardens and window-shopped on Newbury St. just for fun. Came home to watch football, nap on the couch with the fireplace going and make another pancreatitis-approved meal— turkey tacos! And then we had one more day- Monday! Mike had taken it off originally for Peaks Island so he kept it so we could have a three-day weekend. We kept the fall-fun going and trucked it up to North Andover to a great little farm that we could  pick our own pumpkins. And that we did. Picked them and then came home and carved them— pretty decently if I do say so myself. 🙂 Overall, it ended up being a fabulous weekend. I hadn’t expected it to be because I was angry about not being able to go away but as life has taught me this year, sometimes you just have to roll with the punches and make the best of what you’ve been given. And this weekend, I was given a great few days.
Hope you all had a lovely fall weekend as well!
XOXO,
Jessy
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Glorious Life

I did something stupid today. I clicked and clicked and clicked through old pictures on Facebook. One by one I went further and further back in time. It was like sinking into a hole. A hole of memories of fun times, times with my family and friends and even coworkers that I want back so bad. Looking back at these pictures make me smile because I’ve had such an amazing life but they bring me down as well because I miss that life so much. Mike and I used to always say we have such a “glorious life.” After fun weekends and things we’d do together, we’d always look at each other and say “ughh glorious life, glorious life!” Today when I was scrolling through the pictures, I realized we haven’t said that in a long time. And that, that made me sad.

I haven’t written a post in a week and that’s because I’ve honestly been busy! My amazing mother has taken time off of work to be with me during the days. She did it for two reasons, one being that I’m connected to a feeding tube for 14 hours at night and I need help getting disconnected in the morning. Second and honestly more important is to just be with me during the day so that I don’t have to be by myself all day, everyday. I was trying to make it work but spending all day by yourself is draining and depressing so having her here has made a huge difference. We’ve gone apple picking, painted our nails, visited with my niece, done some shopping, baked breads, gone for long walks and this morning we even went to a fashion show at Saks Fifth Avenue (boy were we rubbing elbows with the other half!). I’m so lucky that she’s able to do this for me.
Keeping busy when I can and having my mom with me has made my days so much better. They go by faster and I’m happier getting to interact with people and getting to spend so much quality time with my mom. But our “glorious life” still feels like it’s on pause right now which is hard. There’s an empty, bland sort of feeling you get inside when you don’t feel like you’re living your life to the fullest of potential. In reality, I know that I’m not “not living life to the fullest of potential” (because God knows i’m trying) but sometimes it feels like that when I’m stuck at home or sitting in the waiting room of the hospital (which is 75% of the visits). There’s just so much time waiting, sitting, resting, that my mind begins to wander off to what my life was or used to be. But as my mom reminded me today, I’ll get it back. It’ll never be the same but maybe it’ll be better. I’m going to keep on fighting, with the help of my family and friends, until saying “glorious life” is back into my repertoire of weekly phrases.
XOXO,
Jessy
here’s my crazy but incredible mother. aka Mom-cologist!
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Can’t Sleep

I do some of my best writing at 4:30 in the morning…on steriods. And that’s what’s going on right now. It’s exactly 4:37am and my mind is racing and I can’t sleep. So instead of laying here in bed with my eyes open, I thought I’d write down how I’m feeling and what’s new.

It’s been a little while since I’ve written a post, the frequency of the posts have slowed down in the past month and I know it. It’s not because I’m getting bored with my blog or anything of that sort but rather because I’m bored with my life right now. The past 3 weeks have consisted of not eating or making bland, “soft” meals, throwing up, napping, being curled up in pain, going to the doctors, watching tv, sleeping. Repeat. I’ve felt anything but inspirational. I’ve felt bad for myself quite honestly and that’s really it. I felt bad for myself that Mike and I had to cancel a trip to Newport this weekend that we had looked forward to nearly all summer due to my condition. I felt down for myself that I’ve felt so sad lately, it doesn’t feel like me. But as I sit here in bed in the wee morning of hours, I am thinking about everything good that has still happened over the past three weeks.
– I got to see two of my best friends, one from high school and one from college, that live in California and Florida and I very rarely get to see. It’s always rejuvenating to visit with friends, especially those you haven’t seen in quite some time.
– I got to spend time with my family and Mikes family. Both by the pool. Both with our little nuggets. And I’ve said if before but I’ll say it again, there’s no better cure than hanging out with children you love. They put a smile on your face no matter how crummy you may feel.
– I got to slow dance with Mike to Frank Sinatra.
– I got to dance crazily to “Shake It Out” by my girl T Swift with Mike (yes, there’s a lot of dancing in this house). Works for a good belly laugh every time.
– I have been reminded how strong I really am. I have learned how much my body can be put through and how I will bounce back and come out on top, even if it takes a while.
– I got to start back up on the chemo cocktail yesterday. Now this may not be traditional “fun” but being paused is a stressful feeling as you know it’s just pushing back the end goal. So I was thrilled to continue back on the march.
– I’ve learned that the guy sleeping quietly next to me (thank god, it’s a snore a lot of the time!) is the best thing that ever happened to me. That even at my lowest and grumpiest, he loves me unconditionally.

