This year for Thanksgiving I have a lot to be thankful for. Sometimes lately that’s hard to remember but it’s definitely true. So today I want to write about what I’m thankful for.
Tag Archives: friends
Back at it Again
On Thursday I found out that my pancreas had suffered a leak in it during the first two pancreatitis attacks. So my doctors quickly scheduled an endoscopy procedure for the next day to place a stent where the hole is. I was so nervous about it as I hate being put under and I’m anxious about a foreign object being in my body. But I trust my doctors so I knew it was what I had to do. Friday morning came quickly and with Mike by my side, I had a stent placed in my pancreas. Everything went smoothly and the doctor was really pleased with how the procedure went. I was even able to go home that night in time to pass out candy to the trick-or-treaters!! (Huge deal to me cause I had been really looking forward to that so I would’ve been really sad if that got taken away from me). Anyways, Saturday morning I woke up with intense pain in my stomach, I was rolling around and just could not get into a comfortable position. So I took pain meds that typically help and waited an hour. No such luck. After a call to my oncologist, Mike and I were on our way to the emergency room (which was filled with drunk halloween goers. Woof). My hope was that I would be able to go in, get some IV pain meds and head home but that wasn’t the case. After being in the emergency room for 6 hours, I got admitted, again, to the Brigham 7D. I am so frustrated because I had been doing so well. I was eating, my nausea was starting to go away, and I was overall just feeling good. So being back in the hospital bed hooked up to 100 different machines and unable to drink or eat…I feel more than discouraged.
On the bright side, it’s freezing out (I saw snow flakes out my window-ahhhhh!!!) and I’m inside all day. My amazing doctor made me two “pancreatitis” playlists to listen to (how sweet is that?!) My family and Mike have been by my side the whole time. And I got onto my favorite floor which makes things so much more enjoyable and comfortable. Definitely not an ideal situation but I’m trying to positive because things could definitely be worse.
(Here’s a pic of me and my TPN feeding tube at home! Fun, fun, fun!)
XOXO,
Jessy
PS this is not a pic for the faint. So if you don’t like bodily functions, I’d X out now. But below is a pic of my pancreas before with the hole (on the left) and it now with the stent in it (right side). I thought it was pretty cool so wanted to share with you guys!
When Life Hands You Apples, Make Applesauce
Just before my first pancreatisis attack, I met with a few girls from work for coffee. It was so great to see them and feel a part of the team again. They had asked to get together so they could give me something a whole group of people had put together for me. As many of you know (and working with me every day, you can imagine how much they heard about it!), Mike and I had a trip planned to the Dominican in March. Unfortunately, I was diagnosed just a week and a half before and we weren’t able to go. Really, really disappointing. So my coworkers, being the amazing and thoughtful people that they are, all chipped in to be able to send Mike and I on a little get-away weekend to Peaks Island, Maine to make up for it! Peaks Island is right off of Portland and Mike and I had discovered it last summer. It’s about 3 miles wide and the cutest, most quaint little island I’ve ever been to. We had had such a relaxing and special day there; biking around the island, laying on the beach, watching people ride horses along the water, drinking summer beers on an ocean deck restaurant as we let one more ferry come and go, not wanting to head home. It was a day that for some reason really meant something to me and I have often thought of it when I’m feeling down. It’s become kind of like a happy place for me when I need to think of something good. (I digress!) So when so many of my co-workers (some that don’t even work at TJX anymore!) came together to surprise me with this, I was floored. It was so over-the-top generous and thoughtful, I truly was touched. So Mike and I picked a weekend, made the reservations and started making plans for our little fall getaway to Peaks Island, Maine.
Glorious Life
I did something stupid today. I clicked and clicked and clicked through old pictures on Facebook. One by one I went further and further back in time. It was like sinking into a hole. A hole of memories of fun times, times with my family and friends and even coworkers that I want back so bad. Looking back at these pictures make me smile because I’ve had such an amazing life but they bring me down as well because I miss that life so much. Mike and I used to always say we have such a “glorious life.” After fun weekends and things we’d do together, we’d always look at each other and say “ughh glorious life, glorious life!” Today when I was scrolling through the pictures, I realized we haven’t said that in a long time. And that, that made me sad.
