On Wednesday morning, I packed my suitcase, grabbed Uncle Fred and my favorite blanket and headed to the hospital thinking I would be there for five days. Two hours later, Dr. D came in the room and said we’d have to wait a week until I could start my fourth round of chemo. I was certainly not looking forward to being in the hospital for five days but I was ready for it. I had mentally prepared myself and there’s always a sense of “excitement” to start the next phase because it just means I’m one step closer to the end goal. So in a weird way, I was disappointed that I didn’t get admitted last week— not to mention, my bags were packed and I knew I’d have to unpack just to repack— the worst.
Category Archives: My Stories
Cinco de No Drinko
Crazy for the Carter Family
I haven’t written in for what feels like forever. Mostly because I really have had no updates…nothing that I felt was worthy enough to write about. Each day has been generally the same. I’m home, I’m tired, I’m sometimes nauseous and I’m still dealing with a headache that has been here for literally over a month. On a “good” day, I have a visitor or have the energy to make dinner, maybe do some laundry, go for a walk or yoga. Nothing exactly over-the-top exciting. Well, except for my new-found talent of knitting– teaching myself this craft has actually been super exciting! So it sounds negative but I’ve felt like, what do I really have to say? And honestly today didn’t start much different than the rest but today took a turn for the fabulous and I now have something to say…something really really exciting to announce and it has absolutely nothing to do with cancer. TODAY MIKE AND I SCORED TICKETS TO THE “ON THE RUN” JAYZ AND BEYONCE SUMMER TOUR!!!!!!!!! WOOOOOOOOO WOOOOOOOOO!
It sounds so silly but this is the most excited I have been over something in a few months. I love Beyonce. I love JayZ. I love Blue Ivy. Plain and simple, I love the Carters. They are the best and I’ve been chirping about how the two of them need to go on tour together for quite some time and FINALLY my dream has come a reality. And this is just what I needed– I needed something to put on my calendar besides my next hospital stay. It’s something fun, it’s something exciting and something I really am going to get to look forward to!
So a big thank you to my wonderful boyfriend for coming through and getting me the best form of medicine I could ever ask for! I might not be Drunk in Love lately but I’m certainly still Crazy in Love (see how I did that!? hehe)
All hail the Queen Bey,
Jessy
p.s. I need to learn this move before June 30th.
Easter Sunday Thanks
On this beautiful Easter Sunday I’m thankful for a lot but here are three things that come to mind today:
1. I’m thankful that I was not in the hospital this weekend and was able to enjoy going to a friends wedding as well as enjoy Easter with Mikes family and adorable nieces.
2. I’m thankful for Nick at Nite playing Friends every night lately. I’ve had a hard time falling asleep and “calming down” at night so reruns of my favorite show have been seriously helpful and enjoyable! There’s just something about Joey, Phoebe, Ross, Rachel, Monica and Chandler that really make bedtime that much better.
3. I’m thankful for strawberry Strudels. Yes, the flakey delicious breakfast pastries that we all dined on as 7 year olds. Well, I’ve brought them back into my life as a dessert and it couldn’t be a more delicious treat. Highly recommend. 👌
Hope you all had a wonderful Easter and we’re able to enjoy it with those you love most.
XOXO,
Jessy
Boston Strong Forever: My Reflection 1 Year Later
One year ago today I woke up like a kid on Christmas morning. It was my first ever Marathon Monday. I had heard so much about this day and all it’s wicked glory. As a kid who grew up in New Hampshire and went to school in Florida, I had never gotten to experience the excitement and pride that this day brings. My Beacon St. apartment was directly in front of the mile 23 marker— my first floor living room window looked right out onto the street as the runners pushed through the final few miles. Our apartment was filled with mimosas, buffalo chicken dip (and an endless array of unhealthy snacks), jello shots and of course, an ice cold keg of cheap beer. It was a party and I was THRILLED to be a part of it. April 15, 2013 was a beautiful day for a race. Blue skies, a slight wind, and sunshine. A perfect day for a celebration. With a red solo cup in hand, I stood with my girlfriends on the sidewalk cheering on all the participants. I had never been to a marathon before and I truly was blown away with the strength of these participants. By the time I was seeing them, they had run 23 miles— 23 miles!!!— it’s a feat I really can’t even fathom. One of my favorite moments of the day came when a group of military men and women marched by. As they passed with an American flag being held high and proud, the crowd starting chanting, “USA! USA! USA!” I felt such a sense of pride in that moment…not only proud to be an American but to be a Bostonian. During that moment, I remember looking around at all the bystanders and all the runners and really trying to take in what is so special about this day. It’s Patriots Day. It’s Boston’s day. And for the first time, that meant it was my day too. It’s all of our day.
