The Pendulum 

When I was growing up, my dad always said I was like a pendulum. I swang either really high or really low. I was either elated over scoring tickets to an *NSYNC concert or I was hysterical over a boy not dancing with me at a middle school dance.

Lately, I’ve been feeling just like that. There are moments like last Thursday, when it’s 60 degrees in February and I’m able to take Phoebe to the beach and sink my toes in the sand. The pendulum swings high. And then there are moments around 3:30pm this Thursday when I realize the day is coming to a close, and I’ve yet to make any money this week. The pendulum swings low. In those low moments, I begin second-guessing my decision to leave my steady job and salary. I struggle with the idea that I can still be a worthy human being without making money or having a successful career. Logically I know this to be true but emotionally I haven’t gotten there yet. I spend so much time staring off into the sky overthinking what I’m supposed to do with my life and how I can make a quick buck. It’s stressful to have bills and have to dip into savings to pay them. Or even worse, having to ask you’re partner for help. That’s the epitome of the low swinging pendulum in my mind. The last thing I ever wanted to do in my life was depend on anyone else financially yet somehow I find myself having to do that every time I go grocery shopping. 

So many ups and downs. Ups when I’m able to take my own dog to the park rather than pay someone to do it for us. Down when my dogs barking at me because I’m trying to do work at the kitchen table. Up when I’m able to spend time cooking a healthy meal. Down when I realize I’ve been cooking this healthy meal for two hours and my fiancé is still two hours from being home from work. Up when your mom is able to visit you on a weekday. Down when she leaves and you feel lonely because you now don’t have anyone to interact with the rest of the day. 

So many emotions in the past few weeks that it’s hard to process. I know I can’t speed up the universe but I wish I could. I want so badly to be on a steady path and know how I should proceed. How if I continue to wander aimlessly like this for months or even years? That’s feels like a nightmare. 

The question is, do you shoot for highs even though you understand that youll of end up in the low sometimes too? Or do you aim to be constistenly in the middle? Although I, ironically, am the middle child, I’ve never enjoyed being in the middle of the pack. And right now, I don’t even feel in the middle, I feel like I’m falling to the back of the pack. But if I go back to that pendulum analogy, it should only be a matter of time until I’m on that high swing again.

I’ll wait.

Happy weekend to all you worker bees 🐝 out there! 

Love & light,

Jessy 

Time Goes On

3 years ago on this morning, I was in a hospital bed being woken by doctors and nurses. I was about to start one of the most physically painful and emotionally draining days of my life. I had just been diagnosed and rushed to the hospital the night before and today was the day I had to undergo multiple tests and procedures to determine just what kind of leukemia I had. January 21, 2014 was a day of absolute unknown and terror of what lie ahead. 
3 years later I’m waking up in my own bed with no beeping machines or nurses poking me for blood. Instead I can hear my wind chime outside, birds chirping and Phoebe is snuggled up next to me demanding for scratchies. I’m wearing an engagement ring and get to marry the love of my life in 5 months. I’m going out to dinner with my best friend of 25 years tonight for her birthday. My life is in such a different place than it was on this day in 2014, it’s almost mind boggling. 


3 years from today is still unknown. However, this time, fear has been replaced with excitement. Where will Mike & I be living? What will I be doing for work? Will I be a mom? There’s so much more living to do. There’s so much more I’m looking forward to and I feel beyond blessed that I get to feel these feelings of excitement and joy. 
The beauty, and tragedy, in life is the same. You never know what life has in store for you. You never know if the hopes and dreams you have for yourself will be realized. But you do know that you have today, and this moment and this breath. So make the most of it. Enjoy it, savor it and soak up the sunshine that is your life. 
Sending each and everyone of you – those who have my followed my blog from the beginning and those who have just found it- so much love and gratitude. I am thankful everyday for the prayers and positive energy that you have sent my way to get me to this day. 
Love & light,

Jessy 

Guilty as Charged

guilt

I feel guilty that I haven’t written a blog post in 3 months. I’ve written a few posts about random things but haven’t felt like I could publish them because quite honestly, they were me venting and expressing myself. Unfortunately, however, expression of feelings isn’t always what you want the entire world to see.

I feel guilty so much lately. About a whole array of things, I’ve begun to realize how much this one feeling affects my life every day.

