I tend to always be thinking about “what’s my next move,” how I can improve my life, how I can get something better than what I have now. With all this dreaming of what’s next, it’s hard to truly appreciate what I have now. Monday’s tend to be the pinnacle of this mindset– “ugh, I don’t want to be here. I can’t wait for the weekend.” But I need to start reminding myself, that although my work life is far from my version of ideal, it’s still a good job and one that is providing me with the benefits that I need so badly at this moment. For that, I am lucky and I should be grateful. Plus, I have friends at work that make me laugh which is pretty awesome. If I was a lone chicken all day I’d be miserable. For so many months, I yearned to be able to work, to get up on a Monday morning and be productive all day. So it’s time to remember that, it’s time to really appreciate the beauty right outside my window.
Make today a good day. Take your life and make it something that makes you happy, not tomorrow but NOW.
As many of you know, I spent nearly 100 nights in the Brigham in 2014 (and a few in 2015). Being “locked up” in the hospital is hard— the days are long, the nights are kind of scary and the mornings are the toughest, as you feel like you’re waking up in a bad dream. During my many stays, the one constant that would always make me smile, even at my lowest points, was being able to open a card that someone had sent. My initial month-long stay, I was blessed to have multiple cards to open every single day. I would wait until morning to open them with my breakfast, as I was typically alone during this time, and it would remind me that people were thinking of and praying for me. Truly, every single letter helped to lift my spirits. I’ve kept each one as they made such a difference in some of those dark days. I know, however, that not everyone is as lucky as I was to be able to get cards so frequently. I also know that every single person deserves to know that people are thinking of them– at the very least. They deserve to know that someone, no matter who that someone is, is keeping them in their thoughts and prayers. They deserve to have something put a smile on their face during the day, even if just for a split moment.
That’s why Mike and I have begun writing cards to patients of 7D (the oncology floor I stayed on). The letters are not long or full of wisdom, just simple notes to let these warriors know that they’re not alone, that there are complete strangers that are keeping them in their thoughts. Knowing this, as a patient, really makes a difference. It’s a touching feeling when you realize that people really care.
In one of the cards that I received over a year ago said the following words…
“You are strong. You are loved. And you WILL get through this.”
These words have rung through my head probably a million times over the past year. They have acted as a self-affirmation for me when I’m feeling down, or when I need to be reminded that I can do this. Those three sentences have helped me get through a lot of tough times— and I have the person who wrote them in that greeting card to thank for that.
I wanted to let you all know what we’re doing in hopes to inspire you to write a few yourself. They can be about anything— a funny story, an inspirational note, words of encouragement — whatever you feel fitting! Mike was hesitant at first as he thought he wouldn’t be able to relate to them since he’s not a patient himself, but I reminded him, it’s not about being able to say “I’ve done it too” but rather “I’m thinking of you.” SO, if you’d like to help in this little quest of putting smiles on the faces of some very deserving people— feel free to send me cards addressed to “one very strong Brigham patient!” I am going to begin dropping them off every Wednesday when I come in for my treatments.
It’s been over a week since I’ve written a blog post and it feels like an eternity. But that’s because I WAS ON VACATION! First vacation since being diagnosed. First time being on an airplane and getting to see palm trees and plop my butt in the sand and just relax. It was such a wonderful few days and something Mike and I really needed.
We were greeted in the Tampa airport by multiple members of the fraternity I was a part of, Delta Sigma Pi. Their excitement to have me down and meet all the new members was infectious and something I felt so lucky to be able to experience.
So after deciding we no longer wanted a boring rent-a-car because we were on v-a-c-a-t-i-o-n, we hopped in a mustang convertible and headed down to Clearwater!! The drive was perfect– the warm wind was in our faces, the music was on loud and I felt happy at its purist. We got so lucky as we were able to stay in a GORGEOUS condo that my friend Kelly’s family owns and were so nice enough to let us stay there for a few days. It’s right on the water, has a fantastic pool and jacuzzi, and the best balcony view of them all. We were so lucky to be able to have that opportunity! (so thank you thank you thank you to the Fitzgibbons!)
We spent the next few days lounging on the beach, doing yoga in the sand, going for long walks hand in hand, sleeping with the doors open to hear the waves crash down, watching dolphins play in the water while we ate grouper sandwiches, spending time with some of my best girlfriends who came up for a day to visit, and watching the sunset go down atop the beautiful white sands! We couldn’t have asked for a more perfect few days.
We then headed to Tampa so I could show Mike my old stomping grounds and get ready for the Relay for Life event that I was speaking at on Saturday. Friday night I got to meet all the wonderful students who have worked so hard over the past 6 months to fundraise in order to get me to Tampa and also to put on this incredible event. I was greeted by so many smiling faces, including old professors that came to support me– it was truly heartwarming. We then went out with some great friends for dinner and ended up at World of Beer for old times sake. It’s funny, WOB is right across the street from MacDittons, my favorite bar in college, and as I watched college kids go in and out, I felt old and almost like “could I do that anymore?” Funny how times change. Overall, it was a really special night to see so many close friends that I don’t get to see nearly as much as I’d like and just catch up and laugh together.
