Tag Archives: family

You’ve Got Mail

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Last night, Mike and I got home from a VERY early dinner and found ourselves watching “You’ve Got Mail” with Tom Hanks and Meg Ryan. It’s such a good, truly romantic movie, and one that I had never seen until last year. I realized while watching it last night, as the snow came tumbling down outside, that it was a year ago that Mike was in New Orleans for a bachelor party and I was home by myself watching this movie having a glass of white wine. A year ago, I had no idea what was about to come my way. As I sat there on the couch, I remember feeling fully stressed at what was “happening” to me. I knew something was wrong, I was in agony about every other day with shooting pains down my back and legs making me unable to not only walk but do anything but roll around in bed and yell in pain. I was having nose bleeds regularly and blood blisters on my lips. I had bruises all over my body that had no reason for being there. And I had headaches so bad, I started keeping a neck pillow in my car so I could have some sort of relief as I drove to and from work. But as worried as I felt, I truly couldn’t have imagined the news I was about to hear and the year I was about to have.

In “You’ve Got Mail,” Meg Ryan’s book store is forced to close down due to a large, conglomerate book store opening up just down the street. She’s tormented with the fact that the life she had envisioned for herself and grown accustomed to, is so abruptly taken away from her. As I watched last night, I empathized with her character so much more deeply than I had just one year ago, as our stories are not the same but I so understood how she felt getting her “life” ripped away from her. But by the end of the movie, she’s making the best out of a bad situation and turns out to be writing her own book and allows herself to truly follow her butterflies and finds herself in the arms of Tom Hanks. She lets life take the reigns and it leads her to happiness. That’s what I’m still trying to do, trying to let life take the reigns, follow the things that give me butterflies in life. Because one thing I’ve learned in this past year is that life’s too short, too precious and too unpredictable; you’ve really got to enjoy each day for what it is. Whether it’s a good day or bad day, just appreciate the day. Appreciate it because you’re lucky to be here and lucky to have what you do.
XOXO,
Jessy

A Slap of Reality

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It’s been almost a month since I’ve been back at work. I’m coming in early, leaving late, chugging through long days. Overall, just really feeling the stresses of being a working girl again. And I have to admit, I love it. I don’t like waking up early (obviouslyyyy) but I like waking up with a day full of productivity and socialization in front of me. That was something in the past year I struggled with so much. I often laid in bed for long periods of time after waking up because I simply couldn’t reason with myself of why I needed to get up. So it feels incredible to be making my to-go coffee and heading out the door in the morning. Beyond work, I’ve been back to practicing yoga and going to the gym. Exercising feels awesome because I know it’s something good I’m doing for my body. With so many harsh toxins going into me every week, it feels only fair that I would give this body of mine something to feel good about. Another piece of really exciting news is I got a new car— WOOO HOOO!!!! I’ve only ever owned sh*t boxes (proud owners of them though since I saved my own money in both high school and college to be able to purchase them), but after rear ending some lovely lady that also works at TJX (another story, another time), I said goodbye to Carmen Elantra and got my dream car…a 2012 Hyundai Sante Fe- beep beep! New car, back to work, back to exercising, and back to eating and drinking! My pancreas has really done a 180 and I’ve been off pain meds for over a month and am eating practically a normal diet again! Mike and I even had nachos the other weekend and after over 6 months of not having them, we were in HEAVEN! I’ve also been able to have some drinks lately, which if you’ve read my blog in the past year or know me even slightly, you know that that’s a big deal. It makes me sound like a lush but so be it… I like to have drinks. I like drinking beers and watching the Pats. I like having a glass of red after a long day of work. I like having margaritas with my tacos or going to hotel bars with Michael and getting house snack mix and martinis. I like being Champagnes Moran. And Champagnes Moran I was two weekends ago. Mike and I had an awesome night just the two of us going out to dinner then heading over to a new bar for after dinner drinks…it just felt normal. And that feeling of normal gave me such a sense of pure happiness, from the top of my head to the tips of my toes, I felt amazing. I felt like “Jessy” was finally back in action!

