Giving Tuesday

When I was diagnosed with leukemia on February 20, 2014, I had a doctor that held my hand and looked me in the eyes and told me that she was going to fix me. From that very first moment, I was terrified but I had a sense of hope. That sense of hope has been the crux of my strength for the past 2 years. Hope that I will survive this…hope that I will get my life back…hope that I will live to have my own children. When someone is diagnosed with ALS, there’s no such hope. They are told they have most likely 2-5 years to live in which they will gradually lose their abilities to do almost everything except for think. They are told that they will no longer have the physical capability to breathe on their own, but they will have the mental capacity to know exactly what’s happening. They are then told that there’s currently only one treatment for this disease and that it will likely extend their life 2-3 months. 2-3 months, that’s it.

I want these people to be given the same hope that I was given. They deserve it. That is why I am so humbled and honored to be working for ALS TDI, an organization that is entirely focused on research to help #endALS. An organization that is working tirelessly to help give these incredible individuals the hope they so deserve.

Today is #GivingTuesday. It’s a day to remind ourselves of what this time of year is truly about– not deals on Black Friday or Cyber Monday, but giving to those we love and to those in need. I ask that today, even if just $5, you donate to ALS.NET and help us towards our goal of finding a cure for this terrible terrible disease.

https://www.als.net/donategivingtuesday

 

Lots of love, light & gratitude,

Jessy winston churchill

Motivational Monday

  
This quote makes me smile. It’s simple and kind of silly but SO true. At the heart of it, it means do what makes you happy. Lord knows I listened to it this weekend… I ate plenty of desserts and drank all the O’Doules my little heart desired. As we go into the new week, let’s try to remember to live in the moment because we never know what tomorrow will bring.

I hope you all had a fantastic Thanksgiving weekend!

Lots of love & light,

Jessy 

Thankful For So Much

When I was growing up, I wasn’t the biggest fan of Thanksgiving. I was a picky eater. I focused on the fact that I didn’t like the food. If you don’t really like vegetables and you’re not into turkey, good old T-giving can be a tough day. But as I’ve grown older, I’ve realized what an incredible day it really is. I’m happy to say that now that I consider myself quite the foodie, I absolutely love all the delicious food I get to stuff my face with BUT I love even more to have a day that’s specifically dedicated to giving thanks. It’s a day focused on being grateful for all you have and to be with those you love and reflect on all that you have together.

Since being diagnosed, I have found true strength when I count my blessings. When I consciously think about all the things that I do have in life, no matter how hard the day, my mindset is always helped. It helps ground me and helps put things into a necessary perspective. So today in honor of this amazing day that is completely dedicated to being thankful, I am going to list out everything I feel so lucky to have in my life.

I am thankful for…

  1. My Michael
  2. My family
  3. My Phoebe
  4. My friends
  5. My incredible doctors (especially Dr. Mandy & Dr. D)
  6. The most amazing and caring nurses (especially Andrea, Rachel, Margo, Deb, Kristen!)
  7. To be a patient at the most amazing cancer institute in the world— Dana Farer
  8. To have a job
  9. Having a roof over my head
  10. Having food to eat everyday
  11. Being an American
  12. Living in New England
  13. Being a Patriots Fan
  14. Being able to practice yoga
  15. Sharing a home I love with a person I love
  16. Music!!!
  17. My under desk bicycle
  18. Having a safe car
  19. Dancing
  20. Technology
  21. Fresh flowers
  22. Queen B
  23. T-Swift, in particular, “Shake It Off”
  24. One Direction
  25. Buddhism
  26. The ability to opening my mind to alternative ways of thinking
  27. Clothes & Shoes that I love
  28. A working pancreas
  29. Good food and being able to eat it!
  30. Buffalo chicken
  31. Strawberry strudels
  32. Being in remission
  33. Having hair again
  34. Soft, fuzzy pajamas
  35. Last but certainly not least, I am thankful for this blog and most importantly thankful for all the supportive and wonderful people that have followed my journey. I’m thankful that you’re part of my life and thankful for everything your support has provided me throughout a challenging portion of my life.

