Sick Day

Today I’m taking a sick day. Mike is playing in a golf tournament and is gone all day and I have no plans. I haven’t had more than an hour or so by myself since September 3rd, the day I got pancreatitis #2. Combo of being in the hospital, so never having a second to yourself because a nurse, doctor or specialist is coming in to talk to you and now at home my mom comes every day and typically stays till when Mike gets home. (don’t worry mom, that doesn’t mean I don’t love having you, because I LOVE having you!) But sometimes it’s good to have some time with just yourself.
It’s hard not to feel like everyday is a sick day for me lately. I’m home, my mom’s taking care of me, I don’t feel good, I’m taking a bunch of medicine. Sounds pretty similar to a sick day from growing up. There’s always something a little enjoyable about staying home from work or school even when you’re not feeling well. You feel lousy but you love getting to stay in jammies all day and watch the Price Is Right. But when your sick day is going on 9 months, it loses its enjoyability. Today, however, I’m choosing to stay in my pajamas and watch trashy TV with just ME all day. Cancer or chemo didn’t make me stay in, I decided to stay in and that’s why it feels different, that’s why it feels fun! So before I exert too much energy, I’m heading back to lounging!
XOXO,
Jessy
p.s. look at these ridiculously amazing slipper socks I got at TJMaxx! I shall be in them all day.
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Pain & Plateaus

It’s my 25th day here at Brigham & Women’s Hospital. I’m about to tie my first stay, something I never thought I’d do. I’m so drained. I feel mentally and physically exhausted. I haven’t had a meal in almost a month and haven’t even had anything to eat in a week. How is that possible you ask! Because I’m hooked up to a feeding machine that will go home with me when that day comes. It’s been hard for me to put the way I’m feeling into words because it’s like what’s there to say? I’m still here. Still in pain. Still yearning to go home more than anything. Plus, I have been on so much pain medicine that it’s literally hard to put my thoughts into words. I notice this when I’m texting and it takes me 5 minutes to get out a 2 sentence text.

This stay feels different because it came on so unexpectedly. I was home alone on a Friday and I started getting the same stomach pains I had experienced with the pancreatitis a few weeks prior. I called Mike who then called my doctor who then called 911. In a matter of minutes the fire engines and ambulance was at my house and I was hopping into the ambulance. One perk I will say about taking the ambulance at 5 o’clock on a Friday are those sirens. You get there quite a bit faster than doing it yourself, it’s nice to have everyone move

for you. When I got to the emergency room and then ended up telling me the pancreatitis was back, I felt so overwhelmed. I’d already dealt with this. I was just in the hospital for pancreatitis. How could this be happening? I’ve listened to everything the doctors had told me to do. But it’s what happened and it wasn’t anything I had done wrong but simply bad luck. What was to come in the next three weeks would end up being three of the hardest weeks of my life. I gained 40 pounds again and I was unable to walk or get in or out of bed by myself. I felt like a tractor trailer had run me over…I was in so much pain. And to make it worse, I’ve been unable to keep even water down. All these things meshed together and all I could feel is frustration and anger.

I don’t know what else to say but I’m glad I got out everything that’s been going on and how I’ve felt in these past 3 1/2 weeks. It wasn’t a happy post, I know, but it’s real and it’s how I feel. Thank you for listening to me and letting me vent.

xoxo,
Jessy

Ps since writing this post, I’ve found out that I am scheduled to go home tomorrow!!! Wahoooo! Looks like I should’ve written this post sooner!!!!

Here’s a pic of a highlight of my stay!

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Back at It

It’s been a rough go at it lately. Really, it has. Although my attempts to limit foods have been the best to my ability, I somehow found myself in an ambulance by myself to the hospital on Friday afternoon due to my pancreatitis coming back.

Painful and Scary. No bueno.

So I’m back in the Brigham, not getting to eat or drink, on rotating pain meds, and just overall itching to get out of here. Luckily, I’m not getting pumped with nearly as much fluids this time so I haven’t gained the 40+ pounds I did round 1. I do, however, have some pretty amazing news. My doctors have finally approved Mike and I being able to get a dog so there’s something for us to be very excited about and something to very much look forward to! So while Mike’s at work, I’m over here lookin for someone to call our little baby! If you have any frenchie breeder or rescue suggestions, I’m your girl!!!

Quick post today but just wanted to give an update about what’s going on here on my end! Hope you all had a marvelous weekend!

XOXO,
Jessy
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What a Week Can Do

One week ago today, I was running on about an hour of sleep, crushing a 101+ fever, puking up anything I tried to consume, sitting in a hospital bed, and thoroughly pissed off. 

Today, I’m getting things down around the house, sipping on green tea, watching birds enjoy my bird bath (so chute), enjoying being in my house, listening to Sam Smith and feeling thankful for having just had such a wonderful weekend. What a difference a week can make. 

I got out of the hospital on Friday and it weirdly took me the whole night to mentally “feel better.” I couldn’t really kick the anxiety I felt from being locked up in the hospital for five days. For some reason, this stay really kicked my ass and even Regina’s pizza couldn’t get me out of my funk. But Saturday was a new day, a better day and the start of the weekend hit the “reset” button. Mike and I walked around Harvard’s “Arnold Arboretum” on Saturday which was perfect. In the city, but I felt so far away from the hustle and bustle of Boston. There were gorgeous flowers, endless walking trails, and my best friend holding my hand– couldn’t ask for much more. I even removed my baseball cap for a bit (which felt amazing) and we walked around as the beautiful bald-headed couple we are right now. 

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After walking around for two hours, we headed to my old stomping grounds in Brookline to enjoy an early dinner on the outside patio at Barcelona, the same restaurant we went on our first date in Connecticut. Meat & cheese, soft shell crab, grilled cheeses with “jamon,” salad, and mussels… we rolled out of there.  

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Sunday, Mike went golfing went with his brother and a few friends as I contently cleaned up around the house and did some errands (one week of getting nothing done makes cleaning such a fun thing!). I then headed to Mansfield to spend the afternoon with Mike’s sister-in-law and nieces. Elle, who’s almost three, loves princesses, reenacting Disney movie scenes and is the sassiest little thing around. I’m obsessed. There’s nothing quite like playing in a “castle” tent, pretending everyone else are monsters and chatting about earrings, pink dresses and dolls. So lucky am I to have that little nugget in my life. Doesn’t matter if you’re having a bad day to a 3 year old, she’ll make it better. 

I hope you too had a wonderful weekend and got to do things that made you smile. Happy Monday! 

XOXO,

Jessy