Storms don’t last forever. It’s a mantra I’ve found myself needing to think a lot lately.
It’s been over 5 months since I was diagnosed but it feels like a century. When the 20th of the month hit, it felt hard to believe that I’m not even to the halfway point. Scratch that, in the grand scheme of things, I’m not even to the quarter mark. Spring 2016 feels like an eternity away. And in the middle of Summer 2014, the thought of that date gets me down. Taking it day by day is most definitely the best way to complete this challenge. But I’m not a day-by-day type of person. I love looking to the future. I’ve always been like that… looking forward to what’s next, striving for a bigger and better goal. But in this case, when the goal is so far away and there’s a lot of “mehhh” in the middle, looking to the future feels more like a daunting task rather than an exciting endeavor.
I wrote this yesterday in the middle of the afternoon, sitting on my couch, basically just feeling sorry for myself.
“I just want my life back. I want it back so so so bad. I want to go to work. I don’t want everyone to have to take care of me and do favors for me. I want to have a drink. Go for a run. Do laps in the pool at my sports club. Eat raw sushi. I want to go on the vacation Mike and I had planned to the Dominican. I want to not feel worried all the time or have so much anxiety. I want to get a paycheck. I want my boyfriend to not have to give me shots in my stomach every night. I want to get a manicure and pedicure. I want to not think about cancer every second of every day.”
Those negative emotions are all I could think yesterday. All I could feel is how much I want my life back. However, reading it back, I feel guilty. I beat myself up when I have pitty parties for myself because it makes me feel so ungrateful and unappreciative of what I’ve been given. I’ve been given the gift of being able to fight and overcome this terrible disease. Not everyone is as lucky— that’s a thought that goes through my mind multiple times a day. I am lucky and I know it. But the truth is, I sit here today and I still ache for my old life. I still want more than anything to wake up from this bad dream and be a healthy, normal 25 year old. I try so hard to be strong but sometimes it’s just too overwhelming, too draining, too frustrating. But today’s different than yesterday. How much different? Not much. But I’m one day closer and two shades happier. Tomorrow I’ll be at the hospital all day and will be getting another bone marrow biopsy done to triple check that there are no leukemia cells in my body. So tomorrow’s a big day. It won’t be a fun day, so today had to be. Today I cooked and went to the super market and received a pair of fabulously comfy slippers from a coworker and am about to go to an outdoor yoga class which will be the first time I’ve done group exercise in over 5 months. It’s a better day than yesterday and Thursday will be a better day than tomorrow.
Storms are scary. There are large cracks of thunder, lightening that illuminates the sky and sets fire to things here on earth, heavy rains that come in sideways and make you cold and wet. Often times in a storm, you even lose power. Sometimes, the lights just flicker and other times you can lose it for hours and even days. But the light always comes back on. The thunder and lightening and rain, they always stop. The clouds always break and that big beautiful sun always comes shining through.
XOXO,
Jessy
The Inspiration Initiative 
Beautiful. Just like you 🙂
I love your openness and your heartfelt honesty…no Guilt…this is how I feel…its real and true.
Prayers and love as you wait for results.
Praying For You ! Hugs
Jessy, Ups and downs. Life is not fair. Challenges and struggles they say make us stronger. I don’t know if YOU can get any stronger!!! You are amazing. As I have said before, you have stregths that I think you are not even aware of. 🙂 Your analogies in your writing are so true and beautiful. I see still in you, that sparkle in your eyes…your beautiful eyes. I have always said “You can tell a good person by their eyes”. Maybe that is the nurse in me…Eyes say so much. They give us so much.
I continue to keep you in my daily prayers and thoughts Jessy….today is going to be a good one. The sun will shine and you will get good news from the bone marrow biopsy today. 2016 seems like a lifetime away, but with the love from your family and friends you will continue to take it “Day By Day”…..With love, Connie
Love this!! I love reading your posts. I can totally relate to this one. You don’t have to be strong for everyone all the time! You’ve been through a lot and are entitled to those negative thoughts and bad days. I admire your strength and positive attitude 🙂
Thanks for the kind words and support Candace! 🙂