Then came Saturday– the day we were down here for. I was anxiously awaiting my speech all day, reading it over and over by the pool and practicing too many times in front of Mike. Being the perfectionist I am, I wanted it to go smoothly and really make it worth everyone’s effort of getting me down there. The night came and my family, of course, was there to support me! Mom, Dad, Court, Stratos & Eleni were all there to cheer me on as I took the mic. With over 1000 people in attendance, I started to get pretty nervous– I haven’t public spoken like that in quite some time. But once I started speaking, I was reminded that I’m talking about my journey– something I know a lot about. I could do this. And I did it. There was sense of relief when I ended but also real excitement. Overall, the ceremony was beautiful and so touching. It’s a night I will always remember.
I’ve included the video below where you can watch my speech, hope you enjoy!
Again, thank you to all my brothers from DSP for making this trip a reality and to all my Tampa family who made being back so special to me. I love you all!
“Make the most of the best and the least of the worst.” ~ Robert Louis Stevenson
Having a hard time the past few days and really needed this reminder. Gotta make the best of what you’re given and pay as little attention to those negative vibes and feelings in your life.
Hope you all get through this Tuesday with good spirits and happy smiles!
It’s been almost a month since I’ve been back at work. I’m coming in early, leaving late, chugging through long days. Overall, just really feeling the stresses of being a working girl again. And I have to admit, I love it. I don’t like waking up early (obviouslyyyy) but I like waking up with a day full of productivity and socialization in front of me. That was something in the past year I struggled with so much. I often laid in bed for long periods of time after waking up because I simply couldn’t reason with myself of why I needed to get up. So it feels incredible to be making my to-go coffee and heading out the door in the morning. Beyond work, I’ve been back to practicing yoga and going to the gym. Exercising feels awesome because I know it’s something good I’m doing for my body. With so many harsh toxins going into me every week, it feels only fair that I would give this body of mine something to feel good about. Another piece of really exciting news is I got a new car— WOOO HOOO!!!! I’ve only ever owned sh*t boxes (proud owners of them though since I saved my own money in both high school and college to be able to purchase them), but after rear ending some lovely lady that also works at TJX (another story, another time), I said goodbye to Carmen Elantra and got my dream car…a 2012 Hyundai Sante Fe- beep beep! New car, back to work, back to exercising, and back to eating and drinking! My pancreas has really done a 180 and I’ve been off pain meds for over a month and am eating practically a normal diet again! Mike and I even had nachos the other weekend and after over 6 months of not having them, we were in HEAVEN! I’ve also been able to have some drinks lately, which if you’ve read my blog in the past year or know me even slightly, you know that that’s a big deal. It makes me sound like a lush but so be it… I like to have drinks. I like drinking beers and watching the Pats. I like having a glass of red after a long day of work. I like having margaritas with my tacos or going to hotel bars with Michael and getting house snack mix and martinis. I like being Champagnes Moran. And Champagnes Moran I was two weekends ago. Mike and I had an awesome night just the two of us going out to dinner then heading over to a new bar for after dinner drinks…it just felt normal. And that feeling of normal gave me such a sense of pure happiness, from the top of my head to the tips of my toes, I felt amazing. I felt like “Jessy” was finally back in action!
That’s what it felt like. That’s what getting pancreatitis and being hospitalized for it for the fourth time a week ago felt like. A W-T-F moment. A “no! no! no!” moment. A “this can’t be happening” moment. It felt like a punch in the gut…literally. My life had just gotten back to my new normal. I was feeling like me again. Life was being good to me. And then I go in to have my stent removed on Friday and the stent gave the doctors trouble coming out. So much so that it broke in half while they were in there. So with that much struggle going on, my pancreas got “upset” and pancreatitis hit me again. I spent 28 hours in the emergency department before being transferred to a hospital room and another day asking when I could get transferred to 7D. We watched the Pats game on a 13 inch TV with no apps and no beers. (but with the company of some of my favorite people, Mike, my mom and Dr. Mandy!).
I sat in a hospital bed trying to get as much work done as possible as I couldn’t bear thinking I was taking more time off after just coming back from being out for 11 months. I’m back on pain medicine and wearing my stupid heating pad day and night. I got released Tuesday night and was back to work by Thursday. It was such a hard week and I’m so glad it’s Saturday. Having a taste of my normal life again and having it taken away again is a lot to handle. I started crying really hard when I got home from work yesterday while I was talking to my mom… I just couldn’t hold it in anymore. It feels SO unfair this time. Everytime has felt unfair but this time just seems like too much. Having what I’ve wanted back this entire year— normalcy— and then having it taken away one more time is more painful than I can really put into words. Mike came home just as I was sitting there sobbing on the couch and for the millionth time this year, he gave me a hug, kissed my forehead and talked to me about it until I felt better. I had been trying to just “keep marching along” and pretend like this was something “I’ve done before, I can do it again” but it’s more than that this time. It’s frustration to a whole new level. But after crying and talking it out, I felt better. I’m already one week down. I’m already out of the hospital which is a lot better than the first three times. I’m back at work and have something to keep my mind off it. It’s likely that it won’t take as long to heal this time. And there’s no more stent in me which means no more endoscopies which hopefully means this truly is the last time I’ll deal with pancreatitis.