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!!!!!!!!!!!!!!!HAAAAAAAULLTTTTTTTT!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
That’s what it felt like. That’s what getting pancreatitis and being hospitalized for it for the fourth time a week ago felt like. A W-T-F moment. A “no! no! no!” moment. A “this can’t be happening” moment. It felt like a punch in the gut…literally. My life had just gotten back to my new normal. I was feeling like me again. Life was being good to me. And then I go in to have my stent removed on Friday and the stent gave the doctors trouble coming out. So much so that it broke in half while they were in there. So with that much struggle going on, my pancreas got “upset” and pancreatitis hit me again. I spent 28 hours in the emergency department before being transferred to a hospital room and another day asking when I could get transferred to 7D. We watched the Pats game on a 13 inch TV with no apps and no beers. (but with the company of some of my favorite people, Mike, my mom and Dr. Mandy!).
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I sat in a hospital bed trying to get as much work done as possible as I couldn’t bear thinking I was taking more time off after just coming back from being out for 11 months. I’m back on pain medicine and wearing my stupid heating pad day and night. I got released Tuesday night and was back to work by Thursday. It was such a hard week and I’m so glad it’s Saturday. Having a taste of my normal life again and having it taken away again is a lot to handle. I started crying really hard when I got home from work yesterday while I was talking to my mom… I just couldn’t hold it in anymore. It feels SO unfair this time. Everytime has felt unfair but this time just seems like too much. Having what I’ve wanted back this entire year— normalcy— and then having it taken away one more time is more painful than I can really put into words. Mike came home just as I was sitting there sobbing on the couch and for the millionth time this year, he gave me a hug, kissed my forehead and talked to me about it until I felt better. I had been trying to just “keep marching along” and pretend like this was something “I’ve done before, I can do it again” but it’s more than that this time. It’s frustration to a whole new level. But after crying and talking it out, I felt better. I’m already one week down. I’m already out of the hospital which is a lot better than the first three times. I’m back at work and have something to keep my mind off it. It’s likely that it won’t take as long to heal this time. And there’s no more stent in me which means no more endoscopies which hopefully means this truly is the last time I’ll deal with pancreatitis.
AND lastly, the Patriots are Super Bowl Champions. So really, life is still pretty good.
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Happy weekend everyone!
XOXO,
Jessy

Thought Explosion

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Today might have been a snow day in the office but there’s no such thing when it comes to staying on track of your chemo regimine. So this morning, we bundled up, put on our boots and brazed the snow-laden streets to get over to the Dana Farber. It was a relatively long day as I had to meet with an anesthesiologist for a day-surgery I’m having done on Friday, in addition to getting my normal dose of chemo.

