A Lot Of Worry but a Little Light

This week has been hard. Harder than expected. What I would’ve expected is pure excitement, pure elation that the road is coming to an end. But instead, I’m feeling overwhelmed with a mix of emotions, most of them being sad and scared if  I am being totally truthful. 

Tonight is no different. Tonight I feel scared and I feel anxious. Tomorrow I will wake up and go to the Dana for my last scheduled bone marrow biopsy. I always become really nervous before these procedures since I find them really painful but more than that, I’m nervous of the results. I won’t find them out until next week, but tomorrow will be my last “check” for leukemia. The “what if’s” are worrying me. Well, it’s not exactly plural- it’s singular- it’s “what if there are still leukemia cells in my bones, in my blood?” I literally don’t know what I would do and I can’t bare to imagine it, but I keep imagining it. 

The flip side is that if the results come back negative and there is no such leukemia in my body…….. Well, there are no words for that. 

As I walked into my driveway tonight, I smiled to myself as a small flower has finally begun to pop through the dirt and show its colors. I photographed this same flower two years ago when I had returned home from the hospital as it reminded me of new beginnings. Today, it once again reminded me of new beginnings and a renewal of hope that I so desperately needed. There she goes, Mother Nature making her presence known and love felt. Always remember to look for the little signs. 

  
If I could request it one last time, I’ll take all the good vibes, prayers and positive energy tonight that you can spare. 

All my love & light,

Jessy 

A Moment In Time Reminds

I’ve been looking through a lot of old pictures and videos today. I have tons of these videos, me by myself, talking about the day. This one struck me because I watch this and know how hard it was. I am so excited to #nuketheleuk but I think processing what a difficult journey this has been for me, helps me heal.

I’ve come a long way since this day, buzzed head sitting alone, looking out the window but these raw moments were the reality of my days. Not each one cheery or inspiring. 

On a brighter note, i got my second to last treatment today. Friday is the bone marrow biopsy and one week from tonight I will be a cancer treatment graduate. 

All my love & light, 

Jessy

See Ya Later Roid Rage

 Today this is my life…

I’m working from home because of the snow. I’m bundled in head-to-toe fleece and felt like I needed to take the opportunity to document the LAST TIME I HAVE TO TAKE STERIODS.

I have been on all levels of steroids since the second day after I got to the hospital in 2014- before we even knew what type of leukemia I had and could begin my treatment regimine. They’ve had me on all sorts of highs & lows. Eating like a football player, being hyper focused on cleaning and organizing, bloating of my face and body, making my body so sore to the touch, they’ve made me manic and then when I come off them I’ve gotten so low and bordered on depression. They’ve kept me up too many times to count, like way way way too many times to count. And they’ve kept Mike up almost every day that I’m on them because I literally cannot stop talking the second we turn off the lights. 

I have hated what these damn pills do to my body but even more so what they do to my mind so today I am ELATED to say that I should never have to take Dexamethasone ever again in my life.

HALLE- EFFING- LUJAH 

Back to work. 

Lots of love & light,

Jessy 

A Card to Make Me Smile

Last week when I got home from work, I had a letter in the mail from a sender I didn’t know. I opened it and this is what appeared ….

   
“Don’t let anyone dull your sparkle.”

  
A very simple note, from a complete stranger that made me feel so warm inside and gave me energy I didn’t knew I had that day. 

I got my own SmileCard. And you know what?! It worked. I smiled so big and was so touched by someone’s small act of kindness. 

So first of all, thank you to whoever sent this— it’s exactly what I needed. 

Secondly, this inspires me to keep writing cards- they make a difference. If you want to make a difference in someone’s day, write a Smile Card- write a few, whatever comes to you, and send my way (2Webster  St. Somerville, MA 02145). I’ll take them to the hospital- there are ALWAYS patients that need them.

As we start this new week, let’s take from the important of this saying– don’t let anyone or anything dull your sparkle- you have a lot of sparkle so let it shine! 

Lots of love & light,

Jessy 

Steroids Have Me Like WOAH

It seems only fitting that my last round of steroids, after literally too many rounds to count, would hit me SO hard. I literally had six emails from myself this morning when I got to work, all which I had sent from about 1130-1am last night as I could not get my mind to shut off. And today, I just couldn’t stop. Couldn’t stop talking. Couldn’t stop thinking. Couldn’t stop step marching on my way home. Just couldn’t stop. I wish leukemia had a visual bunching bag so I could just destroy it right now. I am so amped up it’s incredible. These steroids are so powerful though it’s just crazy to think about — I go from such extremes highs to such lows when I come off of them. They mentally and physically affect me beyond what I can explain. They have pretty much been the bane of my existence for the past 2 years so I am SOOOOO EFFING EXCITED FOR IT TO BE DONE. LIKE AHHHHHHHHHHH!!!! Three days from now I’ll take my last dose of steriods, hopefully, EVER!!!! Anyways, to be able to remind myself of the CRAZY that comes with the high days– I recorderded this video that I thought I’d share. I look crazy but that’s how I feel right now. I hope it makes you laugh. #NEUKTHELUKE BETCHES!

