The Date is Set

March 26, 2016.

This is going to be a big day for me. This is the day I will have my last treatment of chemotherapy. I will walk into Dana-Farber, see the most amazing people in the world, get an infusion of cancer-killing, leukemia sucking drugs and then I will walk out, head held high and I’ll be damned if I ever walk into Yawkey 8 as a patient again.

It will be a day I waited 764 days for.

This Wednesday, I sat in the chair next to Dr. D and when he asked if I had anything else I wanted to talk about, I just blurted out, “when does it end?” “Can I have a date?” “I need a date!.” Honestly, I really didn’t think he was going to be able to pin point it for me, but he pulled up his calendar and did just that. It was so what I needed. I’m so grateful that I’ve made it through over a year of this battle but I’ve been feeling overwhelmed lately with how much longer I have to go. It’s different having pieces of your life back, like work and exercising but knowing that you’re still sick, that you still have a long way to go to make it out of the woods. Knowing the date gives me something to look forward to. To set my mind to. A much-needed finish line in my own little marathon.

Today is National Cancer Survivors Day– I don’t fit into this quite yet because I’m only half way there. i’m in remission, but I’m not cured. I have survived a lot in the past year but I haven’t gotten through it all. Next year at this time, I will feel incredible relief and gratitude if I am lucky enough to go for a walk on a beautiful June day and know that I’m two months passed my last chemo infusion. Two months into the rest of my life. It will feel unbelievable to be a survivor.

So let the countdown begin. 292 days to go.

XOXO,

Jessy

Put Aside the Pride

In the past (almost) six months, my pride has overwhelmed me many times during my days at work. Being demoted is mentally one of the toughest things I’ve dealt with during the past year as I felt so hurt and so disrespected to have been brought back as something I had once been promoted from. But thinking negatively about it, I’ve realized, does no good. It doesn’t help me get my old position back and it certainly doesn’t make the days any easier. This week, however, I was able to meet with my “big” boss and I mustered up the courage to tell him how disappointed I was about the demotion, and honestly what a struggle it’s been for me to deal with that since being back. What’s more important, is that instead of just complaining about how I don’t love my current position, I spoke of multiple ways I think I can be better utilized and gave specific examples of things I’d like to work on and feel I can really contribute to. This made me feel tremendously better as I felt like A. I got what I wanted to say off my chest and B. I was being proactive about what I think my career path at the company should be. Things won’t magically get better overnight but it’s a step in the right direction, and that’s all I can ask for, right? 
All weekend, I was stressed about this meeting on Monday. I couldn’t stop thinking about it and was totally focused on how I could make it a productive and positive conversation. I was amping myself up, telling myself how great I am at my job. How I deserve this job. How I worked SO hard for the position I once had. How I have proven myself time and time again. How I deserved to have that position back. But this weekend, as I sat in the sand at a beach in NH, thinking about how I was going to get what I wanted out of this meeting, how I was going to “sell myself and my talents”, I ironically began reading about the Buddhist philosophy on “pride.” Buddhist teachings say that being “proud” is not a virtue and something that we should work to eliminate within ourselves. It reminds us that everything we have is because of other people, literally everything. That our very being is because our parents created us. That someone taught us how to walk and talk and read. That someone helped feed us when we were growing and put a roof over our head. That someone gave us our first job, and our second and our third. That when we make money, it’s because someone else is giving it to us. Whether it’s an employer or we own our a company and its a client or we have employees working to make us money, someone else is helping us. 
The whole thought is so extremely humbling. Exactly the opposite of how I had been acting in my head — “I deserve this, I deserve that” type of attitude. 
The whole notion though is honestly a really weird thought to me. I’ve always prided myself on the fact that I’m a hard worker, that I’ve earned everything I’ve gotten in life. I wanted to be a gymnast so I worked for it. Well, I had coaches that taught me and parents that paid for the lessons. I wanted to become a better public speaker so I enrolled myself in an oratorical contest. Well, I had a teacher that worked with me and let me practice for hours in front of her. I worked as a babysitter and house cleaner to save up on my own for my first car. Well, someone gave me that job and let me into their home so I could make that money. I went to college and worked my ass off for a degree. Well, I was able to work so hard because my parents financially and emotionally supported me and professors mentored me. I got my current job because I was successful at my first “real world” job. Well, yes that’s the case but I also had a friend’s dad pass along my resume in HR which absolutely helped my chances. All the things in life that i’ve accomplished, someone, in some capacity has helped me me it happen. 
This is such a different way to think about life and it’s hard because I think as individuals we like to pat ourselves on the back and tell ourselves what a good job we’re doing or why we deserve whatever life is giving us. There’s a lot of value in that, because I truly believe that you have to be your number one fan. You have to believe in yourself and your contributions to the world before anyone else can. But, what I can take away from this teaching is to truly remember that I didn’t do this alone. Not even close. So it’s important to remember and respect all those that gave you a chance, gave you an opportunity to make something of your life. In its simplest form, it’s remembering to have gratitude. Gratitude for everything and everyone in your life.
So say thank you to someone who’s helped you along the way. It’ll feel good for the soul. 
I’ll start…. 
to the most humble person I know, my Auntie Mary: thank you for teaching me what it means to be selfless and exemplifying what a strong and smart woman looks like. thank you for taking me to so many disney on ice’s, being at every birthday, and acting like a third grandmother in my life, I am truly lucky. thank you for being the kind, caring and gentle person that you are. i am so honored to have you in my life. 
XOXO,