Over the past month, I’ve began losing my hair… again. It’s obviously a lot less drastic than when I originally lost it, but it’s been slowly falling out and I’m starting to stress out. I just can’t imagine having to be bald again (even though #baldisbeautiful. S/O Michael!) Oddly enough, some days are better than others; there are days I barely lose any and others that it falls out each time I run my fingers through my short locks. Today was one of those days. Every morning, I look on pillow to see how much is gone and this morning, there was a bunch. It sucks… flat out. I have been so excited about having hair back. Do I miss my long hair? Absa-freaking-lutely. But I’ll take when I can get and have felt so good about not having to wear head wraps or hats or wigs every time I step out of the house. Plus, being back at work, I want to feel as normal as possible and head wraps are just not normal… reality of the situation. I’m hopeful that it’s just thinning and it won’t be too noticeable but I really don’t know what the future will hold. And that’s enough to overwhelm me each and every time I look in the mirror.
More importantly, in the past few months, I’ve had three close people in my life get diagnosed with cancer; a good friend who is a new mother to the most handsome little boy, my beautiful, hardworking cousin and my loving, funny and beautiful Nanny. This sounds crazy and I know that it’s not how life works, but I almost felt like when I was diagnosed, I must’ve “taken the bullet” for my group of friends and family. But as I learned quickly, that’s just not the case. As I chatted with my cousin this week who is starting to lose her hair, I was catapulted back into the harsh reality of the day I buzzed my head. It was so hard (as I mentioned above, it still is), it was so shocking to see myself in that light… to truly look in the mirror and see a sick person. It’s just so unfair. Why during all these hardships, do patients have to also lose something that defines them so greatly, too? It makes life harder in an already extremely difficult time. But what I’ve also realized while watching these amazing women battle through their own struggles, is where I obtained my own strength. I’ve got a a hell of a lot of tough people in my life, including these three and they inspire me everyday. They’re beautiful and strong and true warrior princesses. Cancer is everywhere, it truly affects everyone in some way or the other and I’ve learned that as cancer survivors (because that’s what we all will be), we need to stick together and find a cure for this terrible, terrible disease.
Cheers to living life to the fullest. Cheers to beating cancer. Cheers to a cure.
XOXO,
Jessy
p.s. throwing it back to my #baldisbeautiful days and to hoping that those days are only a thing of the past. #KissMySass
Photo on 8-11-14 at 1.28 PM #2

Friendship is the Best Medicine

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There’s not too much that takes my breath away but these little boys just did. They show that true friendship is a bond like no other and one that can help make even the worst of times better. My friends have helped me so much this past year, whether it was being a shoulder to cry on, an ear to listen to my worries, a visit while I was stuck in the hospital bed, making me laugh while I was down or even creating a video montage of about 10 of my closest friends dancing to a song that I love (yes, they really did that!). I wouldn’t been able to get through this experience without the love of my best friends. True friendship is such a rare and beautiful thing and these boys are an amazing reminder of just how powerful simply being a good friend can be.

Happy weekend everyone!

XOXO,
Jessy

Happy & Healthy

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Back to reality, huh? Just like many of you, I decided to take some time “off” (of writing) during the holidays. I had such an amazing two weeks. Saw so many family and friends, gave and received some great presents (like my new iPhone I’m writing from), went on a perfect getaway with Mike up north where we ended the trip ziplining through the trees of the white mountains and just got relaxed and rejuvenated for 2015.

Every year, people always wish me a happy and healthy new year. I say it too. But until this year, I don’t think I truly felt the importance of this wish. This saying is so often used but so rarely embraced by the one saying it. We simply say the phrase and wish it upon those around us but don’t make it a priority to ensure that we, ourselves, are “happy and healthy.” After a year full of doctors appointments, hospital stays, chemotherapy and radiation, I’ve learned what a true blessing it is to have good health. A blessing that should not be taken for granted. But while I’ve been burdened with many health issues this past year, I’ve also been reminded of the importance of “making the right choices.” These are the things in life that we have control over, like eating healthy, working out regularly, staying hydrated each day, and exploring alternative medicines like acupuncture and massage therapy. All the little decisions add up so make each day count. Take every opportunity to better your body and therefore better yourself. Things like drinking natural teas that have added benefits such as lowering cholesterol or providing your body with antioxidants. Getting that massage you’ve been thinking of— it’s not just pampering yourself, it’s helping to lower stress and better circulate your blood. Avoiding food and products that have chemicals and toxins. Exercising multiple times a week. This doesn’t have to mean wasting away on the elliptical (unless that’s your thing!), it can be so many different things like going for a long walk, doing yoga, taking a zumba class, lifting weights, or climbing the stairs in your house a few times. Whatever it is you can find time for in your day, do it! It makes a huge difference. Just recently, I was cleared to begin going to my gym again. I was amazed at how much strength and endurance I had lost since the last time I had worked out there but I also know that the body is a powerful tool and one that, with training and dedication, can do pretty amazing things. So although we do not have control over some of the big things life can hand us, like accidents, diseases, or in my case, cancer, we do have control over the little things that can add up to a lot. Being healthy is a combination of good choices, so try to make the right ones.

