LK;ADKFJAD;LAJD;LKJA;LKJDF;LKJ AHHHHHHHHHHHHHHHHHH!!!!!!!!!!!!!
Tag Archives: cancer
Cinco de No Drinko
All You Need Is Love…and Friendship
Hard Day Down, One Step Closer
Disclaimer: This is not a sunny post. I need to get out how I’m feeling right now and right now, I’m a little cloudy… cloudy with no chance of North End meatballs.
Yesterday I received extremely positive news— I’m officially in remission! REMISSION!!! Meaning that when they pulled my bone marrow on Wednesday, it came back clear of any cancer cells. Hallelujah! However, factually, they know that if we do not continue to fight the cancer cells they will absolutely come back. So continue to fight we will.
But I found myself unable to truly feel the excitement that should have accompanied this amazing news. News that my body is kicking some serious ass. News that I am going to live. L-I-V-E. This is huge news, obviously, but I felt so little relief. I had become overwhelmed with emotional and physical pain yesterday. Wednesday, Thursday and Friday were, to say it simply…a lot. I had prepared myself for Wednesday but not Thursday and Friday. I hadn’t understood that I would be back in the hospital so quickly and was feeling so frustrated about it. I also hadn’t been able to prep myself for how I would physically feel… which was terrible. My whole body ached. Every joint hurt when I moved, or laughed. My head felt like a tractor trailer was sitting on top of it— and the only thing that brought any relief was to sit in the dark (and lets face it, I’m all about that light!) And then the nausea started and I couldn’t keep anything down. And throwing up sucks. No better way to put it.
So after blood being drawn, an ultra sound of my stomach and back, a check-in with my doctor and six hours of being in one out-patient room to get a few rounds of chemo, I finally was being transported by wheel chair to the overnight room I’ll be in for the next few days. With a splitting headache and my mom holding my hand, I began to get extremely nauseous and became “that person” getting wheeled by a stranger while puking their brains out into a plastic bucket. Crying. It was one of those moments. A moment I don’t think I’ll ever forget because I’m not sure I’ve ever felt lower or more beaten in my life. Not because of the pain but because of the way it made me feel about myself. It was embarrassing and down right demoralizing. I wanted nothing more than to grab Harry Potter’s invisibility cloak and hide. Better yet, I wanted to wake up from what I feel like is a horrible nightmare. But I can’t. Because it’s not a nightmare, it’s my life right now. And as much as that sucks, it’s life. It’s my life and it’s still a good one. In fact, it’s a great one. And I’m lucky to be here. Even in low moments like that one.
Around midnight I was able to get on medication for what was causing all my symptoms and it’s helped a lot. At 3am I got hooked up to a type of chemo that runs into my veins for 24 hours straight… so I’ll be here at the Brigham for a while but feeling much better today am going to try to do some things I enjoy. Like blog. and paint. and sleep— hopefully!
So all-in-all, not my favorite few day but those days are now in the past and that means I’m one step closer to winning this game. I thought I’d leave you with a fab quote that my dad said yesterday as he sat by my side all day, 9am to 10pm. As the true sports announcer he is, he compared my remission news into a perfect Boston sports analogy… “When the C’s were murdering the Lakers in Game 6 of the 2008 NBA Finals, they didn’t stop playing hard at the half when they were ahead by over 20. They kept fighting and kept playing their asses off until the buzzer hit 00:00 because they knew that’s what they had to do to win the game.” And win they did… by a NBA Finals’ record of 39 points. And that’s what I’m going to do too— keep on kicking ass and keep on playing as hard as I can. Because I’m a competitor and I’m gonna win this game.
Thanks for listening. I’m jumping back on my positive party in just a few minutes.
XOXO,
Jessy
Feeling Anxious
Remember when I said “anxiety leading up to a challenge is more than half the battle”? Definitely true but definitely easier to talk about than put into action. Just how do you you go about conquering that anxiety? How do you go about taking control of your mind when something has you worried? That’s an answer I just don’t have right now. And as of right now, anxiety has struck.
Tomorrow is a big day. Tomorrow I go for my first “outpatient” procedure at the Dana Farber Institute to have tests done that will determine if chemo is working properly and I can be considered in “remission.” At that point, I will get a more detailed plan of what my next two years will look like. That will be determined by having bone marrow pulled – a procedure I’ve unfortunately already had done and therefore already know, to be frank, how much it REALLY sucks. And so I’m anxious. Anxious about the physical pain. More anxious about the results. And although I know that getting myself worked up about it isn’t going to help make tomorrow any easier, it’s really hard to control these feelings. So for this battle, I really am hoping that anxiety is truly more than half of it…because that, my friend, means I’m already headfirst into the fight.