Jessy 

Stay Hopeful Stay Humble

I came home to the most beautiful and meaningful present I’ve received in quite some time. Maybe ever! My beautiful and thoughtful friend Maija sent me a “lokai” bracelet. On it, there is a black bead that holds mud from The Dead Sea, the lowest point on earth. This signifies the difficult moments you experience throughout life and reminds you to stay hopeful even at life’s lowest moments. It also has a white bead that carries water from Mount Everest, the highest point on earth. This bead signifies life’s highest moments. It’s those times when you’re feeling on top of the world, that it’s important to stay humble.

Secretly (or maybe not so secretly, who knows) I’ve been having a little bit of a hard time mentally lately. I’ve been feeling like this journey is never ending; like I’ll never get back to my life, get back to my normal. So after a long day at work, coming home to find this on the table was the most wonderful thing I could have ever asked for and just what I needed. It made me feel so loved and so lucky. Because I am lucky. Yes, I am going through something difficult, but so does everybody in life. What’s important is that you remain positive and remember that things will get better. Hope is an invaluable feeling and this bracelet will be a daily reminder to be just that, hopeful and humble. 

Thank you to my beautiful Mai Tie, I am so lucky to have you in my life. 

Lots of love & light,

Jessy  

 

Motivational Monday

  

I tend to always be thinking about “what’s my next move,” how I can improve my life, how I can get something better than what I have now. With all this dreaming of what’s next, it’s hard to truly appreciate what I have now. Monday’s tend to be the pinnacle of this mindset– “ugh, I don’t want to be here. I can’t wait for the weekend.” But I need to start reminding myself, that although my work life is far from my version of ideal, it’s still a good job and one that is providing me with the benefits that I need so badly at this moment. For that, I am lucky and I should be grateful. Plus, I have friends at work that make me laugh which is pretty awesome. If I was a lone chicken all day I’d be miserable. For so many months, I yearned to be able to work, to get up on a Monday morning and be productive all day. So it’s time to remember that, it’s time to really appreciate the beauty right outside my window. 

Make today a good day. Take your life and make it something that makes you happy, not tomorrow but NOW. 