I feel guilty that I got to live through my terminal diagnosis when others don’t get to

I feel guilty when I don’t see my friends and family often enough

I feel guilty when I complain about my job

I feel guilty when I don’t work out

I feel guilty when I think of all the people that helped me

I feel guilty when I don’t get home to Phoebe in time

I feel guilty when I’m being lazy and just don’t want to play fetch anymore

I feel guilty when I don’t call my friends that don’t live close by

I feel guilty when I want to go to bed early

I feel guilty when I have a drink during the workweek

I feel guilty when I spend money on things I shouldn’t

I feel guilty when I don’t do yoga regularly

I feel guilty when I don’t clean my house or help unload the dishwasher

I feel guilty when I think negatively of people in my head

I feel guilty when I drop off Smile Cards knowing I didn’t write any this month

I feel guilty when I don’t make a donation to a nonprofit/charity

I feel guilty that I don’t like my career and I complain about it to Mike

I feel guilty when I feel sorry for myself

I feel guilty that I stopped going to see my therapist

I feel guilty when I take medication to help me sleep

I feel guilty when I give Mike shit about little things

I feel guilty when I’m not in a good mood

I feel guilty for writing this post

Mostly, I’ve begun to feel guilty for feeling guilty all the time. I feel guilty when I don’t feel like I’m being the best version of me. I feel guilty that it’s the first time I’ve written a post and it’s not inspirational in the slightest. I feel guilty that it’s about me venting. I feel guilty that in the past six months, I have become cancer-free, not received one thing of chemo, gotten engaged, picked out a wedding dress, been to Italy, gone back to NYC twice, held beautiful babies, played with my dog, spent time with those that I love, live in a house and city that I adore and have my best friend to go to bed with every night—and I still somehow feel lost. I still feel like there’s something missing. I still have a hard time falling asleep at night without the medication I had been on for two years. I still whine and become sad on Sunday nights knowing I have an entire work week ahead of me. I still bitch about minute details of life when I know that there’s so many bigger problems out there. I still eat buffalo chicken nachos on the weekends even though I know they’re not good for me. I still drink beers while watching the Pats game because I like to. I still give Mike attitude at the end of the day when I’m grumpy for reasons that have nothing to do with him. I still honk at people when I’m driving to work. I still spend way too much time on the computer and my phone. I would’ve guessed that after two years of many moments of hell, I would be able to let things go easier, be more carefree, be kinder, gentler, fully in the moment.

I view the feeling of being given a second chance at life two-faced. I feel such gratitude and beauty from knowing that my eyes have been opened to how short life is and how I need to not take anything for granted and enjoy each moment and each day. But the other side of the face has created this enormous feeling of guilt when I’m not achieving the daily level of happiness and gratitude that my brain tells me I should be obtaining.

My therapist, the one that I stopped going to because I didn’t think I needed to go anymore (maybe I should rethink that decision, I know), had continuously told me for two years that I needed to have more compassion for myself. That I needed to stop being so hard on myself and stop judging every action that I take. She had said that I needed to allow myself to feel feelings that I have and try hard not to overthink everything. And while I can say I try to show myself compassion, it’s so god damn hard! It’s easier to criticize my actions and try to perfect what I’m doing wrong. It’s not healthy and I know this but I can’t seem to get out of my way sometimes.

I feel so frustrated that at this time in my life where everything seems to be going right, I somehow don’t feel euphoria, I don’t feel like I’m living this dream life. But I had dreamed of this life, since February 20, 2014, I dreamed of this summer, I dreamed of being engaged and planning my wedding, I dreamed of going back to work, I dreamed of having a French bulldog, I dreamed of going to Italy, I dreamed of having drinks with my friends at dinner and sipping on a Pumpkin Head beer while I watched the Patriots from the comfort of my house. And now I have that all. I have a Frenchie. I went to Italy. I got engaged. I bought my wedding dress. I’ve enjoyed drinks and food. I workout multiple times a week and can feel my muscle mass returning. I have a job. Yet, I still feel so confused and because of that, I feel like the most ungrateful brat that’s ever existed. I feel awful that I’m even putting these words out in the universe, that I’m letting people really see how I’m feeling. Now don’t get me wrong, my weekend in New York City getting engaged was everything I’ve ever dreamed about, our trip to Italy was literally the best two weeks of my entire life, I kiss and cuddle Phoebe every single day and tell her how much I love her, I feel at home, safe and secure when Mike is with me and continues to tell me that things are going to be okay.