Now comes the second part of this wish. Happiness. Even more than the gift of health, I’ve learned the blessing that it is to feel true happiness. I’m lucky in the sense that I’ve always been a genuinely happy person; little things get me excited like winning $5 on a scratch ticket or having a 1D song come on the radio (yes, One Direction. I may be 25 but I will always get obsessive over boy bands.) So when there were days upon days that I honestly had to try hard to crack a smile, it felt off… it felt, not normal. Feeling happy doesn’t come naturally to everyone and it certainly comes and goes depending on the time and difficulty of your life at that moment. But what I have realized is that, above anything else, the power of your mind is a force that’s hard to be reckoned with— that staying positive and keeping an optimistic outlook will make all the difference, even at the worst of times. As I said, there were many days that it was extremely difficult to stay positive and felt nearly impossible to feel a sense of happiness. However, I was always able to close my eyes and remind myself that I am a strong woman, one that has been given many gifts in life and one that has an incredible support system. These things, no matter how terrible my day was, gave me a glimmer of happiness. Remind yourself of these things when you are feeling down— say out loud what you feel blessed to be or have in this life; it’ll make you feel better, even if just for a little bit. Happiness is something that is often taken for granted, I surely took it for granted before this past year. But what I’ve learned and hope to pass on to the people who read this, is to really enjoy the “ups” in life so you can show yourself compassion during the “downs.” Smile when a snowflake falls on your nose, sing out loud when your favorite song comes on, be grateful when you’re laughing with friends, close your eyes and really feel the sun beating on your face, and dance HARD whenever you damn well please.

C-r-e-a-t-e happy. C-h-o-o-s-e healthy.

XOXO,
Jessy

Photo on 1-5-15 at 6.15 PM #2

My Year in Review

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As 2014 was quite the unexpected year for me, throughout the year, I decided to take videos and pictures of myself while home alone to document what my thoughts and feelings were on a day-to-day basis. I’ve made a compilation video of some of these images and clips of the videos to share with all of you who have so kindly followed my story all year.

Thanks to each and everyone of you for your support, kind words of encouragement and love throughout 2014. It has made all the difference in the world.

XOXO,
Jessy

Hard Times, Good Times

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I started writing this blog post last week and never finished. I went back and read it this morning and realized in one short week how things have already changed. Here’s what I wrote…

“The past four months have probably been the worst four months of my life. Not the most uplifting way to start a blog post but it’s the truth. During these months, I’ve struggled to stay positive and truly feel happy. Partially because of the unexpectedness of the pancreatitis. It seems so unfair that I would get that on top of leukemia. Because other than that my chemo caused the pancreatitis, it has nothing to do with the cancer. It’s only delayed my treatment, caused me a lot of pain and laid me up in the hospital three too many times. …. even when I’m doing “fun” things, my mind races to that things aren’t normal. That I can’t have a drink. That I can’t have a french fry. That I have to be home early to hook up to a feeding tube. That I’ve simply been hooking up to a feeding tube for over two months now. That I’m not at work. The list goes on and on. 
 
I’m hoping that the end of this funk is coming near as sometime in January I’ll be FINALLY going back to work and I think that will help immensely. But I wanted to write this blog post so I remember how I felt at this moment. These days are long and tiring. Each day I feel different, whether it be emotional or physical. I have a hard time sleeping and my mind always seems to run back to “i have cancer.” I spend half the day sleeping and another portion watching TV. I can’t take that anymore. I want to do, I want to be productive. But sometimes it’s too hard, I’m too tired. Today I was tired. I got out of my pajamas at 4 o’clock to run to the grocery store to get things for Thanksgiving. I love being in pajamas but when that’s all you have everyday, getting dressed up becomes a privilege. Overall, things have just been really tough.”