XOXO,

Jessy 

Smile Cards

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As many of you know, I spent nearly 100 nights in the Brigham in 2014 (and a few in 2015). Being “locked up” in the hospital is hard— the days are long, the nights are kind of scary and the mornings are the toughest, as you feel like you’re waking up in a bad dream. During my many stays, the one constant that would always make me smile, even at my lowest points, was being able to open a card that someone had sent. My initial month-long stay, I was blessed to have multiple cards to open every single day. I would wait until morning to open them with my breakfast, as I was typically alone during this time, and it would remind me that people were thinking of and praying for me. Truly, every single letter helped to lift my spirits. I’ve kept each one as they made such a difference in some of those dark days. I know, however, that not everyone is as lucky as I was to be able to get cards so frequently. I also know that every single person deserves to know that people are thinking of them– at the very least. They deserve to know that someone, no matter who that someone is, is keeping them in their thoughts and prayers. They deserve to have something put a smile on their face during the day, even if just for a split moment.
That’s why Mike and I have begun writing cards to patients of 7D (the oncology floor I stayed on). The letters are not long or full of wisdom, just simple notes to let these warriors know that they’re not alone, that there are complete strangers that are keeping them in their thoughts. Knowing this, as a patient, really makes a difference. It’s a touching feeling when you realize that people really care.
In one of the cards that I received over a year ago said the following words…
“You are strong. You are loved. And you WILL get through this.” 
These words have rung through my head probably a million times over the past year. They have acted as a self-affirmation for me when I’m feeling down, or when I need to be reminded that I can do this. Those three sentences have helped me get through a lot of tough times— and I have the person who wrote them in that greeting card to thank for that.
I wanted to let you all know what we’re doing in hopes to inspire you to write a few yourself. They can be about anything— a funny story, an inspirational note, words of encouragement — whatever you feel fitting! Mike was hesitant at first as he thought he wouldn’t be able to relate to them since he’s not a patient himself, but I reminded him, it’s not about being able to say “I’ve done it too” but rather “I’m thinking of you.” SO, if you’d like to help in this little quest of putting smiles on the faces of some very deserving people— feel free to send me cards addressed to “one very strong Brigham patient!” I am going to begin dropping them off every Wednesday when I come in for my treatments.
My address is: 2 Webster St. Somerville, MA 02145
Many thanks and lots of love,
Jessy

Tampa Times & Relay for Life Speech

It’s been over a week since I’ve written a blog post and it feels like an eternity. But that’s because I WAS ON VACATION! First vacation since being diagnosed. First time being on an airplane and getting to see palm trees and plop my butt in the sand and just relax. It was such a wonderful few days and something Mike and I really needed.

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We were greeted in the Tampa airport by multiple members of the fraternity I was a part of, Delta Sigma Pi. Their excitement to have me down and meet all the new members was infectious and something I felt so lucky to be able to experience.

So after deciding we no longer wanted a boring rent-a-car because we were on v-a-c-a-t-i-o-n,  we hopped in a mustang convertible and headed down to Clearwater!! The drive was perfect– the warm wind was in our faces, the music was on loud and I felt happy at its purist. We got so lucky as we were able to stay in a GORGEOUS condo that my friend Kelly’s family owns and were so nice enough to let us stay there for a few days. It’s right on the water, has a fantastic pool and jacuzzi, and the best balcony view of them all. We were so lucky to be able to have that opportunity! (so thank you thank you thank you to the Fitzgibbons!)

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We spent the next few days lounging on the beach, doing yoga in the sand, going for long walks hand in hand, sleeping with the doors open to hear the waves crash down, watching dolphins play in the water while we ate grouper sandwiches, spending time with some of my best girlfriends who came up for a day to visit, and watching the sunset go down atop the beautiful white sands! We couldn’t have asked for a more perfect few days.

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We then headed to Tampa so I could show Mike my old stomping grounds and get ready for the Relay for Life event that I was speaking at on Saturday. Friday night I got to meet all the wonderful students who have worked so hard over the past 6 months to fundraise in order to get me to Tampa and also to put on this incredible event. I was greeted by so many smiling faces, including old professors that came to support me– it was truly heartwarming. We then went out with some great friends for dinner and ended up at World of Beer for old times sake. It’s funny, WOB is right across the street from MacDittons, my favorite bar in college, and as I watched college kids go in and out, I felt old and almost like “could I do that anymore?” Funny how times change. Overall, it was a really special night to see so many close friends that I don’t get to see nearly as much as I’d like and just catch up and laugh together.

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Then came Saturday– the day we were down here for. I was anxiously awaiting my speech all day, reading it over and over by the pool and practicing too many times in front of Mike. Being the perfectionist I am, I wanted it to go smoothly and really make it worth everyone’s effort of getting me down there. The night came and my family, of course, was there to support me! Mom, Dad, Court, Stratos & Eleni were all there to cheer me on as I took the mic. With over 1000 people in attendance, I started to get pretty nervous– I haven’t public spoken like that in quite some time. But once I started speaking, I was reminded  that I’m talking about my journey– something I know a lot about. I could do this. And I did it. There was sense of relief when I ended but also real excitement. Overall, the ceremony was beautiful and so touching. It’s a night I will always remember.

