Fall Fiesta

When it’s cold outside, and we’ve been cooped up inside for days, remind me of days like this…

When I woke up and headed to a corn maze with three of my favorite people in the world.  And sipped on delicious hot apple cider.  

And then picked pumpkins that we’ll carve into jack-o-lanterns and continued to use my selfie stick to capture the moments (best purchase ever, no shame here). 

    
 And then came home and thought, what better day to go for a run!? So I strapped on my yoga pants and sneakers and headed down to the good old Mystic River in Somerville. I decided to take a new route and found a great, long path right along the water. I feel so happy when I’m near the water, doesn’t matter what kind, even if I have the highway to my left, as long as I have the river to my right, I feel a little more at peace than typical. And then as I continued to run I came along a three story lookout tower that I marched right up, did some sun salutations, looked out onto the Boston skyline that I love so much, felt the sunshine on my face and felt so grateful for the moment that was upon me. Healthy enough to be running again, strong enough to climb flights of stairs and in a good enough place mentally to be able to feel the sunshine on my face, totally alone and realize how lucky I truly am. And okay enough with myself to laugh at how crazy my hair has become. 

   
   
Then I picked up some fall essentials to decorate our front steps, because honestly a decorated house is a happy house. And a happy house is a happy me. 

   
 
Now I’m sitting in my Brady jersey & sweat pants, with pulled pork on the oven (thanks to the best boyfriend in America), and a good old O’Doules in hand with my snuggley guy. 

  
Fall is a special time of the year in New England. 

Life is good today. 

Remind me of this day in January. 

Lots of love & light,

Jessy 

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Hard Times, Good Times

I started writing this blog post last week and never finished. I went back and read it this morning and realized in one short week how things have already changed. Here’s what I wrote…

“The past four months have probably been the worst four months of my life. Not the most uplifting way to start a blog post but it’s the truth. During these months, I’ve struggled to stay positive and truly feel happy. Partially because of the unexpectedness of the pancreatitis. It seems so unfair that I would get that on top of leukemia. Because other than that my chemo caused the pancreatitis, it has nothing to do with the cancer. It’s only delayed my treatment, caused me a lot of pain and laid me up in the hospital three too many times. …. even when I’m doing “fun” things, my mind races to that things aren’t normal. That I can’t have a drink. That I can’t have a french fry. That I have to be home early to hook up to a feeding tube. That I’ve simply been hooking up to a feeding tube for over two months now. That I’m not at work. The list goes on and on. 
 
I’m hoping that the end of this funk is coming near as sometime in January I’ll be FINALLY going back to work and I think that will help immensely. But I wanted to write this blog post so I remember how I felt at this moment. These days are long and tiring. Each day I feel different, whether it be emotional or physical. I have a hard time sleeping and my mind always seems to run back to “i have cancer.” I spend half the day sleeping and another portion watching TV. I can’t take that anymore. I want to do, I want to be productive. But sometimes it’s too hard, I’m too tired. Today I was tired. I got out of my pajamas at 4 o’clock to run to the grocery store to get things for Thanksgiving. I love being in pajamas but when that’s all you have everyday, getting dressed up becomes a privilege. Overall, things have just been really tough.”

Well it’s funny what a few days, family, friends and good food can do. I had the best four days I’ve had in a really long time. Thanksgiving was wonderful as I got to see my whole family and grandparents and snuggle with my love bug of a niece. Then Friday I got to see a bunch of my best friends from high school at a fabulous Friendsgiving party! Saturday, Mike and I got our Christmas tree and started decorating for Christmas (my ballerina reindeer are up which makes this girl VERY happy). Then we headed out to a housewarming/birthday party at one of our good friends house which was a blast. Sunday we just stayed around the house and decorated for Christmas, made some turkey chili and watched the Pats. It was a busy but perfect few days and it was just what I needed to help get me out of that funk. I felt so happy to see my friends and family and get to spend four days with Mike. Times like this weekend I’m reminded why I’m so blessed. It helped change my mindset and brought me a sense of happiness that I haven’t felt these past four months. There are still hard days ahead (most likely a lot of them) and I will have to keep working on feeling normal and feeling happy but I’m thankful for last weekend as it brought both those things back into my life.
XOXO,
Jessy
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A Different St. Paddys Day Weekend

St. Patricks Day weekend is one of the many many reasons why I love living in the beautiful city of Boston. This weekend here is like no other– so full of excitement, energy and plain fun!Honestly, I was very disappointed about having to miss all the shenanigans that go along with this wild weekend but it is what it is. Luckily for this little Irish girl, I was able to have a nice day with lots of visitors! After three weeks of not being able to snuggle my favorite princess, my doctors said that I could have Eleni come in to see me. It’s amazing what a child can do for a soul…it literally made my heart feel better to give her hugs and kisses. Then some fabulous girlfriends came to chat, shower me with St. Paddys Day bling and give me some much needed girl time gossip! My parents and brother came later in the afternoon and unfortunately I wasn’t feeling well by the end of the day, but it was nice to have them here to be there with me during a not-so-great time.

Busy day for this lady but an even bigger day tomorrow. If my neutrophil count goes up to 500 (basically a number they give to my immune system), I could be going home. I’m trying not to get my hopes up but that’s basically impossible. I want to breathe fresh air, see the sun, lay in my bed, eat a home cooked meal. I want that so bad. So tonight, I’m saying an extra Irish blessing in my prayers and hoping I get my wish to go home tomorrow.

Hope everyone had a special weekend. Enjoy the week ahead!

XOXO,
Jessy

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