 Happy Friday everyone– enjoy all the bliss of your weekends!

Lots of love & light,

Jessy

Slainte 

  
Two years ago today, I crossed off the final mark on my “days down” whiteboard. I had started it during my first stint at the hospital after being diagnosed as I wanted to remind myself of the number of days I had been “locked up.” Then with a little Irish luck on my side, my counts crossed over the mark we were waiting for and I was released from the Brigham on St. Patrick’s Day 2014. Mike drove me home with my parents behind us and we celebrated with a pizza and salad from Reginas Pizzeria- my absolute favorite. I remember walking in that door with Mike, having left my house the morning of Februrary 20th just a normal day at work and hadn’t been back since. I was home. I didn’t cry when I walked in, I simply smiled. I felt so much pure joy to be in my house again. As Mike had stayed with me every night in the hospital, he too had not laid on our bed for almost a month. So we did. We jumped in our bed and just laid there together, so thankful that we were home. So grateful that God had granted me a second chance and that I was able to lay there beside him. We cuddled, and took in the moment before my parents came in with pizza. It was a moment I will never, ever forget. 

Today, I have 12 days left to go until I cross off my final “day” as a leukemia patient in active treatment. Two weeks from today, I will no longer be an “active” patient. My treatment plan will be over and I’ll be a patient in remission that has to go to the Dana for check-ups every 6 weeks- that’s it. And that’s incredible. 

I can’t believe it. I’ve decided I’m never erasing the top part of this board- it means too much. It brings back a lot of memories and it reminds me that as long and hard as the race looks originally, with a little resilience and a lot of faith, you can get thru just about anything.

#neuktheluke final campaign has officially begun. 

Lots of love & light,

Jessy 

The First of the Lasts

Today was one I’ll never forget. 

Today I had my first cry of the “series.” Only 2 episodes left of this series of my life. The series finale comes two weeks from now. There will likely be a lot of excitement and hoopla. Mike will be with me and so will my parents. Two weeks from today, my veins will take their last push of chemotherapy and my body will be full of toxins one last time. But today is today and today was, in a way, was just as exciting. For a year now, I’ve lived in 3 week cycles. And so today was the first of the lasts. It was was week 1 and therefore I had my final meeting with my oncology team- Dr. D, Dr. Mandy and me. There have been so many people that have gotten me through this journey but at the heart of this machine, it’s been the three of us. So it was so special to me to get to be with them, review my labs together, laugh with them, reminisce a bit, and then, OF COURSE, make them take a selfie.   

While we were taking this picture, it hit me how exciting this moment was. How I’ve waited over two years to begin the goodbyes. I began jumping up and down and clapping my hands, I was overcome with the feeling of “ahhhhhhh!!!!!!!! This is real!!!” I hugged Dr. D and he walked out of the room. Then, I instantly stopped jumping and covered my face as I could feel the tears beginning to stream down my face. This journey has been so long, it’s been so hard, it’s been absolutely brutal at times but it’s also been so incredible because of these two individuals and I don’t want to say goodbye. I’m sad, really sad to say goodbye.

Lucky for me, I will see them again in two weeks when I cross the finish line but this time today was important. I needed just us to be a team, just the three of us, one last time.

So I dedicate this blog to the best team I’ve ever been a part of. 

Lots of love & light,

Jessy

A Hello Travels A Long Way

I’m walking to work on this still kind-of chilly Monday morning and I was feeling sad that the weekend was over. It was such a good one. But then just as I’m beginning my 2 mile trip, an older man sitting beside an open first-floor window wishes me a “good morning.” This has happened before and each time it does, it completely changes my mood and genuinely makes me so happy! I’m not sure how long he sits there wishing all the walker-bys a good day but for such a simple gesture, it does such good for my soul. 
In general, walking compared to driving, always makes me calmer and there are a lot of reasons why but one of them is the human interaction. So often in cars, we forget that there’s a human in that machine that’s cutting us off. Conversely, you don’t forget a humans a human when their physical body passes by. Typically, you tend to be more compassionate and understanding of whatever it is they may be doing. 
So on this Monday morning, I’m reminding myself and all of you, to be kind to people– kindness doesn’t have to be grand gestures or gifts- it can be a small smile or gentle hello. Make a difference in someone else’s day. The whole world would probably be a little better off and definitely a little happier if everyone remembered to act like the older man in the window this morning.
Have a wonderful week!