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I’ve included the video below where you can watch my speech, hope you enjoy!

Again, thank you to all my brothers from DSP for making this trip a reality and to all my Tampa family who made being back so special to me. I love you all!

XOXO,

Jess

Bad Hair Dayz

A year ago this week, I chopped off my hair. I was rudely reminded of this via my Timehop (that app is the best at times and worst at other times). I had taken this picture the night before I knew I was going to have it cut.

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When I saw it on Monday night, I instantly started crying. I became overwhelmed with sadness, like I was looking at a picture of someone’s who died. It sounds silly but I miss my hair SO much. I miss putting it up in a pony tail. I miss straightening it. I miss curling it on nights I want to look pretty. I miss the feeling of brushing it or having someone play with it. I miss everything about it. My whole life I had had long hair and that’s the way I liked it. There are lots of bad things about chemo but the loss of your hair has to be one of the worst.
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It seems fitting that I’d have all these feelings come flooding back this week. During the past two months I’ve been losing my hair again. It hasn’t all gone but it’s been thinning pretty rapidly and it’s gotten to a point that I don’t know if I should start wearing my head wraps again. It’s hard because now that I’m back at work, I don’t want to be looked at differently and wearing a head wrap will absolutely make that happen. But at the same time, looking like a balding old man isn’t exactly how I want to be viewed either.
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With all that said, something I’ve learned is that in the end, looks don’t matter much. They feel like they matter, they feel like they matter a lot, but the important people in your life will love you with or without hair. Friends will still hang out with you. Coworkers will still have lunch with you. Boyfriends will still slow dance with you. Family will still be there for you. Life will go on. But it’ll be hard and it’ll be frustrating and it’ll be sad, but life will go on.
XOXO,
Jessy

A Golden Birthday

A year ago today, I turned 25. A year ago today, I received the first round of my chemo cocktail. A year ago today, I started the journey that was my 25th year of life. And it was a hard one. The hardest one yet. Today, as I turn 26 on the 26th, I’m so grateful to be where I am at this moment. Turning a quarter century old, I wasn’t yet sure if I would be cured, if I would respond to my treatment plan, if I would live to see 26. I like to think that in my heart of hearts I knew I would beat this and I would win, but to be truthful, there is always that “what if” in the back of your head. But today I’m stronger and so much healthier than I was a year ago today. Today I know I’m going to be okay, that I still have a long road to walk but that I can do it and that I will do it. Today, instead of being in the hospital, eating the single worst meal of my life (an absolutely nauseating chicken stir fry), I’m going to be busy at work and then spending the night with my mom, dad and Michael at a delicious restaurant in Somerville! We will cheers over a delicious cocktail called the Dorchester (pink lemonade, vodka & a cucumber…so good!) and we will celebrate all that we overcame together in year 25 and toast to a healthier, easier, and just plain better year 26.
As I’ve said so many times, this situation has taught me such a great deal, but none more than how truly blessed I am for the support system that I have. My birthday seemed to come early this year when last week on my one year “anniversary,” #inspirationaljessy stories starting popping up on my newsfeed. SO many people reached out…close friends and family, previous coworkers, people I haven’t talked to in years, people I’ve never met at all but read my blog. It was incredible. It made what was supposed to be a day of sadness, a day of celebration and happiness. The love I felt on that day was something I will never, ever forget and I thank each and every one of you who made it so special. It was the best birthday present I could ever have asked for.
People say turning 26 on the 26th means it’s your “Golden Birthday” and I think there couldn’t be a better time to have a golden birthday. So my birthday wish is to to have a golden year, one that sparkles and shines, one that brings out the best in me and allows me to help others, one that continues on my road to recovery. My wish is that this year is truly magical. Because a girl can dream, can’t she?
XOXO,
Jessy
p.s. yesterday at clinic, my amazing nurses surprised me with a beautiful birthday cake and “happy birthday” sing-a-long. It was so sweet and absolutely made my day so wanted to share some pics!
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One Year Ago Today

