You’ve Got Mail

Last night, Mike and I got home from a VERY early dinner and found ourselves watching “You’ve Got Mail” with Tom Hanks and Meg Ryan. It’s such a good, truly romantic movie, and one that I had never seen until last year. I realized while watching it last night, as the snow came tumbling down outside, that it was a year ago that Mike was in New Orleans for a bachelor party and I was home by myself watching this movie having a glass of white wine. A year ago, I had no idea what was about to come my way. As I sat there on the couch, I remember feeling fully stressed at what was “happening” to me. I knew something was wrong, I was in agony about every other day with shooting pains down my back and legs making me unable to not only walk but do anything but roll around in bed and yell in pain. I was having nose bleeds regularly and blood blisters on my lips. I had bruises all over my body that had no reason for being there. And I had headaches so bad, I started keeping a neck pillow in my car so I could have some sort of relief as I drove to and from work. But as worried as I felt, I truly couldn’t have imagined the news I was about to hear and the year I was about to have.

In “You’ve Got Mail,” Meg Ryan’s book store is forced to close down due to a large, conglomerate book store opening up just down the street. She’s tormented with the fact that the life she had envisioned for herself and grown accustomed to, is so abruptly taken away from her. As I watched last night, I empathized with her character so much more deeply than I had just one year ago, as our stories are not the same but I so understood how she felt getting her “life” ripped away from her. But by the end of the movie, she’s making the best out of a bad situation and turns out to be writing her own book and allows herself to truly follow her butterflies and finds herself in the arms of Tom Hanks. She lets life take the reigns and it leads her to happiness. That’s what I’m still trying to do, trying to let life take the reigns, follow the things that give me butterflies in life. Because one thing I’ve learned in this past year is that life’s too short, too precious and too unpredictable; you’ve really got to enjoy each day for what it is. Whether it’s a good day or bad day, just appreciate the day. Appreciate it because you’re lucky to be here and lucky to have what you do.
XOXO,
Jessy

Thought Explosion

Today might have been a snow day in the office but there’s no such thing when it comes to staying on track of your chemo regimine. So this morning, we bundled up, put on our boots and brazed the snow-laden streets to get over to the Dana Farber. It was a relatively long day as I had to meet with an anesthesiologist for a day-surgery I’m having done on Friday, in addition to getting my normal dose of chemo.

Over the past month, I’ve began losing my hair… again. It’s obviously a lot less drastic than when I originally lost it, but it’s been slowly falling out and I’m starting to stress out. I just can’t imagine having to be bald again (even though #baldisbeautiful. S/O Michael!) Oddly enough, some days are better than others; there are days I barely lose any and others that it falls out each time I run my fingers through my short locks. Today was one of those days. Every morning, I look on pillow to see how much is gone and this morning, there was a bunch. It sucks… flat out. I have been so excited about having hair back. Do I miss my long hair? Absa-freaking-lutely. But I’ll take when I can get and have felt so good about not having to wear head wraps or hats or wigs every time I step out of the house. Plus, being back at work, I want to feel as normal as possible and head wraps are just not normal… reality of the situation. I’m hopeful that it’s just thinning and it won’t be too noticeable but I really don’t know what the future will hold. And that’s enough to overwhelm me each and every time I look in the mirror.
More importantly, in the past few months, I’ve had three close people in my life get diagnosed with cancer; a good friend who is a new mother to the most handsome little boy, my beautiful, hardworking cousin and my loving, funny and beautiful Nanny. This sounds crazy and I know that it’s not how life works, but I almost felt like when I was diagnosed, I must’ve “taken the bullet” for my group of friends and family. But as I learned quickly, that’s just not the case. As I chatted with my cousin this week who is starting to lose her hair, I was catapulted back into the harsh reality of the day I buzzed my head. It was so hard (as I mentioned above, it still is), it was so shocking to see myself in that light… to truly look in the mirror and see a sick person. It’s just so unfair. Why during all these hardships, do patients have to also lose something that defines them so greatly, too? It makes life harder in an already extremely difficult time. But what I’ve also realized while watching these amazing women battle through their own struggles, is where I obtained my own strength. I’ve got a a hell of a lot of tough people in my life, including these three and they inspire me everyday. They’re beautiful and strong and true warrior princesses. Cancer is everywhere, it truly affects everyone in some way or the other and I’ve learned that as cancer survivors (because that’s what we all will be), we need to stick together and find a cure for this terrible, terrible disease.
Cheers to living life to the fullest. Cheers to beating cancer. Cheers to a cure.
XOXO,
Jessy
p.s. throwing it back to my #baldisbeautiful days and to hoping that those days are only a thing of the past. #KissMySass
Photo on 8-11-14 at 1.28 PM #2