Lots of love & light,

Jessy 

The Hike

Last weekend I was lucky enough to spend two days doing one thing and one thing only– taking time for me. I spent my 27th birthday weekend at a yoga/health & wellness facility in Lenox, MA where I did a lot of different activities but one that I did over and over again was write in my journal. I took it just about everywhere and wrote down whatever popped into my head. A lot of good stuff came out– stuff that means something to me and stuff that I want to share here on my blog. So tonight I’m starting where I ended. This is my story of my hike in the Berkshires. 

mountains

The Ascent 

After a gentle yoga/Qi Quong class followed by an aromatherapy massage, I packed my car and got ready for my last little adventure — a guided hike. As I waited for the group to arrive and assemble, I began to feel like this wasn’t right for me. This is my trip— a time to be with my own thoughts and feelings and memories. I didn’t want to make small chat or slow down or speed up for anyone. I wanted this to be my last adventure at my own pace, with my music, my ability to stop and rest, take pictures, write and simply enjoy mother nature and all her goodness. So I grabbed a map of the trails surrounding Kripalu and chose to go to Monks Pond. I’ve been meditating like a modern day Monk all weekend and any option that puts me near water is a good one. So on my way I went. The trail has been really muddy as it’s 45 degrees in February. I feel so grateful as I only have yoga pants on, a long sleeve fleece and sunnies. I can breathe in crisp air but it’s not a stabbing that can come with deep winter colds. As I approach the pond, there looks to be an abandoned little shed and broken dock. But the water has frozen to a shimmery, star-dust blue— it’s breath taking. The sun is shining off and illuminating this frozen but alive body of water.

I look to my left and there’s a stunning stream that I can now see that runs all the way down the path I just marched up. Lucky for me, I’m all alone and no one is around so I’ve sat on a ledge next to the flowing water and am angled directly in the sunlight through the trees. The moving water is so calming and reinforces the fact that life goes on. It hits rocks, splashes up and down, freezes into sculptures at some places and runs wildly down others, crashes upon rocks and creates wade pools in others. But the water, this stream, it all continues to run together in a form that’s one. Each droplet of water essentially going to the same place— a bigger, greater, calmer body of water that is all one. I sit here on this rock and think about the stream I have gone down, all the water droplets that have given me the current I needed to keep flowing on. I feel as if I’m rounding the bend with this vast beautiful body of water that will await for me now in my current life but acts as just a foreshadow of the beautiful, completely blissful, full of love body of water that waits me, and all of us, one day.

For February 28, 2016, I can smell the new body of water coming… I can sense the sunshine beaming and I can feel the love all around me.

The Descent

Just as I sat there taking deep breaths and thinking calm and loving thoughts as the stream bubbled beside me, I slowly stood and decided it was time to head back. Almost instantaneously, I got excited— I got borderline panicky— like I needed to get back NOW. I knew that I had made it to where I wanted to go and now I was ready to come home. So I started picking up my pace— jogging, skipping, jumping over mud puddles but realized shortly that I wasn’t 100% sure where I was going. I was on a path— that was for sure— but I was alone, and I didn’t know which direction I was headed. All I knew was that I was walking and I was simply looking for the blue marks on the trees to tell me “it’s this way” “stay on the path.” Immediately, Dr. D and Dr. Mandy came into my head — the whole journey, I’ve been on a path, somewhat blindly putting my full trust into their guidance— sometimes no questions asked, simply looking toward the blue marker to say “go this way” or “turn down here.” Amidst this excitement, I began to skip again. More than anything I wanted to see the clearing. But I couldn’t. Not paying attention, I slipped and fell on ice and I could briefly hear my Dad say “slow it down Jess.” Then my favorite Florence & the Machine song came on — The Dog Days Are Over. That’s it! I thought. This is it— so I literally started dancing my way down the path with my gut knowing that I was coming to a clearing. I was right. But it was the same frozen Monks Pond I had started my “descent” on. 

Keep going— I could hear my mom say, “it’s just a little bit father.”

So I did just that and marched and marched, continuing on the path looking for all signs that pointed me “home” With two very muddy pink sneakers and a damp bum from falling, I made it to the Kripalu camp. Rested right above the hill overlooking the beautiful Berkshire mountains, the sun was just beginning to set. There were cars and people and buildings. Life is just like it was when I went into those woods, but I have a completely different perspective on the same view. 

I’m glad I didn’t go with the hiking guide and group. I needed to do this on my own. I needed to walk the path, stumble, get excited, get let down, and come to the beautiful clearing that I had hoped for, knowing that every ray of sunshine that beat down on my face was a family member reminding me they were here for me— every trail marker, a nurse or doctor letting me know I was doing okay — every breeze that tickled my face and made me laugh, a friend showing their support —  and the horizon at the end, my Michael, my love, I look at those mountains and see so many adventures to be had and memories to be made.

Today is February 28, 2016.

I am here.

I am now.

I am grateful.

I am proud.

I am hopeful.”

selfie with mountains

Lots of love and light,

Jessy