A year ago today, I woke up like it was any other day. Got dressed for work and headed to Framingham. That would be the last time I go to work for 11 months. Later that day, while sitting in a team meeting, I would begin to get shooting pains down my back and legs so bad that I could barely stay in my seat. I hurried back to my desk to try to walk it out but nothing worked. Within a few minutes, I found myself in a maternity room downstairs rolling around in pain on the floor and calling my mom hysterically crying. At that point, I would call my friend Amanda and ask her to drive me to the hospital. It was an abnormally beautiful February day (nothing like today) and we were able to put the windows down. I remember laughing and making jokes through the pain and putting my face towards the sun and really feeling it on my face, feeling the wind go through my hair. Although I had no clue what was about to happen, I remember the car ride so vividly and feeling a sense of surrealness while making our way to the hospital. We waited there for quite sometime and then my dad came through the door. We finally got taken into a room where I was told, for the what seemed like 100th time, that I just had back pain, most likely sciatica nerve pain. I was then brought into a room where I was able to start listing off the additional ailments that had been going on; nose bleeds, bruises, blood blisters, headaches. Quickly that got the attention of the doctor and they immediately wanted to take bloodwork. At that point, Mike had showed up. A few minutes later, my mom showed up and we both instantly started crying when she gave me a hug. It was like we knew, something was about to go wrong. Maybe our lives were about to be turned upside down. And then it was. A doctor walked in the room and precisely asked my family members to leave. I knew that wasn’t a good sign. She then sat down next to me and took my hand as she said the words that the blood work had come back and it appeared that I had leukemia. I was stunned. I didn’t cry, I didn’t hyperventilate. I was still…numb. I couldn’t believe what I was hearing, I couldn’t believe the words she had just said. And what I couldn’t do is tell my family. So that’s when I asked her to please call my family back in and be the ones to tell them. I’ll never forget the look on Mike’s face when she said the words that I had leukemia. It was the worst thing I had ever seen, and I think the worst thing I’ll ever see. It was a face of sadness, panic, pure worry. It was like looking in a mirror of what I was feeling. Then it all became a whirlwind. We had to pick a hospital to go to and my mom and I got in the back of an ambulance and I was rushed over to the Brigham. At that point, I had no idea that I wouldn’t feel fresh air for almost a month. I also had no idea that I was about to meet some of the most genuine, caring and wonderful individuals I would ever have the pleasure of knowing. One waiting for me in the emergency room. My very own angel, Dr. Mandy. She stood there as I got wheeled in and immediately took my hand and looked into my eyes. She could tell how scared I was, how overwhelmed myself and my whole family was. And she reassured us that everything would be okay. She held my hand the whole time she talked and told me that she was going to cure me, she was going to make me better. And although I had only known her for a few short minutes, I believed everything she said. I instantly trusted her with my life. I would then get taken up to a holding area for the night, that had a lovely metal toilet right next to my bed. That would be the first night that Mike would stay with me, he didn’t leave my side for the next 27 days. He would barely sleep that night. With plenty of drugs, I would sleep on and off the rest of the night and wake up the next morning to get hours and hours of tests done to see exactly what strand of leukemia I had. It’d be a painful, long day but a day that would end up telling me that, Dr. Mandy was right– everything was going to be okay.

That was all a year ago today. Last year when it was all happening, I knew what was going on, but I was in crisis mode, a shell of a person, just trying to do whatever I could to get myself better. I was surrounded by family, friends, nurses and doctors at all times so there wasn’t that much time to reflect. A year later, and I feel like it’s important for me to remember exactly what last year on this day entailed. It almost doesn’t feel real that an entire year has passed. It was by far the hardest year of my life, most trying and difficult time I’ve ever experienced. But I also learned so much about life, about the wonderful people in mine and the things that are truly important. Things I never would’ve realized without this journey; it’s a journey I never would have asked for but as I march through it, I realize that I’m so blessed. I’m still here a year later, I’m about to turn 26 and all my labs look great. What more could I ask for? Absolutely nothing. Because if there’s one thing I’ve learned, it’s that health is everything. Today is a sad day as I reflect on how my life changed so drastically but it also is a good day, I’m so much healthier than I was a year ago today. I’ve made it so far in a year and I have so much to be thankful for.
Thank you from the bottom of my heart to all those who have reached out with kind words, prayed for me, sent me positive vibes, cards, care packages, and simply shown me love in the past year. I cannot tell you how much it has all meant to me and what a difference it truly made. I love you all.
XOXO,
Jessy
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