I hope you all have a beautiful day, and remember to truly give thanks to all that you have in your life. Even if you’re going through a tough time, try to think of at least one thing that you can feel true gratitude for — whether that is as important as another human being in your life or as simple as being able to have a glass of wine. Whatever it is you’re thankful for, be truly thankful, down to your core.

Happy Thanksgiving, loves!

thankful

Lots of love & light,

Jessy

One Day at a Time

I was walking to Starbucks this afternoon in this blistering cold weather that has fast come upon on us. Bundled up but enjoying a few minutes outside with the sun shining on my face. All of a sudden, I felt overwhelmingly nauseous. As I’ve learned quite well, it helps to just slow down my breathing and take a moment to calm down. Many times, that can subside the feeling and I can move on. Today however, while I was going through this somewhat common routine, I got a shot of annoyance run through my body. I’m sick of being sick, I thought. I’ve come so far from where I’ve been so when I really think about it, I am so blessed. But sometimes in the heat of the moment, I just want to feel fully healthy. My treatment dosage has been getting continuously upped the past few months as we work to get my counts to the lowest possible that I can handle. The point being is that the more chemo my body can handle, the more they want to give to increase my chances. TOTALLY get it. But TOTALLY sucks at the same time. Everytime I’m feeling relatively good, it means that my “counts” are normalizing which means we can increase the amount given which essentially knocks me down. Last week, they said they think we’re finally at a low enough level that they’re happy with. But I’ve definitely felt the difference. I’m more lethargic and achey than I have been in the recent months and the waves of nausea hit me whenever they please. And I’m just over feeling achey, or tired or nauseous or having a headache. I’m so anxious to feel “normal” again.

I don’t know what I wanted out of this blog post other than to get my frustrations out. It’s been 20+ months of treatment and not feeling well and I’d be lying to say I wasn’t more than ready to feel like a healthy individual again. Lucky for me, I know that day will come. Hopefully in 4 months and 1 day. (Yes, I have a countdown app. #SueMe)


As always, thanks for listening. Thanks for caring. Thanks for being there for me as I continue to walk down this road to regaining my strength and health. It means the world to have you all beside me.
Lots of love & light,

Jessy

Not Just Another Day

Back to Motivational Monday. I’m sorry I’ve been a bit off the track lately but I’m back on.

I loved this quote. With all the new beginnings in my life right now, it really spoke to me. But what I also realize is that you don’t need big changes in your life to embrace this mantra. Every day we wake up and take a deep beautiful breath, we have been given the opportunity to do something spectacular. We’ve been given another chance to make ourselves happy. We’ve been given another opportunity to make someone else happy. We’ve been given another opportunity to make the world a better place.

Every day is another opportunity to take control of your life and embrace a new beginning, even if all that’s new is a new week. Embrace it, make it great.

not another day

Lots of love & light,

Jessy

 

 

Pup-ternity

Yesterday, I packed up my HomeGoods Happy desk and walked out the TJX doors for the last time. When I got in the car, Roar by Katy Perry was playing on the radio and the moment almost didn’t feel real. I haven’t had the most ideal time since returning in January but I am still thankful for the years that I spent there as I learned a lot about marketing and even more about myself. Most importantly, I met some wonderful individuals. Some that I know our bonds will last far beyond the TJX walls. 