I’ve gotten through it before and I can get through it again. That much I know and that much I will continue to tell myself until this time tomorrow night. Because tomorrow night at this time, I will be back home, on my comfy couch, with the love of my life sitting next to me, eating a bowl of ice cream that I wish could turn into a glass of red.
XOXO,
Jessy
Little Life Lessons Learned
Yesterday was exactly one month from when I found out that I had leukemia. One month into what will be a long two years. I’m only one month in but in this one month I’ve learned more about life and what matters than I have in twenty-five years. And for that I’m grateful.
I’ve learned that you’re in this life by yourself — with or without you, the world is going to keep spinning and the sun will keep shining and that you have to find the strength within yourself to keep going even when life gives you a not-so-great hand.
I’ve learned at the exact same time that you’re nothing without your family and friends and that there is literally not one thing more important in this life than the relationships you create. Material items mean nothing. It’s the people that you surround yourself with that are important. They will be the ones to pick you up when you’ve fallen, tell you they love you and give you more hugs, kisses and support than you think you deserve.
I’ve learned to take help when you need it. Don’t let pride get in your way– people won’t offer to help if they don’t want to. So take it.
I’ve learned that I’m a lot stronger than I realized. That keeping a positive attitude in tough times, continuing to smile and believing in yourself is half the battle.
I’ve learned the power of a laugh. I’ve always loved laughing… who doesn’t? But I realized while Mike and I were driving to the grocery store two days ago and were hysterically laughing about something that that was the happiest I had been in a while. There’s really no better feeling (or therapy for that matter) than a good belly laugh. Laughter is happiness.
I’ve learned that faith matters– for me, it’s not about going to church and reciting memorized prayers but truly believing that there is something bigger in this life, something that can give you strength when you can’t seem to find it by yourself.
I’ve learned the power of being a good person. That doing little things for others matters. Bringing happiness to others brings happiness to your own life. Life’s a big circle and you will only get what you give.
I’ve learned that appearances matter more than they should but it’s just a reality of life. I’ve been very blessed to never have many self-image issues in the past but I find myself struggling the most right now with how I look. People say it doesn’t matter, it’s what’s inside that counts. And that’s true. But I still find myself avoiding mirrors as when I look at the reflection, it’s hard to see myself. Whether it should be or not, I’ve learned that feeling good about yourself and how you look really is an important part of life.
I’ve learned that doctors and nurses are literally angels that walk among us. They sacrifice their lives and time with their own family and friends to save other peoples lives. I have such admiration and gratitude for what they do.
I’ve learned the power of music. Music has always been a huge part of my life but it’s helped me in the past month more than I thought possible. Music helps you truly feel emotions whether they’re happy or sad. A song can help you get out of bed in the morning, make shaving your hair off a little easier, take you back to a special memory or point in time, or bring calmness to your day when it’s getting overwhelming.
I’ve learned that it doesn’t matter how long you go without talking to someone, if you made a difference in each others lives, you’ll always have a place in each others heart.
I’ve learned that people are good. There are bad people in this world but there are far more caring, generous and loving individuals. People that will go out of their way to make someone else’s day better and bring happiness to someone else’s life other than their own.
Lastly, I’ve learned that I honestly enjoy a frosty mug of beer, freshly poured glass of wine or recently shaken dirty martini. I’ve come to the conclusion that I am going to miss these little pleasures, A LOT, in the upcoming months. And ya know what? There’s nothing wrong with that.
You don’t need a cancer diagnosis to learn important lessons about life but you do need to learn things for yourself. Because as much as you hear or read about life lessons, they really only sink in until you come to the conclusions for yourself.
So one month in and I’m feeling optimistic. Feeling optimistic about my life, where it’s going and all the lessons I’ll continue to learn along this unexpected but important chapter of my life.
Xoxo,
Jessy
p.s. (cuz I love p.s.’s… and Sloths. Here’s a fab motivational picture my friend Amanda at work created for me. Talk about people going above and beyond to make you happy. Thanks girrrrrrrl.)
The Next Chapter
“Strength doesn’t come from what you can do. It comes from overcoming the things you once thought you couldn’t.” ~Rikki Rogers
High and Lows
A day after my absolutely fabulous Friday and two scoops of chemo crappiness later, I’ve had an all-in-all rough 72 hours. Both physically and mentally. I woke up Saturday morning with an extreme amount of jaw, mouth and throat pain which we quickly learned is an infection in my GI tract that comes quite often as a result of chemo. As with any infection, it onset a fever and some nausea. It continued to get worse and by Sunday my fever was up to 102.5. Pretty much sucking the life out of me, even my doctor noticed I wasn’t “as perky” as normal. Luckily I had some friends and family stop by both days which helps to put my attention on something other than the uncomfortableness; even if just for a few minutes. I certainly didn’t expect that I would be Miss Pollyanna, sunshine and rainbows the whole time but this was the first really rough patch I’ve had so far– the kind that punched me in the face with the reality of just how hard and long this road is going to be.