Can’t Sleep
I do some of my best writing at 4:30 in the morning…on steriods. And that’s what’s going on right now. It’s exactly 4:37am and my mind is racing and I can’t sleep. So instead of laying here in bed with my eyes open, I thought I’d write down how I’m feeling and what’s new.
It’s been a little while since I’ve written a post, the frequency of the posts have slowed down in the past month and I know it. It’s not because I’m getting bored with my blog or anything of that sort but rather because I’m bored with my life right now. The past 3 weeks have consisted of not eating or making bland, “soft” meals, throwing up, napping, being curled up in pain, going to the doctors, watching tv, sleeping. Repeat. I’ve felt anything but inspirational. I’ve felt bad for myself quite honestly and that’s really it. I felt bad for myself that Mike and I had to cancel a trip to Newport this weekend that we had looked forward to nearly all summer due to my condition. I felt down for myself that I’ve felt so sad lately, it doesn’t feel like me. But as I sit here in bed in the wee morning of hours, I am thinking about everything good that has still happened over the past three weeks.
– I got to see two of my best friends, one from high school and one from college, that live in California and Florida and I very rarely get to see. It’s always rejuvenating to visit with friends, especially those you haven’t seen in quite some time.
– I got to spend time with my family and Mikes family. Both by the pool. Both with our little nuggets. And I’ve said if before but I’ll say it again, there’s no better cure than hanging out with children you love. They put a smile on your face no matter how crummy you may feel.
– I got to slow dance with Mike to Frank Sinatra.
– I got to dance crazily to “Shake It Out” by my girl T Swift with Mike (yes, there’s a lot of dancing in this house). Works for a good belly laugh every time.
– I have been reminded how strong I really am. I have learned how much my body can be put through and how I will bounce back and come out on top, even if it takes a while.
– I got to start back up on the chemo cocktail yesterday. Now this may not be traditional “fun” but being paused is a stressful feeling as you know it’s just pushing back the end goal. So I was thrilled to continue back on the march.
– I’ve learned that the guy sleeping quietly next to me (thank god, it’s a snore a lot of the time!) is the best thing that ever happened to me. That even at my lowest and grumpiest, he loves me unconditionally.
So for a crappy few weeks, there’s still a lot of good that has come out of it. And that’s important to remember, even at my lowest lows. Sometimes, I just have to write it out. I hope you all are having a wonderful and blessed week!
XOXOX,
Jessy
Milestones
Today is milestone day. Today marks the end of my brain radiation. It was only an 8 day preventative treatment regimen but it’s another thing to check off “the list” which feels incredible.
All-in-all radiation was strange. The process is pretty simple— you go in, get on the table, strap in, get zapped for a few minutes and then it’s done. It doesn’t hurt and it’s quick, so in that regard, it’s pretty great compared to chemo. However, it’s sneaky because it makes you really exhausted which is never any fun. The worst part, BY FAR, was getting fitted for my mask a few weeks ago. Basically, in order to make sure that my head doesn’t move an inch during the treatment (don’t want to zap the wrong areas), you have to have a mask created specifically for your face that you wear each time. It fits tightly around your face and then locks in place so you can’t move. Definitely would not be ideal for the claustrophobic! But with the help of my girl Beyonce, we blared music throughout the room and it made the few minutes go by quick and painless. Nothing a little Yonce can’t make better.
So with one of my best friend by my side, I walked out of the Brigham today with my mask in hand and am happy to say that getting my brain radiated is a thing of the PAST. WOOOOOOOOO CHIL’!
And then we have tomorrow. It will be another long, hard day but at the end of it I get another milestone under my belt. Completion of the CNS (central nervous system) phase. I will receive more chemotherapy and then one final spinal tap (this is the fourth in a two week period). But as long as everything goes as planned, this will be my last spinal tap for 18 weeks!!! That’s about as long as I’ve been going through treatment so that my friends, is a very welcome and pleasant change of pace for this young lady!
Milestones are important. They symbolize progression and moving forward. And that’s what I need right now, to keep on keepin’ on. Onward and upward: it’s what it’s all about.
XOXO,
Jessy
I get knocked down, but I get up again.
