When I was diagnosed with leukemia on February 20, 2014, I had a doctor that held my hand and looked me in the eyes and told me that she was going to fix me. From that very first moment, I was terrified but I had a sense of hope. That sense of hope has been the crux of my strength for the past 2 years. Hope that I will survive this…hope that I will get my life back…hope that I will live to have my own children. When someone is diagnosed with ALS, there’s no such hope. They are told they have most likely 2-5 years to live in which they will gradually lose their abilities to do almost everything except for think. They are told that they will no longer have the physical capability to breathe on their own, but they will have the mental capacity to know exactly what’s happening. They are then told that there’s currently only one treatment for this disease and that it will likely extend their life 2-3 months. 2-3 months, that’s it.
I want these people to be given the same hope that I was given. They deserve it. That is why I am so humbled and honored to be working for ALS TDI, an organization that is entirely focused on research to help #endALS. An organization that is working tirelessly to help give these incredible individuals the hope they so deserve.
Today is #GivingTuesday. It’s a day to remind ourselves of what this time of year is truly about– not deals on Black Friday or Cyber Monday, but giving to those we love and to those in need. I ask that today, even if just $5, you donate to ALS.NET and help us towards our goal of finding a cure for this terrible terrible disease.
Lots of love, light & gratitude,