I had just gotten “associate of the quarter” so lucky for my co-workers, my mug will be up in the cafe for a little bit longer in case they miss me. 👍🏼Mandy girl, give it a tap on water loops. 🖐🏼#missmyworkwifealready

  
SO, what’s next for me?! I’m really excited to say that I will be starting on Friday with the ALS TDI, a nonprofit in Cambridge that focuses solely on finding a cure for ALS. I will be continuing in the marketing field and (hopefully) bringing my digital expertise and ideas to the organization. I am so excited about this opportunity as my hope is that I can feel more passionate about my work and know that I am contributing to something that really matters. Hopefully, the work I do will help make a difference in people’s lives. It’s a BIG change from what I’ve done in the past but change is always a good thing and I have a feeling this is a good thing. 

But before I begin with the new company, I get a three day pup-ternity. Yup, that’s right. Three blissful days as a stay-at-home-pup-mom. I’ve waited, literally, years for this little fur baby to come home so I can barely believe that she’s actually sitting on my lap as I write this post! Mike and I picked Miss Phoebe up Friday and it was one of the most exciting moments of my life. She already is bringing us so much joy and even more snuggles!

   
    
    
    
    
 
Is she not the cutest little thing in the world? 

On my to-do list today was clean the house, organize my clothes, do some errands, workout, do yoga, get some paperwork done and play with Phoebe. Here’s what I checked off the list: played with Phoebe. I am writing this, still in my pajamas, snuggled on the couch with my little angel and so the fact that I got “nothing” done today is okay. You don’t get too many days like this and so I’m smiling thinking about the mommy and fur baby bonding day we got to have. With the risk of sounding self-indulgent, I’d say I deserve it. 

   
 
Lastly, I want to say thank you to everybody who’s been so kind and supportive to me over the past (almost) 2 years. Being able to move on from TJX and also become a pup mom is a big step for me and I couldn’t have done it without the support I’ve felt from the many many incredible people in my life. 

Lots of love, light & puppy kisses,

Jessy 

The Cutest Daily Affirmation

Sometimes Tuesday mornings are rougher than Monday’s so I decided to do a pump-you-up Tuesday video! This clip came out a while ago but I thought, if you haven’t seen it, it’s a must and if you have, it’s worth rewatching! It really is the tri-fecta: makes you laugh, makes you smile and makes you think… if we could all be more like little Jessica.

I LOVE EVERYTHING!!!!!!!!!!

Lots of love & light,

Jessy

It’s the Little Things

http://youtu.be/mJ6Me4zVkwU​

I think we’re all guilty of taking little things in life for granted. And having our senses is one of them. The gift of sound is so magical and so important in this life. It gives you a means to communicate, to be connected with what’s around you but may not be able to see. It gives you music which (in my mind) can give you so much- songs can help put you in a better mood, get a good cry out, dance around and be silly, or give you strength when you’re feeling down. 

I’ve watched multiple people in my family deal with hearing losses and it’s so unfair and difficult. I hope that as technology continues to pave the way for the future that this type of device can be made available for all individuals who struggle with hearing abnormalities. 

I hope this video puts a smile on your face and reminds you to be grateful for the little things. Be grateful for all you’ve been given. 

Happy Saturday everyone and an even bigger happy 21st birthday to my baby brother JJ. It kills me that I can’t throw em back with you tonight but I know that day will come! So tonight I’ll be the big sister supervisor instead. I’m so proud of the little man you’ve become– now go out and have some fun, LEGALLY! I love you! 

Lots of love & light, 

Jessy 

The Truth About Monday’s

This is how I actually feel about today being Monday. 

#Done

 
Here’s how I want to feel on a Monday…

   
 
I don’t know if I’ll ever be that excited about a weekend ending and a new work week beginning but a girl can dream, can’t she?! 

We all have something to learn from Tom Terrific. Not only is it great to always be fashionable but it’s equally great to always be passionate. It’s great to always be driven, and to work really, really hard. It’s great to have a dream and keep on chugging until you reach that goal. And of course, it’s great to be the GREATEST OF ALL-TIME. So whatever it is you do, be the #GOAT.

  

Here’s to hoping we all have a week full of passion and excitement. Go get ‘Em Tigers!!!

Lots of love & light,

Jessy