What a Wonderful World
All You Need Is Love…and Friendship
Hard Day Down, One Step Closer
Disclaimer: This is not a sunny post. I need to get out how I’m feeling right now and right now, I’m a little cloudy… cloudy with no chance of North End meatballs.
Yesterday I received extremely positive news— I’m officially in remission! REMISSION!!! Meaning that when they pulled my bone marrow on Wednesday, it came back clear of any cancer cells. Hallelujah! However, factually, they know that if we do not continue to fight the cancer cells they will absolutely come back. So continue to fight we will.
But I found myself unable to truly feel the excitement that should have accompanied this amazing news. News that my body is kicking some serious ass. News that I am going to live. L-I-V-E. This is huge news, obviously, but I felt so little relief. I had become overwhelmed with emotional and physical pain yesterday. Wednesday, Thursday and Friday were, to say it simply…a lot. I had prepared myself for Wednesday but not Thursday and Friday. I hadn’t understood that I would be back in the hospital so quickly and was feeling so frustrated about it. I also hadn’t been able to prep myself for how I would physically feel… which was terrible. My whole body ached. Every joint hurt when I moved, or laughed. My head felt like a tractor trailer was sitting on top of it— and the only thing that brought any relief was to sit in the dark (and lets face it, I’m all about that light!) And then the nausea started and I couldn’t keep anything down. And throwing up sucks. No better way to put it.
So after blood being drawn, an ultra sound of my stomach and back, a check-in with my doctor and six hours of being in one out-patient room to get a few rounds of chemo, I finally was being transported by wheel chair to the overnight room I’ll be in for the next few days. With a splitting headache and my mom holding my hand, I began to get extremely nauseous and became “that person” getting wheeled by a stranger while puking their brains out into a plastic bucket. Crying. It was one of those moments. A moment I don’t think I’ll ever forget because I’m not sure I’ve ever felt lower or more beaten in my life. Not because of the pain but because of the way it made me feel about myself. It was embarrassing and down right demoralizing. I wanted nothing more than to grab Harry Potter’s invisibility cloak and hide. Better yet, I wanted to wake up from what I feel like is a horrible nightmare. But I can’t. Because it’s not a nightmare, it’s my life right now. And as much as that sucks, it’s life. It’s my life and it’s still a good one. In fact, it’s a great one. And I’m lucky to be here. Even in low moments like that one.
Around midnight I was able to get on medication for what was causing all my symptoms and it’s helped a lot. At 3am I got hooked up to a type of chemo that runs into my veins for 24 hours straight… so I’ll be here at the Brigham for a while but feeling much better today am going to try to do some things I enjoy. Like blog. and paint. and sleep— hopefully!
So all-in-all, not my favorite few day but those days are now in the past and that means I’m one step closer to winning this game. I thought I’d leave you with a fab quote that my dad said yesterday as he sat by my side all day, 9am to 10pm. As the true sports announcer he is, he compared my remission news into a perfect Boston sports analogy… “When the C’s were murdering the Lakers in Game 6 of the 2008 NBA Finals, they didn’t stop playing hard at the half when they were ahead by over 20. They kept fighting and kept playing their asses off until the buzzer hit 00:00 because they knew that’s what they had to do to win the game.” And win they did… by a NBA Finals’ record of 39 points. And that’s what I’m going to do too— keep on kicking ass and keep on playing as hard as I can. Because I’m a competitor and I’m gonna win this game.
Thanks for listening. I’m jumping back on my positive party in just a few minutes.
XOXO,
Jessy
The Next Chapter
A Different St. Paddys Day Weekend
St. Patricks Day weekend is one of the many many reasons why I love living in the beautiful city of Boston. This weekend here is like no other– so full of excitement, energy and plain fun!Honestly, I was very disappointed about having to miss all the shenanigans that go along with this wild weekend but it is what it is. Luckily for this little Irish girl, I was able to have a nice day with lots of visitors! After three weeks of not being able to snuggle my favorite princess, my doctors said that I could have Eleni come in to see me. It’s amazing what a child can do for a soul…it literally made my heart feel better to give her hugs and kisses. Then some fabulous girlfriends came to chat, shower me with St. Paddys Day bling and give me some much needed girl time gossip! My parents and brother came later in the afternoon and unfortunately I wasn’t feeling well by the end of the day, but it was nice to have them here to be there with me during a not-so-great time.
Busy day for this lady but an even bigger day tomorrow. If my neutrophil count goes up to 500 (basically a number they give to my immune system), I could be going home. I’m trying not to get my hopes up but that’s basically impossible. I want to breathe fresh air, see the sun, lay in my bed, eat a home cooked meal. I want that so bad. So tonight, I’m saying an extra Irish blessing in my prayers and hoping I get my wish to go home tomorrow.
Hope everyone had a special weekend. Enjoy the week ahead!
XOXO,
Jessy



















