Foggy Days

Foggy. You can’t see clearly. You can’t think clearly. You can’t feel clearly. Just like with fog on an ocean dock, fog inhibits you from seeing what lies ahead of you.  And that’s how I feel. My whole being feels foggy. Unable to see the brightness of days that inevitably lie ahead. Bogged down by sadness and frustration; physical pain and exhaustion.

Last week was hard. Really hard. This week is better but still hard. It all seems like SO much. So overwhelming. So many medications, chemotherapy and brain radiation sure has a way of making you feel out of it, making you feel not you. And that’s exactly how I’ve felt, not myself. In a way, I feel disconnected to my own life. Like I am in somebody else’s crappy body. Somebody else’s negative mind. I’m a happy person. To my core, I’m happy. I love life. I love smiling. I love laughing. I genuinely enjoy being positive. I get excited over little things. And I love that. So when I feel unhappy, when I feel like it’s an effort to smile or to laugh or to get excited, it doesn’t feel like me. And that hurts. That’s a pain that no spinal tap can replicate.

As Mike and I were watching Father of the Bride 2 and Nina was just about to have the baby, she looked up at George Banks and said “Isn’t this just so amazing?” I instantly got emotional. Not because I was so moved by the film but because I felt so jealous of Nina. (she’s a character, I know.) But I felt so jealous that she was lying in a hospital bed, just like I had been all week, and that she got an incredible baby at the end of it. I want a baby, I thought. Because a baby is a miracle, a blessing. A baby truly is amazing. Now, don’t go all “omg she wants a baby?!?!?!” on me because clearly I don’t want a baby right this second but watching this character receive so much joy brought me a sense of sadness because that “amazing” feeling seems so far away. Sounds so dumpy, I know, but it’s how I felt.

But then I sit here, writing that paragraph out and I know in my heart it’s not true. It’s exactly how I felt. 100% truth. Whole-heartedly how I looked at that moment. But as I reread what I write, I know that although it’s sometimes so hard to remember that there’s an end to this race, that there’s a light to the end of this tunnel, I have faith that there will be brighter, happier, fog-free days ahead. In fact, those special, amazing moments, although they may not be as obvious or glamorous as some of life’s big moments, they’re still here. Despite it all, amazing things are still happening to me.

Like when a complete stranger came up to me at the Michael Buble concert on Friday and told me to be strong and that my hair would grow back more beautiful than ever. That she had “been there, done that” and that everything was going to be okay. That’s amazing. She doesn’t know me, she doesn’t know my story or my diagnosis but somehow this woman knew that I needed that little push last week. I needed to be reminded that this too shall pass. I needed a little miracle. And in that moment, my mind felt anything but foggy. It felt clear and precise and happy because I was meant to be there, finding comfort from a complete stranger. That was meant to happen to me. Now that, that’s amazing.

XOXO,

Jessy

p.s. Speaking of amazing, here are some pics from our family vacation on the Cape last week!

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Crazy for the Carter Family

I haven’t written in for what feels like forever. Mostly because I really have had no updates…nothing that I felt was worthy enough to write about. Each day has been generally the same. I’m home, I’m tired, I’m sometimes nauseous and I’m still dealing with a headache that has been here for literally over a month. On a “good” day, I have a visitor or have the energy to make dinner, maybe do some laundry, go for a walk or yoga. Nothing exactly over-the-top exciting. Well, except for my new-found talent of knitting– teaching myself this craft has actually been super exciting! So it sounds negative but I’ve felt like, what do I really have to say? And honestly today didn’t start much different than the rest but today took a turn for the fabulous and I now have something to say…something really really exciting to announce and it has absolutely nothing to do with cancer. TODAY MIKE AND I SCORED TICKETS TO THE “ON THE RUN” JAYZ AND BEYONCE SUMMER TOUR!!!!!!!!! WOOOOOOOOO WOOOOOOOOO!

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It sounds so silly but this is the most excited I have been over something in a few months. I love Beyonce. I love JayZ. I love Blue Ivy. Plain and simple, I love the Carters. They are the best and I’ve been chirping about how the two of them need to go on tour together for quite some time and FINALLY my dream has come a reality. And this is just what I needed– I needed something to put on my calendar besides my next hospital stay. It’s something fun, it’s something exciting and something I really am going to get to look forward to!

So a big thank you to my wonderful boyfriend for coming through and getting me the best form of medicine I could ever ask for! I might not be Drunk in Love lately but I’m certainly still Crazy in Love (see how I did that!? hehe)  

All hail the Queen Bey,

Jessy   

p.s. I need to learn this move before June 30th. 

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Motivational Monday: 8/26/13

Today is a special day. It’s the morning after the 2013 VMA awards, aka the night Nsync had a reunion and Justin Timberlake solidified himself as one of the best artists of our time. No big deal or anything, but I’ve basically been his number one fan since 1998, and there’s no better feeling than watching your favorite artist absolutely CRUSH everyone else and all other live performances… of all time. Not to mention, seeing Nsync reunite after 8 years instantly brought me back to being 11 years old and screaming at the top of my lungs at one of their many concerts I attended. Doesn’t get much better than that.

This video may not be a ‘motivational’ speech but if it doesn’t motivate you to be the best at your craft or be the best at whatever you do or whatever you want to be then I just don’t know what will.

Enjoy peeps. I’ll be watching this on repeat. ALL WEEK.

XOXO,
Jessy

p.s. this performance also proved (after a nauseating performance by Miley Cyrus) that putting on a phenominal show doesn’t mean being outrageous and over-the-top…it means that being unbelievabley talented is what entertains above all else. #GoJustin #GoHomeMiley