So for a crappy few weeks, there’s still a lot of good that has come out of it. And that’s important to remember, even at my lowest lows. Sometimes, I just have to write it out. I hope you all are having a wonderful and blessed week!

XOXOX,
Jessy

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Foggy Days

Foggy. You can’t see clearly. You can’t think clearly. You can’t feel clearly. Just like with fog on an ocean dock, fog inhibits you from seeing what lies ahead of you.  And that’s how I feel. My whole being feels foggy. Unable to see the brightness of days that inevitably lie ahead. Bogged down by sadness and frustration; physical pain and exhaustion.

Last week was hard. Really hard. This week is better but still hard. It all seems like SO much. So overwhelming. So many medications, chemotherapy and brain radiation sure has a way of making you feel out of it, making you feel not you. And that’s exactly how I’ve felt, not myself. In a way, I feel disconnected to my own life. Like I am in somebody else’s crappy body. Somebody else’s negative mind. I’m a happy person. To my core, I’m happy. I love life. I love smiling. I love laughing. I genuinely enjoy being positive. I get excited over little things. And I love that. So when I feel unhappy, when I feel like it’s an effort to smile or to laugh or to get excited, it doesn’t feel like me. And that hurts. That’s a pain that no spinal tap can replicate.

As Mike and I were watching Father of the Bride 2 and Nina was just about to have the baby, she looked up at George Banks and said “Isn’t this just so amazing?” I instantly got emotional. Not because I was so moved by the film but because I felt so jealous of Nina. (she’s a character, I know.) But I felt so jealous that she was lying in a hospital bed, just like I had been all week, and that she got an incredible baby at the end of it. I want a baby, I thought. Because a baby is a miracle, a blessing. A baby truly is amazing. Now, don’t go all “omg she wants a baby?!?!?!” on me because clearly I don’t want a baby right this second but watching this character receive so much joy brought me a sense of sadness because that “amazing” feeling seems so far away. Sounds so dumpy, I know, but it’s how I felt.

But then I sit here, writing that paragraph out and I know in my heart it’s not true. It’s exactly how I felt. 100% truth. Whole-heartedly how I looked at that moment. But as I reread what I write, I know that although it’s sometimes so hard to remember that there’s an end to this race, that there’s a light to the end of this tunnel, I have faith that there will be brighter, happier, fog-free days ahead. In fact, those special, amazing moments, although they may not be as obvious or glamorous as some of life’s big moments, they’re still here. Despite it all, amazing things are still happening to me.

Like when a complete stranger came up to me at the Michael Buble concert on Friday and told me to be strong and that my hair would grow back more beautiful than ever. That she had “been there, done that” and that everything was going to be okay. That’s amazing. She doesn’t know me, she doesn’t know my story or my diagnosis but somehow this woman knew that I needed that little push last week. I needed to be reminded that this too shall pass. I needed a little miracle. And in that moment, my mind felt anything but foggy. It felt clear and precise and happy because I was meant to be there, finding comfort from a complete stranger. That was meant to happen to me. Now that, that’s amazing.

XOXO,

Jessy

p.s. Speaking of amazing, here are some pics from our family vacation on the Cape last week!

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What a Week Can Do

One week ago today, I was running on about an hour of sleep, crushing a 101+ fever, puking up anything I tried to consume, sitting in a hospital bed, and thoroughly pissed off. 

Today, I’m getting things down around the house, sipping on green tea, watching birds enjoy my bird bath (so chute), enjoying being in my house, listening to Sam Smith and feeling thankful for having just had such a wonderful weekend. What a difference a week can make. 

I got out of the hospital on Friday and it weirdly took me the whole night to mentally “feel better.” I couldn’t really kick the anxiety I felt from being locked up in the hospital for five days. For some reason, this stay really kicked my ass and even Regina’s pizza couldn’t get me out of my funk. But Saturday was a new day, a better day and the start of the weekend hit the “reset” button. Mike and I walked around Harvard’s “Arnold Arboretum” on Saturday which was perfect. In the city, but I felt so far away from the hustle and bustle of Boston. There were gorgeous flowers, endless walking trails, and my best friend holding my hand– couldn’t ask for much more. I even removed my baseball cap for a bit (which felt amazing) and we walked around as the beautiful bald-headed couple we are right now. 

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After walking around for two hours, we headed to my old stomping grounds in Brookline to enjoy an early dinner on the outside patio at Barcelona, the same restaurant we went on our first date in Connecticut. Meat & cheese, soft shell crab, grilled cheeses with “jamon,” salad, and mussels… we rolled out of there.  

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Sunday, Mike went golfing went with his brother and a few friends as I contently cleaned up around the house and did some errands (one week of getting nothing done makes cleaning such a fun thing!). I then headed to Mansfield to spend the afternoon with Mike’s sister-in-law and nieces. Elle, who’s almost three, loves princesses, reenacting Disney movie scenes and is the sassiest little thing around. I’m obsessed. There’s nothing quite like playing in a “castle” tent, pretending everyone else are monsters and chatting about earrings, pink dresses and dolls. So lucky am I to have that little nugget in my life. Doesn’t matter if you’re having a bad day to a 3 year old, she’ll make it better. 

I hope you too had a wonderful weekend and got to do things that made you smile. Happy Monday! 

XOXO,

Jessy