I feel guilty for these negative feelings and emotions when so much is going right. I feel guilty because people that I know and love are going through horrible breakups and divorces, are dealing with health problem of their own, caring for a loved one that’s battling cancer, out of work and struggling to pay for childcare, grieving a loss of a loved one and so many more examples of real problems, real issues. Me not knowing what I want to do with my career and trying to achieve an unattainable goal of happy, content and successful life can barely be considered a real problem, however, to me, it feels like this insurmountable problem. I feel like I’m at the bottom of a mountain and I can’t see the top, I have no idea how high this peak is or how long it will take me to reach the top. And because of that, I feel frantic. I feel like a deer in the headlights, whipping my head around wildly looking for the right way to go but unable to find any sort of tree marker because I don’t even know if the top of this mountain is attainable with my abilities.

So, for today, I sit here at my computer with a “De-stress” and “stay calm” essential oils next to me hoping that I can figure out a goal, figure out a direction, figure out what I want, figure out what will make me happy, figure out what will make me feel content and fulfilled but most of all, I hope that I can learn how to not feel guilty, not feel ashamed that I feel the way I do. My hope is that by writing this piece, if you ever feel guilty for similar things that I do, that you feel less alone.

I’m hoping that my future blog posts will be more upbeat– to be truthful, I think that’s why I haven’t written in so long. I felt like my readers don’t want to hear about my little, and neurotic problems, nor do they want to read a post about my amazing Christmas weekend in NYC. I  have felt a sense of, you guessed it, guilt, if I begin to write about things that don’t fit into the box of “inspirational.” I began the Inspiration Initiative to express my feelings and to document my journey through a difficult time and I did that. I stayed true to my feelings, and I never felt guilty when I complained or vented because it felt “fair” to write my negative emotions regarding a cancer diagnosis. I knew nobody was going to judge me for that. But talking about that I’m frustrated by my career confusion or how much fun Mike and I have been having lately on the weekends, or the flip flop feeling in my stomach I get when I think about my body image, how much I love my dog, or what delicious meal I’m cooking that night, I know I can get judged for these type of content topics more than I could have been before. But I think it’s time for me to begin writing again more frequently. It’s time that I close the cancer book and start a new book that’s simply this: My Life. The ups, the downs, the in-the-middles, and all the moments in between. My cancer journey will still be part of it on days because the reality is that that diagnosis changed me, those experiences scarred me– some scars are ugly and some are beautiful, but they all remind me of the time period. But I’ve begun a new book and I hope it gets brighter by the second, and I’d love if you come along with me. It’s not going to be the same stories as you’re used to, but they’re still my stories.

If you got to the end of this ranting and redundant post, thanks. And, I’m impressed. I know this wasn’t beautifully written, I know this wasn’t inspirational, I know this wasn’t my best work but it made me feel better. For a few different reasons it made me feel better but at least for one, it erased the guilt I felt about not writing a blog post in a while.

I’ll be back.

Lots of love & light,

Jessy

I Need Your Help

 

When the emergency room doctor stepped outside after telling Mike and my parents that I had leukemia, there was precisely one thing that popped in my mind and quickly came out of my mouth, “but I want to marry Mike,” I said to all three of them. One year from today, on July 22, 2017, at a quaint inn on Cape Cod, that dream of mine will become a reality. That dream is due in large part to the the Dana Farber Cancer Institute. I have about 1,000 things to thank them for but giving me a second chance at life and giving me the opportunity to marry the love of my life and start our life together brings a level of gratitude I will never be able to match. But in just over two months, on September 25th, I will symbolically try to thank the organization that essentially gave Mike and I our future, by walking in the Jimmy Fund Walk to support the ongoing programs, medicine and RESEARCH. This research is imperative to conduct so that one day all stories have a ‘happily ever after’ like mine. Tragically, today that isn’t the case for all patients that go to the Farber in hopes of fixing themselves and getting to marry their Mike. So it’s my responsibility to help and today, I’m asking you to help too by making a donation to my walk team. 
 
Any donation, big or small, truly makes a difference in the efforts of Dana Farber and their live-saving mission. On behalf of all past, current and future patients, I thank you from the bottom of my heart.
 
tinyurl.com/jessysjfwalk

Lots of love & light,

Jessy

2014 vs 2016

p.s. Cheers to one year today Stevens, I love you!