Friendship is the Best Medicine

There’s not too much that takes my breath away but these little boys just did. They show that true friendship is a bond like no other and one that can help make even the worst of times better. My friends have helped me so much this past year, whether it was being a shoulder to cry on, an ear to listen to my worries, a visit while I was stuck in the hospital bed, making me laugh while I was down or even creating a video montage of about 10 of my closest friends dancing to a song that I love (yes, they really did that!). I wouldn’t been able to get through this experience without the love of my best friends. True friendship is such a rare and beautiful thing and these boys are an amazing reminder of just how powerful simply being a good friend can be.

Happy weekend everyone!

XOXO,
Jessy

The New Normal

For eleven months, all I’ve been dreaming of is getting my life back— in particular, going back to work and being able to have a drink. I’ve said it time and time again, and that time is finally here. And it’s really, really….weird. Going back to work last week was overwhelming and exciting all at the same time. I was so thrilled to be back in the “real” world (however I’d argue that my life has been pretty real this past year) but I had forgotten that the real world isn’t exactly what I had cracked it up to be. Back to cube land, back to meetings, back to traffic, back to getting up early and getting home late, back to work clothes and no pajamas. I had gotten very used to my life revolving around cancer, revolving around being as healthy as I could be, focusing solely on myself and getting better. My days were lonely and boring but in a way, I had grown accustomed to it. So getting back into the grind of working is proving to be more difficult than I had expected. Everything just feels different. Physically, the day tires me out much more than it ever has and since I’m still going through chemo, there’s things like achey-ness and headaches that I have to learn how to just push through. What’s more is that my mindset has shifted so much from where I was a year ago. I feel so lucky to be here, so grateful to be alive and able to go to work. However, this feeling like I’ve been given a second chance at life is a bit overwhelming. I want to make a difference in the world and help other people as so many people have helped me. Instead, I do social media for a company that makes billions of dollars a year, so in reality I’m just helping the rich get richer. I am so grateful to still have a job but I’m just having a hard time wrapping my head around going back to a work life where nothing has changed while everything in my life has changed so drastically.
The beauty, however, of the working world is the pure bliss that the weekends give you. After one short week, I was quickly reminded of just how rewarding a Friday night on the couch with a glass of red wine feels. Wait, wine?!?! Yup! I am able to have some drinks again and it feels ahhhh-mazing! Saturday night we went to a bar for Mike’s birthday with a bunch of friends. As I was dancing around in the bathroom while I got ready, I realized how excited I was to go “out.” How just the act of doing my hair and makeup, something I’ve often complained about in the past, was making me so genuinely happy. I hadn’t gotten to go out like a normal 25 year old in almost a year and that night, I was getting to do that. It was SO fun to have fun.
The past week and a half has been a whirlwind of old experiences with a new attitude. And that attitude is gratitude. Gratitude that i’ve made it this far. Gratitude that I was able to go back to work, to have a drink with friends, to workout at the gym, to exercise at all, to eat normally again…that I’m able to have a life again. i’ve still got a long road ahead of me and a lot of work to do but I’ve come a long way. I’ve got myself a new normal and I’m just going to have to get used to it.
XOXO,
Jessy

Best Friday Ever

Every working human being knows the exciting feeling of FRIDAY. Today, I feel that tenfold. Today is my “first” Friday being back and I couldn’t be happier about it. It’s been a busy but important week in terms of getting my life back. Work has felt a bit overwhelming but I’m taking it one step at a time and already starting to feel back into the swing of things. So this morning as I was sitting in awesome traffic, I couldn’t help but dance around when that new Bruno Mars song came on. (It’s just TOO good).

On an even better note, I got my results from the biopsy and spinal tap I had done the previous week. I am….. Drum roll please………….Leukemia free!!!!!!!!!!!!!! I couldn’t be more relieved or blessed to still be in remission. So the march keeps on and we continue to kick some lousy cancer ass!