Well it’s funny what a few days, family, friends and good food can do. I had the best four days I’ve had in a really long time. Thanksgiving was wonderful as I got to see my whole family and grandparents and snuggle with my love bug of a niece. Then Friday I got to see a bunch of my best friends from high school at a fabulous Friendsgiving party! Saturday, Mike and I got our Christmas tree and started decorating for Christmas (my ballerina reindeer are up which makes this girl VERY happy). Then we headed out to a housewarming/birthday party at one of our good friends house which was a blast. Sunday we just stayed around the house and decorated for Christmas, made some turkey chili and watched the Pats. It was a busy but perfect few days and it was just what I needed to help get me out of that funk. I felt so happy to see my friends and family and get to spend four days with Mike. Times like this weekend I’m reminded why I’m so blessed. It helped change my mindset and brought me a sense of happiness that I haven’t felt these past four months. There are still hard days ahead (most likely a lot of them) and I will have to keep working on feeling normal and feeling happy but I’m thankful for last weekend as it brought both those things back into my life.
XOXO,
Jessy
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Thankful on Thanksgiving

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This year for Thanksgiving I have a lot to be thankful for. Sometimes lately that’s hard to remember but it’s definitely true. So today I want to write about what I’m thankful for.

First and foremost I’m thankful for my amazing family. Without them, I don’t know where I’d be or how I would’ve survived the past nine months. Their support and love have given me strength when I’ve been frustrated, tired and sad. Family also includes Mike because if he’s not family then I don’t know what is. Without him, I couldn’t do this. I’m thankful everytime he walks through the door from work. I’m thankful every time he hugs me when I’m down or kisses my forehead when I’m crying. I’m thankful every time he makes me laughs and writes me love notes. I’m so very very thankful that he came into my life.
I’m thankful for my friends, near and far, I realize how lucky I am to have so many wonderful people in my life. Friends that go above and beyond to make me feel loved. Friends that help keep it light and make having fun easy.
I’m thankful for my amazing team of doctors and nurses. I have been blessed with the most incredible men and women to treat and take care of me. Doctors that are brilliant and caring and nurses that are warm and compassionate but also funny and real.
Lastly, I’m thankful for my health. It might seem counterintuitive since I clearly am not the healthiest person in the world right now but I’m still here and I’m on my way to being cured. Because of that fact, I still smile everyday and I still feel so blessed for all that I do have in my life.
Happy Thanksgiving to everyone.
XOXO,
Jessy

When Life Hands You Apples, Make Applesauce

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Just before my first pancreatisis attack, I met with a few girls from work for coffee. It was so great to see them and feel a part of the team again. They had asked to get together so they could give me something a whole group of people had put together for me. As many of you know (and working with me every day, you can imagine how much they heard about it!), Mike and I had a trip planned to the Dominican in March. Unfortunately, I was diagnosed just a week and a half before and we weren’t able to go. Really, really disappointing. So my coworkers, being the amazing and thoughtful people that they are, all chipped in to be able to send Mike and I on a little get-away weekend to Peaks Island, Maine to make up for it! Peaks Island is right off of Portland and Mike and I had discovered it last summer. It’s about 3 miles wide and the cutest, most quaint little island I’ve ever been to. We had had such a relaxing and special day there; biking around the island, laying on the beach, watching people ride horses along the water, drinking summer beers on an ocean deck restaurant as we let one more ferry come and go, not wanting to head home. It was a day that for some reason really meant something to me and I have often thought of it when I’m feeling down. It’s become kind of like a happy place for me when I need to think of something good. (I digress!) So when so many of my co-workers (some that don’t even work at TJX anymore!) came together to surprise me with this, I was floored. It was so over-the-top generous and thoughtful, I truly was touched. So Mike and I picked a weekend, made the reservations and started making plans for our little fall getaway to Peaks Island, Maine.