The Beauty of Being Blind

To my amazement, over the past year and a half, I’ve continued to receive Smile Cards on a regular basis to take to the Brigham. Sometimes they’re from friends or family but more often than not, they’re from individuals or groups that I’m not associated with or know personally. Upon returning from the Cape on Saturday, I was immediately greeted with two batches of cards from different people. After we unpacked, I started reading thru them and, as I always am, I was moved by the kind words these strangers were writing to patients. But as I was reading through them, my mind wandered to the many tragic events that have unfolded in our country and throughout the world in the past month. It struck me, quite poignantly, that the many children and adults writing these cards don’t know who they’re writing to so they certainly don’t know the patients’ race or religion or gender or sexuality. They just know that they’re a human being. A human being in need of some support and so they selflessly offer their love, prayers and healing thoughts to complete and total strangers.

I wish that we could all see the world like the people who write these smile cards do…blind to the labels society puts on people. Blind to whether or not the person is voting for Hillary or Trump, blind to what kind of car they drive or what God they believe in or whether they’re gay or straight or transgender. They’re blind to it all; all except the fact that there’s a human being on the other end of that card, there’s a human being in a hospital bed that has a family and friends that love them. In the end, isn’t that all we really need to know? A person, just like us, is in need… We should help. 
It’s time we see people truly for the heart that beats within them.
Thank you to every single person who has written a Smile Card over the past year and a half. You’re making the world a more caring place. Keep them coming!
Lots of love & light,

Jessy

Stevens Put A Ring On It

It’s been 3 weeks since Mike surprised me and told me to get my lazy butt out of bed—we were going to NYC for the long weekend, he said. My eyes nearly burst out of my head and I whipped off the comforter so fast Phoebs barely had time to jump up. IT WAS ENGAGEMENT WEEKEND, I THOUGHT. OH MY GOD. OH MY GOD. OH MY GOD. So I started frantically running around the upstairs like a kid who was just told they’re going to Disney World for the first time and threw the most random assortment of things into my luggage—a bathing suit? Yes. A pair of pajamas? No. Everything I own that’s white? Hell yah.

And just like that, we were packed and on a train back to NYC. I say back because NYC is where we pretty much fell in love. Our first date was exploring the city at Christmas time with our main goal of seeing the Rockefellar Tree at night. We had started the day as really good friends (with a little bit more than friends feelings) and ended our day with sweet smooches and (literal) hair-on-fire love! From that night on, we had continued to go to NYC for summer visits and Christmas time “anniversary” visits where we’d see the Rockette’s and guzzle delicious beers at the oldest bar in Amerca, McSorley’s. Everytime we went, we had a magical time. But once I got diagnosed, we didn’t go. It felt like too much to go all the way there – I felt like I would be annoyed that I couldn’t go to my favorite bar—how if I got car sick on the long ride? It just didn’t work in that 2 year period. And that’s okay, because that’s what made this weekend even more incredibly special. WE WERE BACK!!!!!!! And we were back stronger and more in love than ever.

 

When our cab dropped us off at the Waldorf Astoria, I felt like I was dreaming—are we really staying here? Oh boy, now I really know something fancy is going on. But it didn’t come quite yet – we walked around the Park then got some lunch and grabbed a drink downstairs at the hotel bar as we listened to a beautiful pianist. Then it was time for dinner at Gotham. Before our taxi driver could take us there, however, Michael had him take us to Rockefellar. Just the place we had been in search of the first time. Except this time, instead of awkwardly looking at each other because we weren’t sure if we should kiss—he knelt down on his knee and asked me to be his wife—he promised that we would come back to NYC, together, forever and ever and ever. And I, of course, said yes. And then we shared one of many kisses in the Rockefellar Center.

 

With that, I obnoxiously began calling my family and best friends as well as notifying anybody in an ear-short distance of our engagement and the most beautiful ring that was now on my finger. The weekend was perfect – it was just our weekend – in our favorite city. Just the two of us – just how we began – and just how we’ll end one day.

 

I can’t put into words how grateful I feel that Michael fell in love with me—that we fell in love with each other—that I have someone who is so caring of others, so smart, so handsome and so funny. I am so thankful for the kind of man he is and how hard he works and how much he gives of himself so that our little family can be happy.

 

My heart is beyond full as we start this next chapter of our lives, together—I feel like it’s really time to leave the past behind and begin planning for the future—a future that is filled with love, happiness and butterflies.

 

Lots of love & light,

Jessy