Well peeps, it’s time to start the day. I hope you have a FABULOUS Friday and remember to dance when you can! 🙂

XOXO,
Jessy

First Day Down

Today was my first day back to the working grind. It was for sure a mix of emotions. It felt just like the first day of high school, I was anxious all day yesterday, could barely sleep last night and then the day came. I had trouble getting myself out of bed in the morning, not because I was too tired but because I felt so overwhelmed at what the day would bring. But get out of bed I did and to Framingham I headed. As I walked into my cube this morning, everything was just how I had left it 11 months ago. The new 2014 calendar was still up, “Punta Cana vacation” highlighted March 7-14, cereal in my drawers, and my trusty heating pack still sitting on my desk as I had been using it to help ease my back pain (soon to find out it wasn’t exactly “back pain.”) It was surreal. Nothing had changed but everything had changed. I’ve worked 11 months to get back to where I sat today, I’ve gone through what feels like hell and back to get my life back. But it hit me as I sat there at 5:30 with the lights starting to dim that I’m not getting my old life “back.” I’ve got a new one, a very different one than the one I had left. One that is filled with much hope, determination, fear, anxiety, love and fight. I still have a long way to go, about 15 months more of treatment to be exact. There will be good days and there will be bad days, but as Mike reminded me last night, if I can get through what I’ve been put through in the past year, I can make it through a few stressful and tiring days of work. Just need to put my head down and tough it out. I might be be small and fragile looking on the outside, but I’m a warrior princess on the inside. And warrior princesses can do just about anything.

So tomorrow, I’ll be back at it again…back in my cube, back in meetings, back on emails and back on social media but I’m back with a little chip on my shoulder and a lot of things to prove, not just to my colleagues but myself.

Bring it.

XOXO,

Jessy

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Dance Like Everyone’s Watching

Today is my last official day “off” before heading back to work, and reality, this coming Monday. It has been a long eleven months of being either in the hospital or in this house watching as the time goes by. But one thing that always seemed to make me smile and make me laugh was to dance around the living room to one of my favorite songs. It brings out happiness even if it’s just for a few minutes. So today, in honor of my last day of getting to dance around by myself, I made a video dancing around to the one and only “Girl Almighty” by One Direction!

People always say “Dance like nobody’s watching.” Well, today, I’m dancing like everybody’s watching. And so should you! I challenge each and every person who reads this to dance today. And dance like you MEAN IT! And if you’re feeling up to it, make a video and tag it #dancelikeeveryoneswatching! I wanna see your moves! 🙂

Love you all!

XOXO,

Jessy

Happy & Healthy

Back to reality, huh? Just like many of you, I decided to take some time “off” (of writing) during the holidays. I had such an amazing two weeks. Saw so many family and friends, gave and received some great presents (like my new iPhone I’m writing from), went on a perfect getaway with Mike up north where we ended the trip ziplining through the trees of the white mountains and just got relaxed and rejuvenated for 2015.

Every year, people always wish me a happy and healthy new year. I say it too. But until this year, I don’t think I truly felt the importance of this wish. This saying is so often used but so rarely embraced by the one saying it. We simply say the phrase and wish it upon those around us but don’t make it a priority to ensure that we, ourselves, are “happy and healthy.” After a year full of doctors appointments, hospital stays, chemotherapy and radiation, I’ve learned what a true blessing it is to have good health. A blessing that should not be taken for granted. But while I’ve been burdened with many health issues this past year, I’ve also been reminded of the importance of “making the right choices.” These are the things in life that we have control over, like eating healthy, working out regularly, staying hydrated each day, and exploring alternative medicines like acupuncture and massage therapy. All the little decisions add up so make each day count. Take every opportunity to better your body and therefore better yourself. Things like drinking natural teas that have added benefits such as lowering cholesterol or providing your body with antioxidants. Getting that massage you’ve been thinking of— it’s not just pampering yourself, it’s helping to lower stress and better circulate your blood. Avoiding food and products that have chemicals and toxins. Exercising multiple times a week. This doesn’t have to mean wasting away on the elliptical (unless that’s your thing!), it can be so many different things like going for a long walk, doing yoga, taking a zumba class, lifting weights, or climbing the stairs in your house a few times. Whatever it is you can find time for in your day, do it! It makes a huge difference. Just recently, I was cleared to begin going to my gym again. I was amazed at how much strength and endurance I had lost since the last time I had worked out there but I also know that the body is a powerful tool and one that, with training and dedication, can do pretty amazing things. So although we do not have control over some of the big things life can hand us, like accidents, diseases, or in my case, cancer, we do have control over the little things that can add up to a lot. Being healthy is a combination of good choices, so try to make the right ones.

