It’s one o’clock in the morning and I can’t sleep. Is it the steriods or pain medication wearing off? Am I nervous for tomorrow’s appointment? Or maybe it’s the fact that I found out today I won’t be getting my position back at work when I go back in a month? I think it’s all three, mostly the latter. My whole life, I’ve always worked my damnedest to keep moving forward, to be the best I can be, put myself in the frontline and that’s exactly what I did when I got into the workforce. I worked my ass off at an agency to get a better job for a corporation and then worked my ass off for a company to prove that I was great at my job and prove myself I did. I got promoted to a position that I was excited about and proud of myself for obtaining. And then leukemia struck like the bitch it is and took my career train right off its tracks. Almost an entire year I’ve been out of work, out of touch with my coworkers and what’s going on in the industry. Instead of digital media marketing, my job became keeping me healthy, keeping me alive. So now that the light is finally creeping in the tunnel and I’m this close to getting back to work, I find out that I’ve lost that promotion I worked so hard to get. Now that’s
a hard pill to swallow. I understand the business decision behind it, but it definitely feels like a kick you when your down type of moment. I didn’t expect it at all and I am so frustrated and upset I barely know what to say. I know after everything I’ve been through this year, something like this shouldn’t rattle me so much (it’s just work, right?) but it’s more than that to me, it’s my career path and having cancer rear it’s ugly head at me one more time and take one more thing away from me just feels so unfair.
It’s 1am and I still can’t sleep. Too many things racing through my mind. But there’s one thing I know for sure, when I get back in my little baby cube land, I’m gonna kick some ass and take numbers doin it!
As 2014 was quite the unexpected year for me, throughout the year, I decided to take videos and pictures of myself while home alone to document what my thoughts and feelings were on a day-to-day basis. I’ve made a compilation video of some of these images and clips of the videos to share with all of you who have so kindly followed my story all year.
Thanks to each and everyone of you for your support, kind words of encouragement and love throughout 2014. It has made all the difference in the world.
I started writing this blog post last week and never finished. I went back and read it this morning and realized in one short week how things have already changed. Here’s what I wrote…
“The past four months have probably been the worst four months of my life. Not the most uplifting way to start a blog post but it’s the truth. During these months, I’ve struggled to stay positive and truly feel happy. Partially because of the unexpectedness of the pancreatitis. It seems so unfair that I would get that on top of leukemia. Because other than that my chemo caused the pancreatitis, it has nothing to do with the cancer. It’s only delayed my treatment, caused me a lot of pain and laid me up in the hospital three too many times. …. even when I’m doing “fun” things, my mind races to that things aren’t normal. That I can’t have a drink. That I can’t have a french fry. That I have to be home early to hook up to a feeding tube. That I’ve simply been hooking up to a feeding tube for over two months now. That I’m not at work. The list goes on and on.
I’m hoping that the end of this funk is coming near as sometime in January I’ll be FINALLY going back to work and I think that will help immensely. But I wanted to write this blog post so I remember how I felt at this moment. These days are long and tiring. Each day I feel different, whether it be emotional or physical. I have a hard time sleeping and my mind always seems to run back to “i have cancer.” I spend half the day sleeping and another portion watching TV. I can’t take that anymore. I want to do, I want to be productive. But sometimes it’s too hard, I’m too tired. Today I was tired. I got out of my pajamas at 4 o’clock to run to the grocery store to get things for Thanksgiving. I love being in pajamas but when that’s all you have everyday, getting dressed up becomes a privilege. Overall, things have just been really tough.”
Well it’s funny what a few days, family, friends and good food can do. I had the best four days I’ve had in a really long time. Thanksgiving was wonderful as I got to see my whole family and grandparents and snuggle with my love bug of a niece. Then Friday I got to see a bunch of my best friends from high school at a fabulous Friendsgiving party! Saturday, Mike and I got our Christmas tree and started decorating for Christmas (my ballerina reindeer are up which makes this girl VERY happy). Then we headed out to a housewarming/birthday party at one of our good friends house which was a blast. Sunday we just stayed around the house and decorated for Christmas, made some turkey chili and watched the Pats. It was a busy but perfect few days and it was just what I needed to help get me out of that funk. I felt so happy to see my friends and family and get to spend four days with Mike. Times like this weekend I’m reminded why I’m so blessed. It helped change my mindset and brought me a sense of happiness that I haven’t felt these past four months. There are still hard days ahead (most likely a lot of them) and I will have to keep working on feeling normal and feeling happy but I’m thankful for last weekend as it brought both those things back into my life.