It was scheduled for this weekend. We were in Somerville this weekend. Boo. We felt like we had to cancel because I’m still recovering from pancreatitis, I’m still on the feeding tube at night and it probably would have been too much to be gone for the whole weekend. I was so disappointed as I was really looking forward to a relaxing weekend, out of the house, out of the city, just with Mike, in a place that really meant something to me. It felt unfair that something else got “taken away” from me. But as Mike reminded me, we have next summer and maybe at that point I’ll be feeling 10x better (hopefully will even be able to have a beer on that deck) so I’ll be able to enjoy it even more than I would have this weekend!
So we turned apples into applesauce (I actually did that today! But I meant the expression! ) and had ourselves a pretty fun filled weekend for a “couple with cancer.” Friday we stayed in but cooked turkey burgers together (yes, I was able to eat a turkey burger— wahoo!). Then Saturday we went to the largest corn maze in the world with two of our best friends and 2 1/2 hours later completed that. Came home and went out to a fabulous Italian restaurant near our house that we haven’t been to in a while and had a great meal together (I’m able to eat pasta now too — even bigger wahoo!). Sunday we walked around the Boston Public Gardens and window-shopped on Newbury St. just for fun. Came home to watch football, nap on the couch with the fireplace going and make another pancreatitis-approved meal— turkey tacos! And then we had one more day- Monday! Mike had taken it off originally for Peaks Island so he kept it so we could have a three-day weekend. We kept the fall-fun going and trucked it up to North Andover to a great little farm that we could  pick our own pumpkins. And that we did. Picked them and then came home and carved them— pretty decently if I do say so myself. 🙂 Overall, it ended up being a fabulous weekend. I hadn’t expected it to be because I was angry about not being able to go away but as life has taught me this year, sometimes you just have to roll with the punches and make the best of what you’ve been given. And this weekend, I was given a great few days.
Hope you all had a lovely fall weekend as well!
XOXO,
Jessy
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Glorious Life

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I did something stupid today. I clicked and clicked and clicked through old pictures on Facebook. One by one I went further and further back in time. It was like sinking into a hole. A hole of memories of fun times, times with my family and friends and even coworkers that I want back so bad. Looking back at these pictures make me smile because I’ve had such an amazing life but they bring me down as well because I miss that life so much. Mike and I used to always say we have such a “glorious life.” After fun weekends and things we’d do together, we’d always look at each other and say “ughh glorious life, glorious life!” Today when I was scrolling through the pictures, I realized we haven’t said that in a long time. And that, that made me sad.

I haven’t written a post in a week and that’s because I’ve honestly been busy! My amazing mother has taken time off of work to be with me during the days. She did it for two reasons, one being that I’m connected to a feeding tube for 14 hours at night and I need help getting disconnected in the morning. Second and honestly more important is to just be with me during the day so that I don’t have to be by myself all day, everyday. I was trying to make it work but spending all day by yourself is draining and depressing so having her here has made a huge difference. We’ve gone apple picking, painted our nails, visited with my niece, done some shopping, baked breads, gone for long walks and this morning we even went to a fashion show at Saks Fifth Avenue (boy were we rubbing elbows with the other half!). I’m so lucky that she’s able to do this for me.
Keeping busy when I can and having my mom with me has made my days so much better. They go by faster and I’m happier getting to interact with people and getting to spend so much quality time with my mom. But our “glorious life” still feels like it’s on pause right now which is hard. There’s an empty, bland sort of feeling you get inside when you don’t feel like you’re living your life to the fullest of potential. In reality, I know that I’m not “not living life to the fullest of potential” (because God knows i’m trying) but sometimes it feels like that when I’m stuck at home or sitting in the waiting room of the hospital (which is 75% of the visits). There’s just so much time waiting, sitting, resting, that my mind begins to wander off to what my life was or used to be. But as my mom reminded me today, I’ll get it back. It’ll never be the same but maybe it’ll be better. I’m going to keep on fighting, with the help of my family and friends, until saying “glorious life” is back into my repertoire of weekly phrases.
XOXO,
Jessy
here’s my crazy but incredible mother. aka Mom-cologist!
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