March 25th: A Day I’ll Remember 

The bone marrow biopsies are a thing of the past. It was a stressful morning as things got pushed back and I didn’t end up being taken in until 12:30. So while we waited, we took pics…obviously. 

  
Then I was taken in and I had to take a pic with my most fabulous doctor who has done all my spinal taps and all my bone marrow biopsies since the beginning. Not only is she the most fashionable lady at the Dana but she also is the absolute sweetest. 

  
Now it was time to get suited up- and tis the bunny season, I just had to…

  
So then it was time to chill with the silliness and get this thing some and over with!

   
 
Go time.

(Warning:this is a little graphic but Mike took it and I found it fascinating as I’ve obviously never seen it from this angle!)

  
And just like that, I took my last “big breath”, Susan pulled the marrow and it was over. I instantly started crying but it was tears of such joy, relief and gratitude. I felt so empowered and so strong in that moment. I have hated this procedure every time, I have always gotten so worked up before and after as I wait for the results. But the reality is, it’s out of my control now. I’ll get the results next week and I really feel deep in my heart that the leukemia is out of my body so the moment just hit me so hard, like WOW, I’m really almost done. The finish line isn’t around the corner anymore- it’s right there, I just have a few more steps until I cross that yellow line.

As always, Michael was there by my side. Today, actually holding onto my feet, but right there with me, making sure Halo was being played at the appropriate time and loving me with everything he has. I’ve said it before and I’ll say it again, I really am the luckiest girl in the world. 

   
 
With that, I’m making myself a bowl of ice cream and continuing to relax on the couch with my two loves for the night. Thank you for the millionth time to everyone who said a little prayer for me, I owe you big time.

Lots of love & light,

Jessy 

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See Ya Later Roid Rage

 Today this is my life…

I’m working from home because of the snow. I’m bundled in head-to-toe fleece and felt like I needed to take the opportunity to document the LAST TIME I HAVE TO TAKE STERIODS.

I have been on all levels of steroids since the second day after I got to the hospital in 2014- before we even knew what type of leukemia I had and could begin my treatment regimine. They’ve had me on all sorts of highs & lows. Eating like a football player, being hyper focused on cleaning and organizing, bloating of my face and body, making my body so sore to the touch, they’ve made me manic and then when I come off them I’ve gotten so low and bordered on depression. They’ve kept me up too many times to count, like way way way too many times to count. And they’ve kept Mike up almost every day that I’m on them because I literally cannot stop talking the second we turn off the lights. 

I have hated what these damn pills do to my body but even more so what they do to my mind so today I am ELATED to say that I should never have to take Dexamethasone ever again in my life.

HALLE- EFFING- LUJAH 

Back to work. 

Lots of love & light,

Jessy