Now comes the second part of this wish. Happiness. Even more than the gift of health, I’ve learned the blessing that it is to feel true happiness. I’m lucky in the sense that I’ve always been a genuinely happy person; little things get me excited like winning $5 on a scratch ticket or having a 1D song come on the radio (yes, One Direction. I may be 25 but I will always get obsessive over boy bands.) So when there were days upon days that I honestly had to try hard to crack a smile, it felt off… it felt, not normal. Feeling happy doesn’t come naturally to everyone and it certainly comes and goes depending on the time and difficulty of your life at that moment. But what I have realized is that, above anything else, the power of your mind is a force that’s hard to be reckoned with— that staying positive and keeping an optimistic outlook will make all the difference, even at the worst of times. As I said, there were many days that it was extremely difficult to stay positive and felt nearly impossible to feel a sense of happiness. However, I was always able to close my eyes and remind myself that I am a strong woman, one that has been given many gifts in life and one that has an incredible support system. These things, no matter how terrible my day was, gave me a glimmer of happiness. Remind yourself of these things when you are feeling down— say out loud what you feel blessed to be or have in this life; it’ll make you feel better, even if just for a little bit. Happiness is something that is often taken for granted, I surely took it for granted before this past year. But what I’ve learned and hope to pass on to the people who read this, is to really enjoy the “ups” in life so you can show yourself compassion during the “downs.” Smile when a snowflake falls on your nose, sing out loud when your favorite song comes on, be grateful when you’re laughing with friends, close your eyes and really feel the sun beating on your face, and dance HARD whenever you damn well please.

C-r-e-a-t-e happy. C-h-o-o-s-e healthy.

XOXO,
Jessy

Photo on 1-5-15 at 6.15 PM #2

My Year in Review

As 2014 was quite the unexpected year for me, throughout the year, I decided to take videos and pictures of myself while home alone to document what my thoughts and feelings were on a day-to-day basis. I’ve made a compilation video of some of these images and clips of the videos to share with all of you who have so kindly followed my story all year.

Thanks to each and everyone of you for your support, kind words of encouragement and love throughout 2014. It has made all the difference in the world.

XOXO,
Jessy

Hard Times, Good Times

I started writing this blog post last week and never finished. I went back and read it this morning and realized in one short week how things have already changed. Here’s what I wrote…

“The past four months have probably been the worst four months of my life. Not the most uplifting way to start a blog post but it’s the truth. During these months, I’ve struggled to stay positive and truly feel happy. Partially because of the unexpectedness of the pancreatitis. It seems so unfair that I would get that on top of leukemia. Because other than that my chemo caused the pancreatitis, it has nothing to do with the cancer. It’s only delayed my treatment, caused me a lot of pain and laid me up in the hospital three too many times. …. even when I’m doing “fun” things, my mind races to that things aren’t normal. That I can’t have a drink. That I can’t have a french fry. That I have to be home early to hook up to a feeding tube. That I’ve simply been hooking up to a feeding tube for over two months now. That I’m not at work. The list goes on and on. 
 
I’m hoping that the end of this funk is coming near as sometime in January I’ll be FINALLY going back to work and I think that will help immensely. But I wanted to write this blog post so I remember how I felt at this moment. These days are long and tiring. Each day I feel different, whether it be emotional or physical. I have a hard time sleeping and my mind always seems to run back to “i have cancer.” I spend half the day sleeping and another portion watching TV. I can’t take that anymore. I want to do, I want to be productive. But sometimes it’s too hard, I’m too tired. Today I was tired. I got out of my pajamas at 4 o’clock to run to the grocery store to get things for Thanksgiving. I love being in pajamas but when that’s all you have everyday, getting dressed up becomes a privilege. Overall, things have just been really tough.”

Well it’s funny what a few days, family, friends and good food can do. I had the best four days I’ve had in a really long time. Thanksgiving was wonderful as I got to see my whole family and grandparents and snuggle with my love bug of a niece. Then Friday I got to see a bunch of my best friends from high school at a fabulous Friendsgiving party! Saturday, Mike and I got our Christmas tree and started decorating for Christmas (my ballerina reindeer are up which makes this girl VERY happy). Then we headed out to a housewarming/birthday party at one of our good friends house which was a blast. Sunday we just stayed around the house and decorated for Christmas, made some turkey chili and watched the Pats. It was a busy but perfect few days and it was just what I needed to help get me out of that funk. I felt so happy to see my friends and family and get to spend four days with Mike. Times like this weekend I’m reminded why I’m so blessed. It helped change my mindset and brought me a sense of happiness that I haven’t felt these past four months. There are still hard days ahead (most likely a lot of them) and I will have to keep working on feeling normal and feeling happy but I’m thankful for last weekend as it brought both those things back into my life.
XOXO,
Jessy
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