Then we added some insult to injury: Sunday morning my hair started to bid me goodbye. Some people may call this deep denial but I like to say I was being an enteral optimist when thinking just maybe I’d beat the odds and not lose my hair. I was quite honestly clinging onto this glimpse of hope and up until Sunday morning I was yanking on my hair everyday to see it it felt “loose” and lucky for me, it had been sticking in there quite well. Unfortunately, and unknowingly to me, the hair loss comes on extremely quickly and from Sunday morning to when I first noticed hair on my pillow, I was pulling out large chunks by Monday morning (pukeeeee). This quite literally made me feel nauseous. So, since my mom was here for the day, I had one of my favorite nurses and lets face it, didn’t have much of a schedule, I decided to rip the band-aid off as quick as possible and take control of the situation. With a Beyonce playlist of “If I were a boy” and “Diva” blaring in the background, we began the buzz-a-thon: and to my utter shock, it felt great. The first row of hair took my breath a way a bit but I didn’t cry because I felt a sense of control. It felt like I was choosing this, not my sickness making me do it. Which was empowering and important for me to feel.
Silver Linings BlogBook

Mornings are hard. For a split second when I’m sleeping I forget where I am and then am reminded that I’m not home and this isn’t a dream I’ll be waking up from any time soon. Mornings also mean that there’s a full day ahead of me which can feel daunting. SO, this morning I wanted to remind myself of some of the good things that will come out of this not-so-good situation.
1. Connect with people— a true blessing has been receiving such an overwhelming amount of love and support from quite an array of people in the past two weeks. Obviously with those that I hold closest to my heart, but also connecting with people that I haven’t spoken with in years, people I am only acquaintances with, or people that I really don’t know at all but felt the urge to reach out and offer their kind words and support. It truly has shown me that people are innately goodand I am so lucky to be surrounded with the most amazing group of individuals I could ever ask for. This experience has already highlighted the importance of making a better effort in connecting with those that I love and appreciate– making the time to give a call to one of my many friends that are seemingly scattered around the country just to say hello, making the time to call catch up with someone important in my life that it’s been too long since we’ve last spoken, making the time to not get lost in the “routine” of life and put in a better effort to see my family and friends that live just an hour away in which I sometimes act like live across the country, making the time to say thank you and i love you to all those that make a difference in my life. So to all of you who are reading this blog and have connected with me in these past two weeks to offer me positive vibes and energy… thank you and i love you.
2. Try new things — I will have lots of new found “time on my hands” and while I know this will be tough road ahead physically, I really believe that the mental game is half the battle and the more active and stimulated I remain, the quicker the road to recovery will be. So there’s no better time than now to try new things and gain new “hobbies”– like BLOGGING! 🙂 or knitting, DIYing or painting. Creative outlets will be a nice change of pace and one that I’m excited about.
3. Become a famous chef-– If you follow me on Pinterest, you probably saw the outrage that I took to pinning recipes yesterday. The past few months, I’ve learned to really enjoy cooking and trying new recipes/foods. But as with most people, there’s not always enough time in the day to be slaving away in the kitchen trying all the recipes I want to discover. So lucky for me (and Mike!), I’ll be slumming around our Slomerville palace for quite some time and will have plenty of time to master this talent.
I see you Guy Fierri.
4. Possibly get a pup — not sure if this one’s possible yet but I’ve wanted a frenchie for a long time now and there really hasn’t been a good time with my work schedule. So my wheels have already begun to spin that maybe this is God opening the door for me to have a little baby frenchie on board.
A girl can dream…
5. Have a “summer vacation” — living in New England there is absolutely a “better” time to have chemo. And it’s called not winter. I feel lucky that I’m going to go through this just as winter is ending and the beautiful New England spring and summer are beginning. I felt sorry for myself last summer being locked up in an office building everyday during those warm weather days. And although this is not how I would’ve wished to get some extra days off, (I’d take winning the lotto instead), I’m excited to spend time soaking up more rays than I had anticipated and just enjoying being outdoors and feeling the warmth of the sun on my skin.
So with that said….dear 10 degree days in March– get the eff out of my way.
6. More time with my Eleni Bear – lets face it, there’s no better therapy than snuggling with my favorite little nugget. Literally nothing better. And I’ll have way more time to do that. So BOOM– win.
I’m sure I’ll think of more later but those are some of the main things I’m looking forward to with my new change of pace.
XOXO,
Jessy








