Today this is my life…
I’m working from home because of the snow. I’m bundled in head-to-toe fleece and felt like I needed to take the opportunity to document the LAST TIME I HAVE TO TAKE STERIODS.
I have been on all levels of steroids since the second day after I got to the hospital in 2014- before we even knew what type of leukemia I had and could begin my treatment regimine. They’ve had me on all sorts of highs & lows. Eating like a football player, being hyper focused on cleaning and organizing, bloating of my face and body, making my body so sore to the touch, they’ve made me manic and then when I come off them I’ve gotten so low and bordered on depression. They’ve kept me up too many times to count, like way way way too many times to count. And they’ve kept Mike up almost every day that I’m on them because I literally cannot stop talking the second we turn off the lights.
I have hated what these damn pills do to my body but even more so what they do to my mind so today I am ELATED to say that I should never have to take Dexamethasone ever again in my life.
HALLE- EFFING- LUJAH
Back to work.
Lots of love & light,
It seems only fitting that my last round of steroids, after literally too many rounds to count, would hit me SO hard. I literally had six emails from myself this morning when I got to work, all which I had sent from about 1130-1am last night as I could not get my mind to shut off. And today, I just couldn’t stop. Couldn’t stop talking. Couldn’t stop thinking. Couldn’t stop step marching on my way home. Just couldn’t stop. I wish leukemia had a visual bunching bag so I could just destroy it right now. I am so amped up it’s incredible. These steroids are so powerful though it’s just crazy to think about — I go from such extremes highs to such lows when I come off of them. They mentally and physically affect me beyond what I can explain. They have pretty much been the bane of my existence for the past 2 years so I am SOOOOO EFFING EXCITED FOR IT TO BE DONE. LIKE AHHHHHHHHHHH!!!! Three days from now I’ll take my last dose of steriods, hopefully, EVER!!!! Anyways, to be able to remind myself of the CRAZY that comes with the high days– I recorderded this video that I thought I’d share. I look crazy but that’s how I feel right now. I hope it makes you laugh. #NEUKTHELUKE BETCHES!
Happy Friday everyone– enjoy all the bliss of your weekends!
Lots of love & light,