Happy Days
On Wednesday morning, I packed my suitcase, grabbed Uncle Fred and my favorite blanket and headed to the hospital thinking I would be there for five days. Two hours later, Dr. D came in the room and said we’d have to wait a week until I could start my fourth round of chemo. I was certainly not looking forward to being in the hospital for five days but I was ready for it. I had mentally prepared myself and there’s always a sense of “excitement” to start the next phase because it just means I’m one step closer to the end goal. So in a weird way, I was disappointed that I didn’t get admitted last week— not to mention, my bags were packed and I knew I’d have to unpack just to repack— the worst.
Cinco de No Drinko
Little Life Lessons Learned
Yesterday was exactly one month from when I found out that I had leukemia. One month into what will be a long two years. I’m only one month in but in this one month I’ve learned more about life and what matters than I have in twenty-five years. And for that I’m grateful.
I’ve learned that you’re in this life by yourself — with or without you, the world is going to keep spinning and the sun will keep shining and that you have to find the strength within yourself to keep going even when life gives you a not-so-great hand.
I’ve learned at the exact same time that you’re nothing without your family and friends and that there is literally not one thing more important in this life than the relationships you create. Material items mean nothing. It’s the people that you surround yourself with that are important. They will be the ones to pick you up when you’ve fallen, tell you they love you and give you more hugs, kisses and support than you think you deserve.
I’ve learned to take help when you need it. Don’t let pride get in your way– people won’t offer to help if they don’t want to. So take it.
I’ve learned that I’m a lot stronger than I realized. That keeping a positive attitude in tough times, continuing to smile and believing in yourself is half the battle.
I’ve learned the power of a laugh. I’ve always loved laughing… who doesn’t? But I realized while Mike and I were driving to the grocery store two days ago and were hysterically laughing about something that that was the happiest I had been in a while. There’s really no better feeling (or therapy for that matter) than a good belly laugh. Laughter is happiness.
I’ve learned that faith matters– for me, it’s not about going to church and reciting memorized prayers but truly believing that there is something bigger in this life, something that can give you strength when you can’t seem to find it by yourself.
I’ve learned the power of being a good person. That doing little things for others matters. Bringing happiness to others brings happiness to your own life. Life’s a big circle and you will only get what you give.
I’ve learned that appearances matter more than they should but it’s just a reality of life. I’ve been very blessed to never have many self-image issues in the past but I find myself struggling the most right now with how I look. People say it doesn’t matter, it’s what’s inside that counts. And that’s true. But I still find myself avoiding mirrors as when I look at the reflection, it’s hard to see myself. Whether it should be or not, I’ve learned that feeling good about yourself and how you look really is an important part of life.
I’ve learned that doctors and nurses are literally angels that walk among us. They sacrifice their lives and time with their own family and friends to save other peoples lives. I have such admiration and gratitude for what they do.
I’ve learned the power of music. Music has always been a huge part of my life but it’s helped me in the past month more than I thought possible. Music helps you truly feel emotions whether they’re happy or sad. A song can help you get out of bed in the morning, make shaving your hair off a little easier, take you back to a special memory or point in time, or bring calmness to your day when it’s getting overwhelming.
I’ve learned that it doesn’t matter how long you go without talking to someone, if you made a difference in each others lives, you’ll always have a place in each others heart.
I’ve learned that people are good. There are bad people in this world but there are far more caring, generous and loving individuals. People that will go out of their way to make someone else’s day better and bring happiness to someone else’s life other than their own.
Lastly, I’ve learned that I honestly enjoy a frosty mug of beer, freshly poured glass of wine or recently shaken dirty martini. I’ve come to the conclusion that I am going to miss these little pleasures, A LOT, in the upcoming months. And ya know what? There’s nothing wrong with that.
You don’t need a cancer diagnosis to learn important lessons about life but you do need to learn things for yourself. Because as much as you hear or read about life lessons, they really only sink in until you come to the conclusions for yourself.
So one month in and I’m feeling optimistic. Feeling optimistic about my life, where it’s going and all the lessons I’ll continue to learn along this unexpected but important chapter of my life.
Xoxo,
Jessy
p.s. (cuz I love p.s.’s… and Sloths. Here’s a fab motivational picture my friend Amanda at work created for me. Talk about people going above and beyond to make you happy. Thanks girrrrrrrl.)






















