Home Sweet Hospital

This Monday, I woke up and went to the Brigham with my mom and Mike. I checked in and got into a johnnie and hopped up into the bed. In a weird way, it felt normal. Being in a hospital bed, although I haven’t been for nearly a year, felt comfortable. Instantly, I was brought back into a world that I should feel very scared of and anxious around but instead, I feel a sense of security. I know to an outsider, and maybe even my family members, that must sound really strange and kind of unhealthy but for me, it’s true. Of course, I was nervous about the procedure and any complications that could’ve arisen but as I sat there in the underground’s of the Brigham by myself waiting for the doctor or nurse to come see me, I was at ease. I wasn’t supposed to be “figuring out my life” or thinking about what I want to do next or applying for jobs, all of which I feel completely lost and unsure of myself doing. Somehow, sitting in a hospital bed, I felt confident, I felt peace knowing I was exactly where I should be at that moment. I was there to put a final close on my leukemia chapter.

I was there to get my port removed.

(For those of you unfamiliar, a port is a permanent IV line that stays in your chest and allows you to give blood and receive medications through. Below is a pic of what it looks like).

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It was a day I have dreamed of for so long, incredibly surreal to believe the day had finally come. This thing, this piece of plastic and tubing that’s been a part of me for the nearly three years. Originally, it felt so foreign and I hated how much it stuck out from my chest. However, I slowly began to have a deep respect for it as I started to realize how it was the gateway to my health. Sometimes when I was at yoga, for example, and the instructor would say to put our hands over our hearts, I’d put one hand over my heart and one over my port. I started thinking of my port as a part of me, and started imagining it as my second heart. One that allowed my original heart to keep beating; it was the catalyst that kept me alive and I am so grateful for it.

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However, this Monday it was time to part ways, and to my moms delight, when I asked the doctor if I could keep it, she graciously said, “no, unfortunately we have to put it in our hazardous waste disposal.” I get it, it sounds strange to try to keep it but I wanted to because of the fact it was such an enormous and important aspect of my journey. I wanted to keep it with my other mementos from my “cancer chapter.” So I was kind of disappointed, strangely enough. But I realize, I guess I don’t need to physically hold onto something because I’ll always hold onto as a part of who I am. I will look at the scar on my chest for the rest of my life and remember exactly what was there, and exactly how blessed I am that all I have left is that minor battle wound. It’s one that I’m immensely proud of.

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So today, after two days of being sleepy and one day being kind of grumpy (I’m sorry Mike 😢 I do love you), I got myself out of the house and met with Dr. Mandy at Dana Farber, not because I had an appointment but because we wanted to catch up and chat as two friends. Dana Farber isn’t home, nor should it ever be, but I’d be lying if I didn’t feel at home there. Who would’ve thought?

Lots of love & light,

Jessy

p.s. final pic is me today… a flat chested lady once again 🙂

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6 thoughts on “Home Sweet Hospital

  1. I remember that day vividly…and it was truly “the end”. I celebrated those two words several times prior; after surgery, at the end of chemo, at the end of radiation or a year after that when I was done with Herceptin. I believe each time was deserving of a celebration…however, I didn’t realize until It happened, that the removal of my port truly was THE end. Celebrate sweet girl…you’ve won the war, conquered the beast and are truly DONE. Drop that mic and move on. 🤗

  2. You are both amazing, strong, smart, and witty women… very inspiring! I normally would be writing” sorry you had to go through that…” — but not this time!! Your writings have changed it to “Wow, I think you are now stronger because of those tough times during your journey… but you beat it — you won — and you are here to share it with all.” Hugs to you both!!!!! And Laurie, one of these days, we WILL get together…! Connie is waiting too….

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