AND lastly, the Patriots are Super Bowl Champions. So really, life is still pretty good.
Today might have been a snow day in the office but there’s no such thing when it comes to staying on track of your chemo regimine. So this morning, we bundled up, put on our boots and brazed the snow-laden streets to get over to the Dana Farber. It was a relatively long day as I had to meet with an anesthesiologist for a day-surgery I’m having done on Friday, in addition to getting my normal dose of chemo.
Over the past month, I’ve began losing my hair… again. It’s obviously a lot less drastic than when I originally lost it, but it’s been slowly falling out and I’m starting to stress out. I just can’t imagine having to be bald again (even though #baldisbeautiful. S/O Michael!) Oddly enough, some days are better than others; there are days I barely lose any and others that it falls out each time I run my fingers through my short locks. Today was one of those days. Every morning, I look on pillow to see how much is gone and this morning, there was a bunch. It sucks… flat out. I have been so excited about having hair back. Do I miss my long hair? Absa-freaking-lutely. But I’ll take when I can get and have felt so good about not having to wear head wraps or hats or wigs every time I step out of the house. Plus, being back at work, I want to feel as normal as possible and head wraps are just not normal… reality of the situation. I’m hopeful that it’s just thinning and it won’t be too noticeable but I really don’t know what the future will hold. And that’s enough to overwhelm me each and every time I look in the mirror.
More importantly, in the past few months, I’ve had three close people in my life get diagnosed with cancer; a good friend who is a new mother to the most handsome little boy, my beautiful, hardworking cousin and my loving, funny and beautiful Nanny. This sounds crazy and I know that it’s not how life works, but I almost felt like when I was diagnosed, I must’ve “taken the bullet” for my group of friends and family. But as I learned quickly, that’s just not the case. As I chatted with my cousin this week who is starting to lose her hair, I was catapulted back into the harsh reality of the day I buzzed my head. It was so hard (as I mentioned above, it still is), it was so shocking to see myself in that light… to truly look in the mirror and see a sick person. It’s just so unfair. Why during all these hardships, do patients have to also lose something that defines them so greatly, too? It makes life harder in an already extremely difficult time. But what I’ve also realized while watching these amazing women battle through their own struggles, is where I obtained my own strength. I’ve got a a hell of a lot of tough people in my life, including these three and they inspire me everyday. They’re beautiful and strong and true warrior princesses. Cancer is everywhere, it truly affects everyone in some way or the other and I’ve learned that as cancer survivors (because that’s what we all will be), we need to stick together and find a cure for this terrible, terrible disease.
Cheers to living life to the fullest. Cheers to beating cancer. Cheers to a cure.
XOXO,
Jessy
p.s. throwing it back to my #baldisbeautiful days and to hoping that those days are only a thing of the past. #KissMySass
There’s not too much that takes my breath away but these little boys just did. They show that true friendship is a bond like no other and one that can help make even the worst of times better. My friends have helped me so much this past year, whether it was being a shoulder to cry on, an ear to listen to my worries, a visit while I was stuck in the hospital bed, making me laugh while I was down or even creating a video montage of about 10 of my closest friends dancing to a song that I love (yes, they really did that!). I wouldn’t been able to get through this experience without the love of my best friends. True friendship is such a rare and beautiful thing and these boys are an amazing reminder of just how powerful simply being a good friend can be.
Today was my first day back to the working grind. It was for sure a mix of emotions. It felt just like the first day of high school, I was anxious all day yesterday, could barely sleep last night and then the day came. I had trouble getting myself out of bed in the morning, not because I was too tired but because I felt so overwhelmed at what the day would bring. But get out of bed I did and to Framingham I headed. As I walked into my cube this morning, everything was just how I had left it 11 months ago. The new 2014 calendar was still up, “Punta Cana vacation” highlighted March 7-14, cereal in my drawers, and my trusty heating pack still sitting on my desk as I had been using it to help ease my back pain (soon to find out it wasn’t exactly “back pain.”) It was surreal. Nothing had changed but everything had changed. I’ve worked 11 months to get back to where I sat today, I’ve gone through what feels like hell and back to get my life back. But it hit me as I sat there at 5:30 with the lights starting to dim that I’m not getting my old life “back.” I’ve got a new one, a very different one than the one I had left. One that is filled with much hope, determination, fear, anxiety, love and fight. I still have a long way to go, about 15 months more of treatment to be exact. There will be good days and there will be bad days, but as Mike reminded me last night, if I can get through what I’ve been put through in the past year, I can make it through a few stressful and tiring days of work. Just need to put my head down and tough it out. I might be be small and fragile looking on the outside, but I’m a warrior princess on the inside. And warrior princesses can do just about anything.
So tomorrow, I’ll be back at it again…back in my cube, back in meetings, back on emails and back on social media but I’m back with a little chip on my shoulder and a lot of things to prove, not just to my colleagues but myself.
The Inspiration Initiative 